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I have less than a year to live

Posted: Wed Jul 18, 2018 12:31 am
by Joecool1983
So, I met with my surgeon yesterday. 4 months after having Liver Resection Surgery and thinking I was in the clear, I got the news that the Cancer is back. I have new metastatic activity/tumors in my peritoneum and diaphragm. My surgeon said without any further treatment, I probably have less than a year to live. He immediately got me seen by the Medical Oncologist who works down the hall from him. Starting next week, my new Medical Oncologist has me starting on Stivarga. Anyone have any experience with Stivarga they could share with me?

Re: I have less than a year to live

Posted: Wed Jul 18, 2018 12:46 am
by CRguy
Sorry for the new challenges my friend
this search should have some info which may help you

search.php?keywords=stivarga&fid%5B0%5D=1

Best wishes
CRguy

Re: I have less than a year to live

Posted: Wed Jul 18, 2018 1:36 pm
by DAS43
Please consider a trial at NIH. I am a partial responder and sleen is NED. We both did the TIL trial there. U can find lots of information on here about it.

Re: I have less than a year to live

Posted: Wed Jul 18, 2018 1:38 pm
by DAS43
Here is the link to sleen post. viewtopic.php?t=49736

Re: I have less than a year to live

Posted: Wed Jul 18, 2018 4:26 pm
by mhf1986
DH is on Vectabix and getting a great response...I don't see that in your sig...did you try it?

Re: I have less than a year to live

Posted: Wed Jul 18, 2018 5:03 pm
by Capri
I'm sorry to hear this rough news. I am sending good vibes and prayers your way.

Re: I have less than a year to live

Posted: Sat Jul 21, 2018 11:01 am
by DarknessEmbraced
I'm sorry it wasn't better news and hope your treatment goes well!*hugs*

Re: I have less than a year to live

Posted: Mon Jul 23, 2018 1:21 am
by Joecool1983
mhf1986 wrote:DH is on Vectabix and getting a great response...I don't see that in your sig...did you try it?


Haven't been on anything since I quit the Irinotecan last August. I was having severe nausea, vomiting, and diarrhea, even at half the dose. It was extremely toxic to me. I chose to quit because it was making my quality of life horrible. What's the point in taking chemotherapy if you are going to be extremely ill and not be able to enjoy life and it's not having any effect on the Cancer at all? You know? I just wanted to not be sick and enjoy my life.

Re: I have less than a year to live

Posted: Tue Jul 24, 2018 1:03 pm
by Nextgen
May God bless you with hope everyday. My prayers always with you. God mercy cure and heal on you!

Re: I have less than a year to live

Posted: Tue Jul 24, 2018 7:33 pm
by mhf1986
Totally get not wanting to be ill all the time. FOLFOX was a chore for DH, bone tired, ill feeling, diarrhea, etc. He started Vectabix aka p-mab (an EGFR therapy) in May and the only side effect is the face/chest rash. He looks like he's 16 again with zits but I don't care what he looks like. The nurse called the rash "stable" today. He coats everything with Eucerin lotion twice a day, takes an antibiotic, and wears a fedora when outside. The liver tumors grew from January to May scan and the July scan showed they have now shrunk to January size again.

We went out to dinner Saturday night and are headed out of town for a long weekend Thursday. He works every day but treatment day. P-mab is soooooo much easier than FOLFOX. There's no go-home bag and it only takes an hour infusion. DH doesn't even take pre-meds with it. He is doing 66% irinitican 1x a month (with premeds) with p-mab 2x a month.

He has also discussed proton therapy with his dr which they may employ on the liver tumors later...idea? There's another gent on this forum who has used that with success.

But as I always say to DH...what FEELS right to YOU?