[Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Please feel free to read, share your thoughts, your stories and connect with others!
lovelife789
Posts: 108
Joined: Thu Aug 24, 2017 5:28 am

[Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby lovelife789 » Wed Jul 04, 2018 6:52 pm

So I did my PET scan and it came back that a stable 5mm nodule that has always been there in my RLL (almost at the far right tip) since my first PET has grown to 8mm with SUV uptake 3.06 :evil: . Dr said it can be a lung met or a primary (it did not respond at all to FOLFOX).

I am now referred to a thoracic surgeon, we are now debating whether he will be able to locate that 8mm nodule via VATS or should we just wait til it grows a bit to be more identifiable. But the "letting it grow" idea frightens me... :(

The Dr said he can't be 100% sure it's cancer but since it has SUV uptake, it's very likely :cry: :cry:

Anybody has had VATS with 8mm metabolic nodule? Or has anybody found out after VATS it's actually not cancer?

I'm a bit disappointed but not devastated ... At least the oncologist said either it's a primary or met, usually with this size they don't really suggest starting chemo... :cry:

Any sharing is appreciated!
Last edited by lovelife789 on Sun Aug 12, 2018 6:49 am, edited 2 times in total.
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that has always been there grew from 5mm to 8mm - CEA 1.0
Aug - VATs scheduled

Detox
Posts: 25
Joined: Fri Apr 28, 2017 5:27 pm

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Detox » Wed Jul 04, 2018 8:19 pm

Did you take a preoperative CEA or is CEA a good indicator for you? I heard CEA can be elevated for lung metastasis.

lovelife789
Posts: 108
Joined: Thu Aug 24, 2017 5:28 am

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby lovelife789 » Wed Jul 04, 2018 10:37 pm

Detox wrote:Did you take a preoperative CEA or is CEA a good indicator for you? I heard CEA can be elevated for lung metastasis.


I did. CEA is a good indicator for me. But it has stayed at 1.0 for a few months and in most recent two months, it even went down to 0.7... so this PET scan result surprised me a bit.
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that has always been there grew from 5mm to 8mm - CEA 1.0
Aug - VATs scheduled

User avatar
Atoq
Posts: 302
Joined: Wed Oct 25, 2017 9:31 am

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Atoq » Thu Jul 05, 2018 2:15 am

I had a 8 mm nodule that was removed last week via VATS. We also did core needle biopsy after positive PET scan, to determine whether it was a primary tumor or a metastasi.

It was then 1 cm in diameter. It is safe to let it grow if it is from CRC, because this type of metastasis grow slowly and do not produce new metastasis.

We waited three months from PET scan to remove it. The surgeon needs to feel the nodule with the fingers in order to locate it. While biopsy is done with CT. Mine was in the lower lobe, close to the edge.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

lovelife789
Posts: 108
Joined: Thu Aug 24, 2017 5:28 am

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby lovelife789 » Thu Jul 05, 2018 7:50 am

Atoq wrote:I had a 8 mm nodule that was removed last week via VATS. We also did core needle biopsy after positive PET scan, to determine whether it was a primary tumor or a metastasi.

It was then 1 cm in diameter. It is safe to let it grow if it is from CRC, because this type of metastasis grow slowly and do not produce new metastasis.

We waited three months from PET scan to remove it. The surgeon needs to feel the nodule with the fingers in order to locate it. While biopsy is done with CT. Mine was in the lower lobe, close to the edge.

Claudia


My case is almost exactly the same! Mine is at the lower right lobe, at the very end of the edge. So the core needle biopsy successfully identify that's a met? I also wonder why lung mets are not usually responsive to chemo. I saw many people here did chemo while having a small <1cm met and it just stays there.

Did you have an elevated CEA prior to that met growing? My CEA even went down further ...as the nodule grew..

Did they tell you what follow up treatment did they plan or anything after VATS?

I feel a bit better after reading your reply. I remember there was a thread all about lung mets... I can't find it now... Hmmm
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that has always been there grew from 5mm to 8mm - CEA 1.0
Aug - VATs scheduled

stu
Posts: 815
Joined: Sat Aug 17, 2013 5:46 pm

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby stu » Thu Jul 05, 2018 10:17 am

Hi,
My mum had one removed at 7mm with uptake .
Surgeon did a good job at removing it . It was cancer and no further problems experienced . All part of the original spread apparently . Just took seven years to show its face .
Hope it all goes well for you .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

Lee
Posts: 5666
Joined: Sun Apr 16, 2006 4:09 pm

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Lee » Thu Jul 05, 2018 10:24 am

Don't really have any advice, just want to wish you good luck. Sorry this is happening to you.

Good luck,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
Atoq
Posts: 302
Joined: Wed Oct 25, 2017 9:31 am

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Atoq » Thu Jul 05, 2018 11:11 am

lovelife789 wrote:
My case is almost exactly the same! Mine is at the lower right lobe, at the very end of the edge. So the core needle biopsy successfully identify that's a met? I also wonder why lung mets are not usually responsive to chemo. I saw many people here did chemo while having a small <1cm met and it just stays there.

Did you have an elevated CEA prior to that met growing? My CEA even went down further ...as the nodule grew..

Did they tell you what follow up treatment did they plan or anything after VATS?

I feel a bit better after reading your reply. I remember there was a thread all about lung mets... I can't find it now... Hmmm


Yes, the core needle biopsy identified the type of cells as coming from the colon/rectum, not from the lungs. My CEA has always been normal.There will be only scans now and no more chemo as long as no more metastasis show up. But I am in Norway, protocols might differ from your country. Not growing is already a response to chemo according to my oncologist, but I agree mine changed very little also after neoadjuvant chemo.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

User avatar
betsydoglover
Posts: 923
Joined: Mon Aug 14, 2006 2:31 pm
Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby betsydoglover » Thu Jul 05, 2018 2:53 pm

Sorry for your news. I had a 9x11 mm met removed from inside right lower lobe, via VATS, in 2009.

Someone said that the surgeon has to be able to feel the nodule with his/her hands in order to remove it with VATS. I want you to know that this is not necessarily true. In my case (deep in lower lobe and not visible) nuclear med material was inserted into the met area by an interventional radiologist, under CT guidance, so that during surgery, surgeon could "go for the hot spot" since the met itself was not visible (or able to be felt). It worked great - and my surgeon said he did it several times a year (and so did other surgeons in the area).

Just wanted you to know that there may be another option.

Take care,
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18

User avatar
Atoq
Posts: 302
Joined: Wed Oct 25, 2017 9:31 am

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Atoq » Thu Jul 05, 2018 4:48 pm

betsydoglover wrote:Sorry for your news. I had a 9x11 mm met removed from inside right lower lobe, via VATS, in 2009.

Someone said that the surgeon has to be able to feel the nodule with his/her hands in order to remove it with VATS. I want you to know that this is not necessarily true. In my case (deep in lower lobe and not visible) nuclear med material was inserted into the met area by an interventional radiologist, under CT guidance, so that during surgery, surgeon could "go for the hot spot" since the met itself was not visible (or able to be felt). It worked great - and my surgeon said he did it several times a year (and so did other surgeons in the area).

Just wanted you to know that there may be another option.

Take care,


In my case the node was not deep and it was sufficient to use two fingers to detect it. Everything was done through a single port and lasted 30 min. The CT was instead used to do the biopsy. Today (after a week) I was already swimming and did not notice any difference in lung capacity.

Atoq
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

User avatar
juliej
Posts: 2859
Joined: Thu Aug 05, 2010 12:59 pm

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby juliej » Thu Jul 05, 2018 5:43 pm

Sent you a PM.

Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 7/13/2018, CEA<1

Beccaschocked
Posts: 30
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Beccaschocked » Wed Jul 11, 2018 6:09 pm

We watched mine for nearly two years before it began to grow as it was unaffected by chemo and stable size. During that time there was no visible spread or progression.

Unfortunately mine was in a more precarious spot and when it did begin to grow I had to have lobectomy to remove the little bugger. That said, recovery was quick and easy. No chemo and I was running and hiking within a few weeks.

Six months out now, praying all will come back good on my upcoming scan.
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.
7/2018- Clear scan NED

lovelife789
Posts: 108
Joined: Thu Aug 24, 2017 5:28 am

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby lovelife789 » Sun Aug 12, 2018 6:53 am

Thanks for everybody's messages. I have just completed VATS and Path result said it's colon met :? . Clear margin, low grade.

Looks like chemo is due end of the month. I'm not too discouraged yet as the side effect hasn't kicked in... :shock:

Hope to be over soon!!!!
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that has always been there grew from 5mm to 8mm - CEA 1.0
Aug - VATs scheduled

stu
Posts: 815
Joined: Sat Aug 17, 2013 5:46 pm

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby stu » Sun Aug 12, 2018 5:51 pm

Great to hear you are safely through surgery .
My mum had not experienced any further issues and she actually did not do chemo .
Hope everything goes well for you with chemo .
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

lovelife789
Posts: 108
Joined: Thu Aug 24, 2017 5:28 am

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby lovelife789 » Sun Aug 12, 2018 6:45 pm

stu wrote:Great to hear you are safely through surgery .
My mum had not experienced any further issues and she actually did not do chemo .
Hope everything goes well for you with chemo .
Take care,
Stu


Thank you Stu! Your mom's case is one of my top ten fav.

My Oncologist said there are actually two different School of thoughts for my situation ... One is to do chemo and the other no. He opt for doing chemo given my age and physical fitness... And perhaps it only took 7 months for the met to show his activity level.

Well, as long as there's something to try and do, I will tough up and try again :?
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that has always been there grew from 5mm to 8mm - CEA 1.0
Aug - VATs scheduled


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: JIM HAN and 46 guests