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Re: Lung recurrence update- good news

Posted: Sat Jan 19, 2019 5:40 am
by Danielito82
:D wow...great !!!.. thanks for sharing !!!!

Re: Lung recurrence update- good news

Posted: Tue Oct 15, 2019 11:11 pm
by Beccaschocked
Just a short update for those facing stage IV diagnosis and/or lung metastasis. I’m still NED after two years from my lung recurrence and 4.5 from my initial diagnosis.

Thanks to those who continue to be an inspiration in this fight.

Re: Lung recurrence update- good news

Posted: Wed Oct 16, 2019 2:53 pm
by MeAndMine
That’s excellent news!! So happy to hear!

Re: Lung recurrence update- good news

Posted: Thu Oct 17, 2019 7:34 am
by Gravelyguy
That is so awesome. NEDville is such a wonderful place to be!

Dave

Re: Lung recurrence update- good news

Posted: Thu Oct 17, 2019 10:09 am
by Claudine
What a wonderful update! Thank you it gives us all hope :)

Re: Lung recurrence update- good news

Posted: Thu Oct 24, 2019 7:44 pm
by LPL
Beccaschocked, thank you again for starting this thread.
I have posted in here before but would like to update that my husband has now had 2 RFA ’secessions’, one in Febr and one now in Oct 2019. His CT-scan after is showing NED. We celebrate :)

Re: Lung recurrence update- good news

Posted: Mon Oct 28, 2019 12:39 pm
by skb
Beccashocked,
Thanks for this thread.

I am dealing with the decision to have chemo or no chemo after VATS to remove a solitary lung met nodule.

Your story gives me hope

Re: Lung recurrence update- good news

Posted: Thu Jan 02, 2020 10:49 pm
by skb
Beccashocked,
Could you please share where you are having your treatment?

The decision to have no chemo after VATS is similar to my situation but my oncologists in Minnesota were not definite about it and left the decision to me.

I would like to know the cancer centers that forgo chemo after a solitary lung met.

skb

Re: Lung recurrence update- good news

Posted: Fri Jan 03, 2020 11:41 am
by Suniva
Thank you for sharing good news, your story really gives me hope for my husband.

Re: Lung recurrence update- good news

Posted: Sun Jan 05, 2020 5:48 pm
by kiwiinoz
JulesW wrote:Hi Beccashocked,
I'm new to this board - looks like I'll need a lobectomy for a central left lower lobe nodule. Which lobe did you have removed if I may ask? I've heard that lower lobe resections may have more impact on lung function than upper lobectomy because of greater oxygen transfer in lower lobes.
-JulesW


Hi Jules,
I had a lower right lobe removed and have had no discernible reduction in lung function that I can notice.
I run a fair bit and 2019 was 4 marathons for me with the best at 3 hours 7 minutes. I not fast by any means but my point is that I'm a lot faster than others that have not had lung resections so it doesn't mean too much in the big scheme of things.
The operation was easy compared to others, and the only hard thing was the tube to get rid of the bleeding and fluid on the lung, once that was out it was a breeze.
Kiwi

Re: Lung recurrence update- good news

Posted: Mon Jan 06, 2020 5:12 pm
by JulesW
Thanks kiwiinoz,
I did have bilateral lung surgery in Germany and they removed most of my left lower lobe Oct/Nov 2018. I've done some steep and moderately difficult hikes recently which were fine as long as I paced myself.
Best,
Julius