Howdy

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Chilifilia
Posts: 2
Joined: Thu Jul 12, 2018 11:20 am
Facebook Username: Ben Hall

Howdy

Postby Chilifilia » Thu Jul 12, 2018 11:39 am

Hello all, I've been following many threads on here since I was first diagnosed last Sept. I figured it was high time for me to register and start interacting. I am so appreciative of this community and the insights, compassion, and support shown in the face of such a formidable foe. I will be getting scanned today at MDA and will be finding the results tomorrow.
38 year old Husband and Father of four.
Stage IV w/ multiple mets to liver
Dx on 9/20/17
Wild Type Kras- Currently on Erbitux and 5FU
CEA- 9/17- 756
7/18- 9.9

Caat55
Posts: 513
Joined: Sat Dec 23, 2017 6:01 pm

Re: Howdy

Postby Caat55 » Thu Jul 12, 2018 1:36 pm

Welcome . I was diagnosed in September too, joined earlier as I had so many questions, needing support from survivor. Congrats on the CEA number coming down.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

stu
Posts: 811
Joined: Sat Aug 17, 2013 5:46 pm

Re: Howdy

Postby stu » Thu Jul 12, 2018 4:30 pm

Hello and so pleased you reached out . It makes you feel less isolated when there is a place to ask questions and share . People understand here.
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

Deb m
Posts: 422
Joined: Tue Jan 14, 2014 10:08 am

Re: Howdy

Postby Deb m » Fri Jul 13, 2018 8:26 am

We had all our stuff done at MDA also. Let us know what they say.

deb m

User avatar
LPL
Posts: 410
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Howdy

Postby LPL » Fri Jul 13, 2018 12:39 pm

Sending positive vibrations
to you Chilifilia for a Good result of your scan!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

Chilifilia
Posts: 2
Joined: Thu Jul 12, 2018 11:20 am
Facebook Username: Ben Hall

Re: Howdy

Postby Chilifilia » Fri Jul 13, 2018 3:34 pm

Thank you! Today was a good day. No new growth and it appears things are stable for now. My CEA went up a touch to 12, but I'm not overly concerned about it. Onward with more erbitux and 5fu.
38 year old Husband and Father of four.
Stage IV w/ multiple mets to liver
Dx on 9/20/17
Wild Type Kras- Currently on Erbitux and 5FU
CEA- 9/17- 756
7/18- 9.9

User avatar
LPL
Posts: 410
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Howdy

Postby LPL » Fri Jul 13, 2018 7:09 pm

Chilifilia wrote:Thank you! Today was a good day. No new growth and it appears things are stable for now. My CEA went up a touch to 12, but I'm not overly concerned about it. Onward with more erbitux and 5fu.

Stable and no new growth” sounds like good words. :)
I have read that CEA can go up due to tumors die because of chemo, maybe that is what is happening for you?
Hoping your treatment will be effective!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

DarknessEmbraced
Posts: 3113
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Howdy

Postby DarknessEmbraced » Mon Jul 16, 2018 10:00 am

Wonderful news!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Beccaschocked
Posts: 30
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: Howdy

Postby Beccaschocked » Mon Jul 16, 2018 12:11 pm

Welcome and congrats on the good scan!
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.
7/2018- Clear scan NED


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