Lung recurrence update- good news

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Danielito82
Posts: 28
Joined: Sat Aug 11, 2018 1:53 pm

Re: Lung recurrence update- good news

Postby Danielito82 » Sat Jan 19, 2019 5:40 am

:D wow...great !!!.. thanks for sharing !!!!

Beccaschocked
Posts: 38
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: Lung recurrence update- good news

Postby Beccaschocked » Tue Oct 15, 2019 11:11 pm

Just a short update for those facing stage IV diagnosis and/or lung metastasis. I’m still NED after two years from my lung recurrence and 4.5 from my initial diagnosis.

Thanks to those who continue to be an inspiration in this fight.
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection; 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.; 1.0; 1.1; 1.1; 0.9
7/18, 1/19, 7/19 clean scans NED

MeAndMine
Posts: 149
Joined: Mon Aug 05, 2019 2:40 pm

Re: Lung recurrence update- good news

Postby MeAndMine » Wed Oct 16, 2019 2:53 pm

That’s excellent news!! So happy to hear!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

Gravelyguy
Posts: 291
Joined: Thu Jul 05, 2018 6:03 pm

Re: Lung recurrence update- good news

Postby Gravelyguy » Thu Oct 17, 2019 7:34 am

That is so awesome. NEDville is such a wonderful place to be!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!

Claudine
Posts: 301
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Lung recurrence update- good news

Postby Claudine » Thu Oct 17, 2019 10:09 am

What a wonderful update! Thank you it gives us all hope :)
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT radiation 04/18, SBRT 02/19
Resection small intestine 05/18 (no cancer found - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin since 03/19
6.7 cm left adrenal mass 03/19, 3.67 cm 12/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 7.6
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: 2 calcified granulomas, one 1mm stable nodule

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Lung recurrence update- good news

Postby LPL » Thu Oct 24, 2019 7:44 pm

Beccaschocked, thank you again for starting this thread.
I have posted in here before but would like to update that my husband has now had 2 RFA ’secessions’, one in Febr and one now in Oct 2019. His CT-scan after is showing NED. We celebrate :)
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

skb
Posts: 48
Joined: Tue Mar 28, 2017 2:00 pm

Re: Lung recurrence update- good news

Postby skb » Mon Oct 28, 2019 12:39 pm

Beccashocked,
Thanks for this thread.

I am dealing with the decision to have chemo or no chemo after VATS to remove a solitary lung met nodule.

Your story gives me hope
3/21/17: Dx T3N0M0- distal rectal cancer, 4.5cm tumor, 2.5 cm from anal verge
4/18 to 5/22/17: chemoradiation - Xeloda 1800mg twice a day for 25 days, 200 Cgy/day
6/28/17: biopsy shows no invasive adenocarcinoma
8/09/17: MRI - no primary tumor left, starts wait and watch
8/17/17 to 12/1/17: mop-up chemo with Folfox and oxaliplatin (IV infusion), every two weeks
5/19 expanding right lung nodule, 8mm
8/19 VATS wedge resection
9/19 Clean PET, NED, no detected alterations of BRAF, KRAS,NRAS, PIK3CA, PTEN

skb
Posts: 48
Joined: Tue Mar 28, 2017 2:00 pm

Re: Lung recurrence update- good news

Postby skb » Thu Jan 02, 2020 10:49 pm

Beccashocked,
Could you please share where you are having your treatment?

The decision to have no chemo after VATS is similar to my situation but my oncologists in Minnesota were not definite about it and left the decision to me.

I would like to know the cancer centers that forgo chemo after a solitary lung met.

skb
3/21/17: Dx T3N0M0- distal rectal cancer, 4.5cm tumor, 2.5 cm from anal verge
4/18 to 5/22/17: chemoradiation - Xeloda 1800mg twice a day for 25 days, 200 Cgy/day
6/28/17: biopsy shows no invasive adenocarcinoma
8/09/17: MRI - no primary tumor left, starts wait and watch
8/17/17 to 12/1/17: mop-up chemo with Folfox and oxaliplatin (IV infusion), every two weeks
5/19 expanding right lung nodule, 8mm
8/19 VATS wedge resection
9/19 Clean PET, NED, no detected alterations of BRAF, KRAS,NRAS, PIK3CA, PTEN

Suniva
Posts: 15
Joined: Mon Sep 30, 2019 4:03 pm

Re: Lung recurrence update- good news

Postby Suniva » Fri Jan 03, 2020 11:41 am

Thank you for sharing good news, your story really gives me hope for my husband.
DT 41yrs 10/18 on 3C, and small nod r/l lungs
11 lap surg
12/1805/2019 CAPOX total 8cyc (inc and dec tumor)
09 thoracotomy at right lung took two nodules, still left at left lung.metastatic to lung
10-Started CAPOX again
10/31/19-2nd cycle Allergic to OX taking CAP oral chemo alone for 1 cycle, CT scan showed left nodule inc. from 5to6mm
12/19 ct scan ndoc visit 7mm. Doc want to do 3 cycles of CAP
2/18 pet n ultrasound endo confirmed metastatic to perirectal 4mm
3/16 CT new nods at r/l lungs, inc pelvis

kiwiinoz
Posts: 1147
Joined: Thu Jan 03, 2013 11:44 pm

Re: Lung recurrence update- good news

Postby kiwiinoz » Sun Jan 05, 2020 5:48 pm

JulesW wrote:Hi Beccashocked,
I'm new to this board - looks like I'll need a lobectomy for a central left lower lobe nodule. Which lobe did you have removed if I may ask? I've heard that lower lobe resections may have more impact on lung function than upper lobectomy because of greater oxygen transfer in lower lobes.
-JulesW


Hi Jules,
I had a lower right lobe removed and have had no discernible reduction in lung function that I can notice.
I run a fair bit and 2019 was 4 marathons for me with the best at 3 hours 7 minutes. I not fast by any means but my point is that I'm a lot faster than others that have not had lung resections so it doesn't mean too much in the big scheme of things.
The operation was easy compared to others, and the only hard thing was the tube to get rid of the bleeding and fluid on the lung, once that was out it was a breeze.
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

JulesW
Posts: 16
Joined: Thu Jun 21, 2018 1:48 pm

Re: Lung recurrence update- good news

Postby JulesW » Mon Jan 06, 2020 5:12 pm

Thanks kiwiinoz,
I did have bilateral lung surgery in Germany and they removed most of my left lower lobe Oct/Nov 2018. I've done some steep and moderately difficult hikes recently which were fine as long as I paced myself.
Best,
Julius
46 rectal ca. 12/16
LAR 1/17 rectal tumor stage 2b, 0/30 nodes +
Xeloda x 6 mos
CT 6/18 - 4 nodules R lung + 3 new spots in left lower lung
6/18 folfiri + Avastin x 5 cycles
LAPM Germany 10/18 - 10 nodules removed right lung, 4 cancer
11/1/18 R pneumothorax - chest tube placed surgically
11/6/18 L lower lobe subtotal resection
12/18 blood in urine -> rectal ca met on bladder
3/1/19 bladder surgery, no peritoneal spots noted
4/19 MSK self referral
Avastin + xeloda x 6 mos
10/19, 1/20 CTs look good


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