Caat55 wrote:What happens after the infusion and chemo is over? Scans, blood work, follow up when?
I was told to come back in 6 months, seems odd after all this. Is this typical? I read through many summaries, can't find an answer.
Caat55 wrote:What happens after the infusion and chemo is over? ...
O Stoma Mia wrote:Caat55 wrote:What happens after the infusion and chemo is over? ...
What is supposed to happen is that the patient is given two written documents: (1) a brief summary of the patient's DX and all treatments given to date, and (2) a comprehensive 5-year surveillance plan that includes not only monitoring for possible recurrences but monitoring for the full range of health-related problems expected due to prior surgeries, radiation, and chemo.
The first document is called the TS (Treatment Summary). The second document is called the SCP (Survivorship Care Plan):
You should be receiving these two documents in due course. If you do not receive these written documents, you should request them because they are very important for comprehensive followup.
Caat55 wrote:Thank you Deb and Susie. I will be getting CEA today after pressing for it yesterday, I haven't had one since May, before that in January. Wonder how I get results as it doesn't show up on portal.
Waiting to hear from surgeon, 2nd opinion oncologist.
Caat55 wrote:My surgeon needs a treatment summary so I called local oncologist and was told I needed to come in for another appointment. I asked why as seeing me shouldn't be necessary for them to basically give a historical timeline of treatment, it is all in medical record, but they insist. They are sticking with a 6 month follow up appointment. The surgeon also wants a barium enema so I messaged GI doctor here to see if they do it and if so how far out they are booking. I may just go ahead and do all the tests, appointments i Bay Area as they can get me in sooner, a week or so, verse months up here.
I appreciate everyone's feedback, affirmed my belief that they were missing something here. I want to be finished but it to be right so I can enjoy the life this long and uncomfortable treatment allows me.
Can't wait to have a vacation. Honestly the World Cup has been my salvation and the British Baking Show this last round, TV vegging.
Caat55 wrote:Our local hospital is a different system but I have access to my records, can download and send them to Stanford but the visiting doctor's note are not detailed. I will try anyway and hope it is enough. In the mean time I will try to schedule the enema, things tend to book out months in advance out here. I have time, want all the chemo or most anyway out of my system. According to what I read, both oxal and xeloda can slow down healing.
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