Lung recurrence update- good news

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Beccaschocked
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Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Lung recurrence update- good news

Postby Beccaschocked » Tue Jul 17, 2018 6:03 pm

I know there are several people on this board who are actively dealing with “lung thingies” or have in the past, so I figured I’d share my experience.

I had a single lung met removed via lobectomy, a piece of cake surgery in comparison with my colon/liver resection. My doctors agreed to forgo chemo for an onslaught of reasons, a decision I struggled with.

Since surgery I’ve made a full recovery, I’m able to hike, run, and work out as usual without any shortness of breath (or rather only shortness caused by two weeks of eating copious amounts of pasta in Italy, not the loss of a lobe).

Today, I had my 6 month post surgical scan and all is well, aside from my insides looking completely jumbled!
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.; 1.0; 1.1; 1.1
7/2018 & 1/2019 Clear scan NED

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CRguy
Posts: 9734
Joined: Sun Feb 10, 2008 6:00 pm

Re: Lung recurrence update- good news

Postby CRguy » Wed Jul 18, 2018 12:39 am

Glad it is working for you !!!!!

as a lung thang ganger from way back ... I agree
the lung surgery is WAY more manageable than the whole resection thing

Cheers and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

lovelife789
Posts: 114
Joined: Thu Aug 24, 2017 5:28 am

Re: Lung recurrence update- good news

Postby lovelife789 » Wed Jul 18, 2018 4:11 pm

Good news! I hope i get the same good news like yours soon!!! :)
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
Aug - VATs done, colon met cfm

stu
Posts: 987
Joined: Sat Aug 17, 2013 5:46 pm

Re: Lung recurrence update- good news

Postby stu » Wed Jul 18, 2018 4:50 pm

Great news . Enjoy every minute . My mum felt the lung section was amazing compared to the rest .
We often laugh that some poor junior radiologist is trying to analyse my mum’s scans . No easy task .
Delighted for you,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Trying
Posts: 126
Joined: Sun May 13, 2018 10:11 pm

Re: Lung recurrence update- good news

Postby Trying » Wed Jul 18, 2018 9:48 pm

Fantastic! :D
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets and peri metApril 2018
Folfox as of June 2018
Down to 2 mets in liver dec 2018.

NedPlease
Posts: 539
Joined: Fri Mar 23, 2012 3:56 pm

Re: Lung recurrence update- good news

Postby NedPlease » Thu Jul 19, 2018 10:43 pm

:D :D :D
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
Today- NED

DarknessEmbraced
Posts: 3224
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Lung recurrence update- good news

Postby DarknessEmbraced » Sat Jul 21, 2018 10:59 am

Wonderful! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

retiredteacher
Posts: 98
Joined: Sat Oct 21, 2017 1:34 pm

Re: Lung recurrence update- good news

Postby retiredteacher » Sat Jul 21, 2018 9:33 pm

:) Congrats! Gotta feel great!
RC, F, 63 at diagnosis, Sept. 2017
Adeno 6.3 - 7 cm tumor (PET) MSS, G2,
Est. T3N0M0 PET
2500 Cap/RT Oct/Nov18; 25 treatments
"Near complete metabolic response" PET Jan 2018
CEA 0.5 Oct. 2017, Jan. 2018, 0.6 Oct. 2018
MRI Feb. 2018 Presurg yT2 N0 12 cm from AV 3 cm
LAR Feb 20 yT1N0M0 0/21 G1 0.3 cm
CAPEOX March 2018, oxi and cap reduced to 80% at cycle 3
Completed 4 cycles CAPEOX; stopped due to gut issues, liver enzymes
Clear CT and colonoscopy November 2018. NED. :-)

JulesW
Posts: 11
Joined: Thu Jun 21, 2018 1:48 pm

Re: Lung recurrence update- good news

Postby JulesW » Wed Sep 12, 2018 12:43 pm

Hi Beccashocked,
I'm new to this board - looks like I'll need a lobectomy for a central left lower lobe nodule. Which lobe did you have removed if I may ask? I've heard that lower lobe resections may have more impact on lung function than upper lobectomy because of greater oxygen transfer in lower lobes.
-JulesW

Beccaschocked
Posts: 32
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: Lung recurrence update- good news

Postby Beccaschocked » Fri Jan 18, 2019 1:34 pm

JulesW wrote:Hi Beccashocked,
I'm new to this board - looks like I'll need a lobectomy for a central left lower lobe nodule. Which lobe did you have removed if I may ask? I've heard that lower lobe resections may have more impact on lung function than upper lobectomy because of greater oxygen transfer in lower lobes.
-JulesW


Jules,

I am so sorry I’m just responding to this. I had a lower left resection. Following my lobectomy my lung function has not decreased. I was able to hike and run within a month of the lobectomy and felt fine (aside from being generally out of shape).
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.; 1.0; 1.1; 1.1
7/2018 & 1/2019 Clear scan NED

Beccaschocked
Posts: 32
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: Lung recurrence update- good news

Postby Beccaschocked » Fri Jan 18, 2019 1:37 pm

I wanted to update this thread for anyone else facing lung metastisis. I just got my 6 month scan results back and all is clear. This puts me one year out from my lobectomy and three years out from any chemo.

Needless to say, I am feeling incredibly greatful.
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.; 1.0; 1.1; 1.1
7/2018 & 1/2019 Clear scan NED

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LPL
Posts: 511
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Lung recurrence update- good news

Postby LPL » Fri Jan 18, 2019 3:05 pm

Beccaschocked wrote:I wanted to update this thread for anyone else facing lung metastisis. I just got my 6 month scan results back and all is clear. This puts me one year out from my lobectomy and three years out from any chemo.

Needless to say, I am feeling incredibly greatful.

I am so happy for you Beccaschocked :D
Big Big congratulations!!!
Also Thank you for updating. I needed to read this!
My DH had a PET-scan yesterday and we will know monday if his ”lung thingies” are mets...
Your post give hope - thank you <3
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

Punky44
Posts: 200
Joined: Mon Oct 01, 2018 4:29 pm

Re: Lung recurrence update- good news

Postby Punky44 » Fri Jan 18, 2019 3:06 pm

So awesome, congrats!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Trying total neoadjuvant therapy—chemo first, then short course radiation, then surgery
Completed 8 rounds of neoadjuvant Folfox 11/5/18 - 2/11/19
Current CEA 7.0

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

mpbser
Posts: 675
Joined: Wed Apr 19, 2017 11:52 am

Re: Lung recurrence update- good news

Postby mpbser » Fri Jan 18, 2019 5:34 pm

Yay! Great news!!
Wife 4/17 Dx age 45
5/17 - Lap left hemi
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
lymph nodes: 9 of 54
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
CEA: 1.4, 2.1, 1.5, 1.9, 1.9, 2.1, 2.1, 2.4, 1.7, 2.0, 2.9, 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry: Normal MLH1, MSH2, MSH6, and PMS2
Tumor DNA variants: MTOR, APC, TP53
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows met
Resection & HAI Mar 7??

User avatar
Atoq
Posts: 329
Joined: Wed Oct 25, 2017 9:31 am

Re: Lung recurrence update- good news

Postby Atoq » Sat Jan 19, 2019 5:07 am

Congratulations! This is really good news!

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan, ok
12.09.18, 06.02.19 scope, ok. CEA 1.6
19.11.18 clear coloscopy


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