Last Two Days Of Rad...Double Doses..Pain From Another Universe!!

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GilletteRazorMan
Posts: 10
Joined: Sun May 20, 2018 3:27 pm
Facebook Username: Marc Lowell

Last Two Days Of Rad...Double Doses..Pain From Another Universe!!

Postby GilletteRazorMan » Wed Jul 04, 2018 1:31 pm

:oops: :oops: 1 to go...woke up after treatment this morning. Asshole pain unbearable!! Itch from Hell...back on the Oxycodone after none for 2 previous weeks.

Think Radioligist is 'Laughing At Me' in his office...this pain is Brutal....and 1 final to go tomorrow....then the healing will begin...BS...yeah right!! Cant bathe stinging from Hell.....and this horrible horrible anal itch......... :( :(

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Atoq
Posts: 266
Joined: Wed Oct 25, 2017 9:31 am

Re: Last Two Days Of Rad...Double Doses..Pain From Another Universe!!

Postby Atoq » Wed Jul 04, 2018 2:26 pm

Have you tried bathing in salted water? Boil the water, add salt (one tea spoon per liter water) and sit in a bath tub with your bottom in the water (not too hot). It really helped. I think is called sitz bath.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery

SteveNZ
Posts: 122
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Last Two Days Of Rad...Double Doses..Pain From Another Universe!!

Postby SteveNZ » Wed Jul 04, 2018 9:15 pm

WOW..... I feel for you...
Man it is so so so so so awful ....... even passing wind hurts like crazy.

You are in my prayers.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

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CRguy
Posts: 9536
Joined: Sun Feb 10, 2008 6:00 pm

Re: Last Two Days Of Rad...Double Doses..Pain From Another Universe!!

Postby CRguy » Wed Jul 04, 2018 11:38 pm

Just a generic reply here ... 'cos ....BTDT :shock:
Had the whole neoadjuvant chemoradiation ... with BOOSTS !!!!! :twisted:

JMO : oxycodone = great pain med
BUTT ...... there are also inflammation / irritation / possible infection issues which oxycodone will NOT address

(( wish these effin' rad oncs had to have the Tx themselves ...
THEN we would have proper meds to deal with this shit !!! :twisted: ))

You may need to get some local/topical/infused relief from something like
....many names and descriptions like
Proctosone
Proctosedyl

they should contain a local anesthetic, a potent anti-inflammatory, an anti-infective and
a PROTECTANT !!!!!!!! DUH :twisted:

sorry you have to suffer for your docs effin' ignorance

KEEP pushing until YOU HAVE RELIEF

or send them to ... ME :twisted: :twisted: :twisted:
AND I will deal with them .....

best wishes bro'
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

GilletteRazorMan
Posts: 10
Joined: Sun May 20, 2018 3:27 pm
Facebook Username: Marc Lowell

Re: Last Day Of Rad...Double Doses..Pain From Another Universe!!

Postby GilletteRazorMan » Thu Jul 05, 2018 3:35 am

4 Am Just woke up...bed at 10. Pain worse than yesterday...feel like all my innards will Fall Out. Burning in Asshole Friggin Nuts...One Final Dose at 10:30 this morning..feel like 'running for the Hills' screw the last dose!!. Want to take more Oxycodone...too early for another dose...whatsa Boy to Do!! Put Flamazine in Fridge...should have thought of that weeks ago. Homecare nurse suggested this....just 'slapped' on a load of it everywhere down there!!

6 and half hours and.....8 Minutes...Done!

henry123
Posts: 118
Joined: Sun Oct 08, 2017 3:25 am

Re: Last Two Days Of Rad...Double Doses..Pain From Another Universe!!

Postby henry123 » Thu Jul 05, 2018 8:39 am

Praying for you to be strong. ..
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear .
NED
Vegan yoga juicing apricot


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