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Re: Modifications to prevent/lessen chance of recurrence

Posted: Mon Jul 02, 2018 10:48 am
by Lotus
I can’t take aspirin because of the caffeine content. Do you know if baby aspirin contains caffeine? Can you share the baby aspirin brand and dose you take?

Re: Modifications to prevent/lessen chance of recurrence

Posted: Mon Jul 02, 2018 12:43 pm
by erins
I’m due for a follow up with my oncologist so will ask for info on diet (I’ve never eaten red meat or dairy, so the advice from my original consult wasnt altogether useful)

I had heard about tree nuts, but not specifically walnuts, so Thanks :D

I’m intrigued by curcumin showing up in multiple peoples lists—I know it’s from turmeric, and is under study for kidney disease prevention, but hadn’t heard about it being used for cancer recurrence prevention.

Re: Modifications to prevent/lessen chance of recurrence

Posted: Mon Jul 02, 2018 2:28 pm
by Deb m
I use the swanson brand of baby aspirin. I order it on line at Swanson health products.co. It's just one 81 mg baby aspirin daily that's recommended. I highly doubt that there is any caffeine in it, or at least not enough worth even mentioning. I to can't have caffeine because of kidney stones, but I take one a day it it hasn't bothered me. I am very sensitive to caffeine.

Re: Modifications to prevent/lessen chance of recurrence

Posted: Mon Jul 02, 2018 2:38 pm
by LPL
JudiB wrote:I too have made many of the changes that others have reported but the only advice from my oncologist was to eat walnuts! He said that, whilst all tree nuts are good, evidence suggests that walnuts are the best! I looked into utt and the evidence convinced me so, as I love walnuts. ... it's win/win!!
I now add at least 5 whole walnuts to my breakfat cereal with 5 prunes and cover it in kefir, which is another addition since my CRC and resulting ongoing bowel issues!
Love and hugs to everyone on the CRC journey.
Xxxxx

Can you please share a link to research showing walnuts is superior (compared to other tree nuts!).
Thank You.

Re: Modifications to prevent/lessen chance of recurrence

Posted: Mon Jul 02, 2018 5:59 pm
by MissMolly
Lotus wrote:I can’t take aspirin because of the caffeine content. Do you know if baby aspirin contains caffeine? Can you share the baby aspirin brand and dose you take?


Lotus:
Aspirin is a chemical and, by itself, does not contain caffeine.

Aspirin and caffeine are both Salicylates.

Some over-the-counter analgesic products have caffeine as an additive.

Caffeine enhances the pain relieving effects of aspirin. Caffeine also has an effect of facilitating vasodilation (the rationale for caffeine alleviating headaches).

Analgesic products that contain aspirin and caffeine are sold as specific brand name products. Example: Anacin and Excedrine Migraine are each marketed for headache relief. Example: Bayer Extra Strength Muscle and Body is marketed for PMS cramping and low back pain. About 65 mg of caffeine is added to these analgesic products.

An 81mg baby aspirin should be free of caffeine.

Of course, you can read the active ingredient and additive listing on the box to be sure that the baby aspirin product you are purchasing is caffeine free.
Karen

Re: Modifications to prevent/lessen chance of recurrence

Posted: Mon Jul 02, 2018 10:52 pm
by mobrouser
Two comments.
From the online ingredients listing for Bayer's 81mg aspirin there is no caffeine listed in the non medicinal ingredients.
I'm surprised no one has mentioned reduced alcohol consumption since I've been led to believe that there is a correlation between alcohol usage and colon cancer risk?

8) mob

Re: Modifications to prevent/lessen chance of recurrence

Posted: Mon Jul 02, 2018 10:53 pm
by CRguy
MissMolly wrote:Aspirin and caffeine are both Salicylates.

Just a clarification here :
Aspirin (acetylsalicylic acid or ASA) is a salicylate
Caffeine is a methylxanthine and not a salicylate

The confusion arises because sometimes they are used together in pain medications, and some foods which contain caffeine
will also have measurable amounts of salicylates failsafediet

Cheers
CRguy

Re: Modifications to prevent/lessen chance of recurrence

Posted: Tue Jul 03, 2018 2:14 pm
by Lotus
I have definitely cut back on sugar but can not cut it out completely. Also have cut out alcohol, gluten and most junk food...
but have to have the occasional ice cream or dark chocolate candy.

Re: Modifications to prevent/lessen chance of recurrence

Posted: Tue Jul 03, 2018 3:02 pm
by Deb m
As far as sugar, alcohol, gluten, as my oncologist said, no evidence that it enhances the cancer risk if consumed with the thought process everything in moderation. But If you diet is just loaded with sugar alcohol etc, than sure your going to have problems but it may not be a direct link, it would probably cause obesity etc, which indirectly can lead to cancer.

deb m

Re: Modifications to prevent/lessen chance of recurrence

Posted: Tue Jul 03, 2018 3:45 pm
by heiders33
I’m definitely more conscientious about drinking alcohol in moderation, but haven’t given it up completely. I also try to avoid added sugars and refined carbs as much as possible. However, that’s balanced with the fact that starchy foods slow my system up really well. I mainly am avoiding highly processed foods and GMO foods where I can.

Re: Modifications to prevent/lessen chance of recurrence

Posted: Tue Jul 03, 2018 10:12 pm
by NHMike
lovelife789 wrote:Secondly, when I was sick I came to learn some Jewish don't eat shellfish because shellfish generally eat "dirt" from the sea. Then I thought about it and how the ocean is so polluted nowadays, it kinda make sense. I thought about how eczema is an autoimmune disease and my pattern of eczema outbreak being linked with seafood prompted me to pay attention on how to maintain a stronger immune system. So far... 18 months of avoiding seafood, no eczema outbreak at all.


Observant Jews might just be following Leviticus 11:9-12 too:

9 “‘Of all the creatures living in the water of the seas and the streams you may eat any that have fins and scales. 10 But all creatures in the seas or streams that do not have fins and scales—whether among all the swarming things or among all the other living creatures in the water—you are to regard as unclean. 11 And since you are to regard them as unclean, you must not eat their meat; you must regard their carcasses as unclean. 12 Anything living in the water that does not have fins and scales is to be regarded as unclean by you. (NIV)

Re: Modifications to prevent/lessen chance of recurrence

Posted: Wed Jul 04, 2018 11:09 am
by margiej
The only suggestions by my oncologist:
- Baby aspirin
- Vitamin D
- Vitamin B-12 (for my neuropathy)
The other things that I do in the hopes of not having a recurrence (I had a pretty healthy lifestyle before all this started, but keep trying to make improvements)
- Vitamin K2 to help with Vitamin D absorption
- Turmeric supplements plus turmeric tea
- Organic everything if possible...so much easier to find organics nowadays and getting more affordable all the time. Fruits, veggies, flours, etc. My sense is that all the pesticides and herbicides like RoundUp in our food are a contributing factor to the uptick in CRC.
- Minimal processed foods
- Lots of fruits and vegetables
- Lots of whole grains - no white flour
- Limited desserts and sugars - a little very dark chocolate with some frequency, though.
- No food coloring - except the occasional M&M ;)
- No artificial preservatives
- Read labels obsessively...so much junk in our food.
- Tree nuts almost daily
- Kombucha several days a week
- Probiotics
- Red meat only occasionally. If I go to a barbecue and they are having burgers, I will have one.
- Limited alcohol - glass of wine about once a week. Used to have 1 or 2 glasses 3-4 nights a week
- Yoga almost every day - home practice
- Walk/run with my St. Berdoodle a minimum of two miles every day - sometimes twice a day adding up to 4-5 miles.
- I drink about 3 cups of coffee a day....recent reports are that it may be helpful., but that's just a bonus...I love coffee!
- I quit highlighting/coloring my hair when I was first diagnosed. This is extreme, I realize!
- Natural cleaning products, laundry products, lotions, sunscreens, etc.
- Have just started taking a CBD gummy every day ... hoping to keep my stress/anxiety at bay
- I avoid plastics--prefer glass bottles, stainless steel, etc. I use glass storage containers instead of plastics.
- I'm sure there's some other little things I do, that I can't think of right now.

I try not to be a nutcase, but I am right on the edge!
Love to all.
Margie

Re: Modifications to prevent/lessen chance of recurrence

Posted: Wed Jul 04, 2018 11:21 am
by hawkowl
I had a healthy diet and lifestyle before diagnosis...active, mostly plant based, never overweight...but I have taken a few steps to hopefully improve my chances if long term survival:

Exercise (I try for 18,000 steps a day plus biking)
Curcumin 2g daily with black pepper
Celebrex 400mg every am
Aspirin 650mg at bedtime
Coffee 3-4 cups a day or more
Cannabis (I use this for neuropathy pain and persistent nausea from dysautonomia)
Chaga tea (made from our own chaga, don't do this regularly anymore)
Dukoral oral cholera vaccine (available in Canada and Europe, one study showed a survival advantage, all things being equal)
Diet: I follow a mostly paleo Diet`. I can't do legumes and have a sweet tooth (plus need to gain weight) so I use maple syrup instead of sugar).

I was taking vitamin D but now live in sunny Florida most of the time and spend a lot of time outside so my levels are good

Has anyone else here tried the Dukoral?

Re: Modifications to prevent/lessen chance of recurrence

Posted: Wed Jul 04, 2018 11:27 am
by margiej
Forgot to add that we also bought a water purifier for our well water.

Re: Modifications to prevent/lessen chance of recurrence

Posted: Thu Jul 05, 2018 6:01 pm
by Capri
henry123 wrote:I am
@ mostly vegan though I slack off while on vacations.
@ curcumin,
@ aspirin 150 mg
@ 8000+ steps + yoga
@ try to avoid emotions like jealousy, conflict and stress
@ veggie juice 2 to 3 glasses - carrot, pomegranate, greens, ginger etc
@ apricot kernels etc



Much appreciated Henry, thank you very much.