Lung recurrence update- good news

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Danielito82
Posts: 28
Joined: Sat Aug 11, 2018 1:53 pm

Re: Lung recurrence update- good news

Postby Danielito82 » Sat Jan 19, 2019 5:40 am

:D wow...great !!!.. thanks for sharing !!!!

Beccaschocked
Posts: 37
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: Lung recurrence update- good news

Postby Beccaschocked » Tue Oct 15, 2019 11:11 pm

Just a short update for those facing stage IV diagnosis and/or lung metastasis. I’m still NED after two years from my lung recurrence and 4.5 from my initial diagnosis.

Thanks to those who continue to be an inspiration in this fight.
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection; 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.; 1.0; 1.1; 1.1; 0.9
7/18, 1/19, 7/19 clean scans NED

MeAndMine
Posts: 146
Joined: Mon Aug 05, 2019 2:40 pm

Re: Lung recurrence update- good news

Postby MeAndMine » Wed Oct 16, 2019 2:53 pm

That’s excellent news!! So happy to hear!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

Gravelyguy
Posts: 249
Joined: Thu Jul 05, 2018 6:03 pm

Re: Lung recurrence update- good news

Postby Gravelyguy » Thu Oct 17, 2019 7:34 am

That is so awesome. NEDville is such a wonderful place to be!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Claudine
Posts: 173
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Lung recurrence update- good news

Postby Claudine » Thu Oct 17, 2019 10:09 am

What a wonderful update! Thank you it gives us all hope :)
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (no cancer found - Crohn's)
Xelox * 6, 05/2018 to 10/2018
6.7 cm left adrenal mass 03/14/2019, 4.4 cm 05/21, 4.1 cm 09/16
SBRT L4 02/2019
Folfiri + Avastin
CEA since 03/15: 58, then low of 3.2 now at 5.0 (twice)
Scan 03/14: Multiple small lung nodules
Scan 05/21: shrinking
Scan 09/16: lungs show no abnormalities (YAY!!!)

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Lung recurrence update- good news

Postby LPL » Thu Oct 24, 2019 7:44 pm

Beccaschocked, thank you again for starting this thread.
I have posted in here before but would like to update that my husband has now had 2 RFA ’secessions’, one in Febr and one now in Oct 2019. His CT-scan after is showing NED. We celebrate :)
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

skb
Posts: 41
Joined: Tue Mar 28, 2017 2:00 pm

Re: Lung recurrence update- good news

Postby skb » Mon Oct 28, 2019 12:39 pm

Beccashocked,
Thanks for this thread.

I am dealing with the decision to have chemo or no chemo after VATS to remove a solitary lung met nodule.

Your story gives me hope
3/21/17: Dx T3N0M0- distal rectal cancer, 4.5cm tumor, 2.5 cm from anal verge
4/18 to 5/22/17: chemoradiation - Xeloda 1800mg twice a day for 25 days, 200 Cgy/day
6/28/17: biopsy shows no invasive adenocarcinoma
8/09/17: MRI - no primary tumor left, starts wait and watch
8/17/17 to 12/1/17: mop-up chemo with Folfox and oxaliplatin (IV infusion), every two weeks
5/19 expanding right lung nodule, 8mm
8/19 VATS wedge resection
9/19 Clean PET, NED, no detected alterations of BRAF, KRAS,NRAS, PIK3CA, PTEN


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