All Looking Pretty Good

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SteveNZ
Posts: 142
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

All Looking Pretty Good

Postby SteveNZ » Mon Jul 09, 2018 5:24 pm

GREAT NEWS :D :D

After my Chemo-Radiation and the terrible time '..trying to poo..' the latest MRI has good news.
We were worried as a basic examination after all of this found lumps and thickening. The MRI result shows it sounds like mostly scar tissue.
Parts of the summary.

FINDINGS:
Tumour: The previously demonstrated polypoid low rectal mass is no longer evident, replaced by a band of low signal mild anterior wall
thickening. .....................

Submucosal T2 high signal in the lower rectum is interpreted as submucosal oedema..........

IMPRESSION: Low signal anterior wall thickening in keeping with fibrosis at the site of the previously demonstrated low rectal tumour. Mesorectal nodes previously identified as suspicious reduced in size.
EMVI negative. CRM clear. TRG 2 (fibrosis only, no visible tumour).

Dr Chris Davison, FRANZCR, NZMC# 30051 Radiologist NMDHB, Nelson Hospital cd/ps 9/07/2018 2:06 p.m.

I am no doctor but sounds pretty good. :D :D
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

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susie0915
Posts: 865
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: All Looking Pretty Good

Postby susie0915 » Mon Jul 09, 2018 6:12 pm

After my chemo/radiation my surgeon did a sigmoidoscopy and said all that was left was scar tissue. Also a pet scan showed no evidence of disease especially in the distal rectal area. After surgery the pathology report did show minimal residual cancer cells, with 0/24 lymph nodes and clear margins. My oncologist still recommended chemo after as she could not guarantee no cancer cells got into the blood stream. I went ahead as I didn't want to wonder "what if" if I ever had a recurrence. This is good news. Not sure if your doctor will recommend chemo after, prob will depend on pathology report. Congrats, after all the suffering we go through with the radiation it feels good when it did what it is suppose to do.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

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LPL
Posts: 411
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: All Looking Pretty Good

Postby LPL » Mon Jul 09, 2018 6:24 pm

Congratulations Steve!
This sounds like wonderful news :)
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

Gravelyguy
Posts: 60
Joined: Thu Jul 05, 2018 6:03 pm

Re: All Looking Pretty Good

Postby Gravelyguy » Mon Jul 09, 2018 8:29 pm

That is great news! It’s nice to know that all the chemo and radiation is working!

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 very small liver Mets

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection
11/17-3/18 8 rounds Folfox
6/18 NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear

teri3
Posts: 389
Joined: Fri Jan 09, 2015 11:03 am

Re: All Looking Pretty Good

Postby teri3 » Mon Jul 09, 2018 9:51 pm

Woohoo! Sounds good to me, I hope the good news keeps coming.
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?
CT growth
VATS l lung 4 10 17
VATS r lung 4 24 17
CT 2 nodules r up and l low :(

Soccermom2boys
Posts: 195
Joined: Tue Nov 10, 2015 10:29 pm

Re: All Looking Pretty Good

Postby Soccermom2boys » Tue Jul 10, 2018 12:45 am

Wow, that does indeed sound like GREAT news! No pain, no gain as they say! :mrgreen: Now that it’s behind you, you can appreciate what all you endured to get those results. Time to prepare for surgery, right? Good luck and keep us posted with how you’re coming along. :D
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

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Atoq
Posts: 318
Joined: Wed Oct 25, 2017 9:31 am

Re: All Looking Pretty Good

Postby Atoq » Tue Jul 10, 2018 9:40 am

Really happy to read that chemo and radio worked well!

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

NHMike
Posts: 1800
Joined: Fri Jul 21, 2017 3:43 am

Re: All Looking Pretty Good

Postby NHMike » Tue Jul 10, 2018 9:54 am

Sounds like great news. So basically 100% shrinkage. My radiation guy mentioned that that happens in a relatively small number of cases. That chemo + radiation is powerful stuff.

Do you even need surgery now?
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

SteveNZ
Posts: 142
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: All Looking Pretty Good

Postby SteveNZ » Tue Jul 10, 2018 4:27 pm

NHMike wrote:Sounds like great news. So basically 100% shrinkage. My radiation guy mentioned that that happens in a relatively small number of cases. That chemo + radiation is powerful stuff.

Do you even need surgery now?

Thanks for that.
My surgeon wishes to have a look (short scope) and take samples for a biopsy. These results will decide what the team consider is appropriate next.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

boxhill
Posts: 122
Joined: Fri Apr 06, 2018 11:40 am

Re: All Looking Pretty Good

Postby boxhill » Tue Jul 10, 2018 5:26 pm

Good for you! Great news. :)
F, 64 at DX CRC Stage IV (or "3 1/2" per Dana Farber consult, LOL)
3/17/18 blockage, emergency surgery, r hemicolectomy
11 of 25 nodes
5 of 5 mesentery nodes, matted
0.5 cm sub-capsular liver met removed
pT3 pN2b pM1
Neg CEA, neg BRAF, KRAS G12D, germline mut ATM
dMMR, MSI-H, Neg for Lynch
5/4/18 FOLFOX started
Added Neulasta 6/28/18
7/9/18 CT scans show no masses or enlarged nodes, 2mm indeterminate lung nodule

DarknessEmbraced
Posts: 3156
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: All Looking Pretty Good

Postby DarknessEmbraced » Mon Jul 16, 2018 10:39 am

Wonderful news! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

AppleTree
Posts: 246
Joined: Fri Mar 18, 2016 8:16 am

Re: All Looking Pretty Good

Postby AppleTree » Fri Jul 20, 2018 6:05 am

That is really great news! My tumor only shrunk slightly over 50% with the radiation/chemo treatment. Stubborn thing! Very happy for you...you just don't know how it all worked until that scan.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper right lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July PET...CLEAR!

Caat55
Posts: 539
Joined: Sat Dec 23, 2017 6:01 pm

Re: All Looking Pretty Good

Postby Caat55 » Fri Jul 20, 2018 1:53 pm

Thumbs up, good news.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018


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