The Colon Club

I think your oncologist made a very wise decision .
You remind me a lot of my mum . She has a very similar attitude. I really don’t know how she endured the first couple of years whilst the disease made it’s hiding places known. But like you she sought to find the routes through it . After that it settled right down and it’s nine years ago this week since diagnosis. My sister and I are just amazed at the life she has been able to live . She loves life and remains fully engaged in it . Not past putting her words of wisdom in either . Ha !!
Entering year ten as to be filled with fundraising to give back ,
Take special care and here’s to longevity.
Stu

Glad to hear your doing well I am having .9 mm nodule respected from upper left lung in 2 weeks am hoping for good results an not doing chemo again been 3 years Ned but thanks to those scans we take picked this little guy up early f cancer

Mine is being done by robot procedure hopfully lives up to its reputation

All the best with that . Wishing you a wonderful outcome .
Stu

I had mine out at Mass General via VATS. Then I did 12 rounds of Folfox. PET in July was clear. I have another PET in October.

I wanted it out! Some Dr's like to keep it in, experiment with different chemos and do more scans. Not for me, I was adamant to have it taken out first. I am glad I did.

Tarsal69 wrote:Mine is being done by robot procedure hopfully lives up to its reputation

Mine was VATs, it was so easy compared to liver resection. Am now debating whether to go with adjuvant chemo again. I was all ok if I needed to do chemo, but when the topic of "better save chemo option as much as possible" came up, I got a bit chicken and wanted to back out....

Still thinking... What did your oncologist say?

AppleTree wrote:I had mine out at Mass General via VATS. Then I did 12 rounds of Folfox. PET in July was clear. I have another PET in October.

I wanted it out! Some Dr's like to keep it in, experiment with different chemos and do more scans. Not for me, I was adamant to have it taken out first. I am glad I did.

I have to agree the thought was having that evil stuff inside you is not a good feeling. I wanted mine out soon too! But salute to you on that 12x folfox. I did 13x but I had a break in between due to surgeries ... You r strong!!!!

lovelife789 wrote:

Tarsal69 wrote:Mine is being done by robot procedure hopfully lives up to its reputation

Mine was VATs, it was so easy compared to liver resection. Am now debating whether to go with adjuvant chemo again. I was all ok if I needed to do chemo, but when the topic of "better save chemo option as much as possible" came up, I got a bit chicken and wanted to back out....

Still thinking... What did your oncologist say?

My once said he doesn’t think chemo will be needed but I’m sure that will change if any nodes are positive

appletree, Can you please message me the name of your surgeon at Mass General? I just discovered my husband has lung nodules and he is a patient there.

When I was in a similar situation, I decided that I could not live with myself if I had a recurrence and had not done chemo. We are all different when we consider the options. I elected for Xeloda/Avastin (my onc's recommendation and one I felt very comfortable with.) NED since 4/09. Who knows whether or not the additional chemo helped, but I certainly don't regret that I did it.
Take care,

Having my .8 cm lung met removed in 5 days just lookin to hear other members experience will be using robot tganks

I hope your surgery was successful.
I had saved your thread & now getting around to reading it all with a reply.

Instead of just trusting my Onc, I consult with a Pulmonologist.
Since my lungs are strong: he says for me to NOT let anyone cut on my lungs. (I see at the Club that many have had successfully had thingies removed.) At this time I am doing Folfori chemo and things have shrunk dramatically. ‘Am blessed. Still all of this is scary. In 8 weeks we will measure again by CT scan; which is still an educated guess what we are seeing.

It is hard to biopsy lungs without risk of puncture. Did a Broncoscopy; but the scope can’t reach the lower lobe where scans show cancer.

Cured wrote:I hope your surgery was successful.
I had saved your thread & now getting around to reading it all with a reply.

Instead of just trusting my Onc, I consult with a Pulmonologist.
Since my lungs are strong: he says for me to NOT let anyone cut on my lungs. (I see at the Club that many have had successfully had thingies removed.) At this time I am doing Folfori chemo and things have shrunk dramatically. ‘Am blessed. Still all of this is scary. In 8 weeks we will measure again by CT scan; which is still an educated guess what we are seeing.

It is hard to biopsy lungs without risk of puncture. Did a Broncoscopy; but the scope can’t reach the lower lobe where scans show cancer.

Me too - wishing Tarsal69 had a good outcome.
Tomorrow my husband will have a RFA on 2 lung’things’ that had moderate SUVmax optake on PET. These mets(?) are 11mm and 8mm. We have been told that there will be a biopsi at the same time as the RFA. I asked about risks of seeding. The doctor explained the procedure and as I understand it with that procedure the risk is very low!

Yes, I had a 8mm lung nodule (that had grown to 1.2cm by the time of surgery) that was removed by VATS about a month ago. The doctor used a localization procedure (done by radiologist where a metal piece is implanted in the nodule) before the surgery. I am due to meet my oncologist on three weeks and I am not looking forward to more chemo