Proton Therapy for lung and Liver Mets

Please feel free to read, share your thoughts, your stories and connect with others!
Roscoe Douglas
Posts: 8
Joined: Sun Apr 03, 2016 8:17 am
Facebook Username: Roscoe J Douglas

Proton Therapy for lung and Liver Mets

Postby Roscoe Douglas » Fri Jul 06, 2018 11:12 pm

Update- A friend of a friend contacted me last week about Proton Therapy. After looking at the information on the web and talking with me, he sent his scans to the Dr at Loma Linda, and unfortunately, he was not a candidate. A friend from Church just returned from Loma Linda where she was being treated for a Pancreatic Tumor. Another friend from church just Completed Proton Therapy for Prostate Cancer at Knoxville.
When you get the dreaded news that you have Cancer, cry, let your friends comfort you, and when you are feeling better emotionally, start reading about various treatment options.
My diagnosis was not good. I had Stage 4 Colon Cancer that had spread to the Liver, Lymph nodes, and Small lung lesions. Without treatment my life expectancy was 6 months, with Chemo, it might be 2 years. I saw doctors at Emory and Duke and received the same prognosis, and the same treatment option. The liver tumors were inoperable, and the colon tumor was large, but not an immediate threat. Chemo Therapy only was the treatment plan. I was scheduled to have a port put in at Emory and to start Chemo, when a really good friend Nick Serba called me. His advice saved my life. He insisted that I read the book Cancer Free, and not make any decisions until I had time to consider different options. I cancelled the port and Chemo, and revised my diet to the Budwig Diet. I cannot honestly tell you that the diet made any difference in the cancer, but it made me feel good. I continued to do Marathons, and I started to read. I also began to prepare to die. I had a lot of loose ends in business. I just started working on refinancing rental property, Closing my office, selling property, and leasing others. I really did not get in a hurry. I have had a belief that since I have accepted Jesus as my Savior, dying will just be a change of address. So the important decision had already been made a long time ago.
Every day, I read posts from people with Colon cancer and the treatment they received. I was diagnosed in March 2015. In late November 2015, I saw a post from a lady that mentioned Proton Therapy. I searched for Proton Therapy for Liver tumors, and found Dr Gary Yang at Loma Linda in California. I called the hospital and referred myself as a potential patient. Dr Yang accepted me as a patient 2 days later. With a treatment plan using Proton Therapy to treat the liver tumors, I began making plans to have surgery to remove the large colon tumor. I emailed the Dr at Emory who advised against having the Proton Therapy. He also advised against having the colon surgery. He did not think I would live long enough to warrant the risk of the colon surgery.
I ignored that advice, and in Dec 2015, I had the 2 Liver tumors treated with Proton Therapy. 3 weeks after the treatment, the liver tumors were no longer cancerous. I then asked a local Doctor to remove my Colon Tumor Robotically. He later said that he removed the tumor by C-section. He cut a small flap out from my belly button. That was in Jan 2016. Since then, I have returned to Loma Linda each 4 to 6 months. I have had 2 liver tumors, 2 Tumors around the aorta, and 25 Lung tumors treated. I still have small lesions in my lungs which may of may not become tumors. I return for a 6 month checkup and further treatment if needed in August 2018.
The proton therapy generally has no side effects. You can golf or go to the health club right after. You do not feel it, it is a ray gun that they point at the tumor. The Proton beam goes to the tumor and divides the DNA of the tumor, and the tumor dies. It does not effect good tissue.
I have only had Proton Therapy and the Colon Surgery. It has been almost 3 1/2 years, and I still feel good, play with the grandchildren in the pool, and live a normal life.
The local Doctors in Macon had never heard of Proton Therapy, even though Loma Linda treated the first Proton patient in 1990. So far they have treated 200 kinds of tumors in 20,000 patients. Dr Yang has a 90% success rate with Liver tumors.
There are numerous treatment options that most of us have never heard of. Local Doctors cannot make a living sending patients to other states for treatment. If you don't take the initiative and become your own advocate, you might miss out on a treatment that might not be available where you live.
You can get more information about Proton Therapy at Loma Linda at:
http://www.protons.com

Please PM me for further information.

Lee
Posts: 5621
Joined: Sun Apr 16, 2006 4:09 pm

Re: Proton Therapy for lung and Liver Mets

Postby Lee » Tue Jul 10, 2018 7:20 pm

Roscoe Douglas wrote: . . . I have only had Proton Therapy and the Colon Surgery. It has been almost 3 1/2 years, and I still feel good, play with the grandchildren in the pool, and live a normal life.
The local Doctors in Macon had never heard of Proton Therapy, even though Loma Linda treated the first Proton patient in 1990. So far they have treated 200 kinds of tumors in 20,000 patients. Dr Yang has a 90% success rate with Liver tumors.
There are numerous treatment options that most of us have never heard of. Local Doctors cannot make a living sending patients to other states for treatment. If you don't take the initiative and become your own advocate, you might miss out on a treatment that might not be available where you live.
You can get more information about Proton Therapy at Loma Linda at:
http://www.protons.com

Please PM me for further information.


I am bumping this thread back up to the top in hopes that it might help someone. Thank you for sharing your journey.

I am a firm believer in 2nd opinions at major cancer hospitals or cancer treatment centers. Your journey is yet another reason why. Not all doctors are up on the latest treatments. Thus why we need to be our own advocate and getting those 2nd and 3rd opinions.

Good luck, and again thank you for sharing.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: SVR1969, teacher2017, ValZen and 13 guests