My mom is dying

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My mom is dying

Postby Sara!!!! » Thu Jun 28, 2018 2:43 am

I don't know what to feel. I still feel like some miracle will happen. That she'd bounce back. The doctors say she can crash anytime. It has all happened so fast. I guess I'm still in denial
Daughter to mom 67, colon cancer
Diagnosed Dec 16, bowel obstruction.
Hemicolectimy done,Dec 16.
4 lesions in liver on scan before chemo jan 17.
Folfox +Avastin 12 cycles,disease progression on pet Aug 17.
Attempted liver resection, failed. Mets peritoneam. Diffuse.
Mets to lungs, liver. Peri on scan Nov 17.
3 cycles of folfiri+ cetuximab. Cea down from 888 to 383.
Small bowel obstruction jan 18

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Re: My mom is dying

Postby stu » Thu Jun 28, 2018 6:53 am

Oh I am so very sorry to hear that . Difficult days for your family . Hope your all surrounded by love .
Thinking of you all,
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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Joined: Sun May 27, 2018 12:41 pm

Re: My mom is dying

Postby erins » Thu Jun 28, 2018 7:19 am

I am so, so sorry. My mom passed away unexpectedly in April and was the same age as your mom. The best advice I got was to be kind to yourself. Y’all are in my thoughts.
38 yr old female
Rectal bleeding for 1 month—>
5/4/18 colonoscopy found mass in sigmoid colon
5/21/18 LAR
stage 2a, 0/17 lymph, clean margins
T3N0M0 G1
LVI neg, PNI neg, MSS
9/21/18 CEA 0.8
11/16/18 CEA 0.8 & CT clear
12/7/18 iron infusion
2/1/18 iron improved, CEA stable.

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Re: My mom is dying

Postby Atoq » Thu Jun 28, 2018 7:42 am

I am really sorry. Not much I can say but, being on the other side, fast can also be a good thing. A huge hug and hoping in a miracle.

1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED

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Re: My mom is dying

Postby emkaye » Thu Jun 28, 2018 7:49 am

So sorry to hear this. Will say a prayer for you and your mom.

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Joined: Tue Aug 16, 2016 9:02 pm

Re: My mom is dying

Postby WarriorSpouse » Thu Jun 28, 2018 1:34 pm

I am so sorry to read what you are going through. It is difficult for you to experience, but know that your Mother lives in you every day in what you do and how you respond to trying times such as this...There will be many as you age and grow forward in life. If you are blessed with children or younger nieces and nephews, they too will learn from how you respond to these difficult times and how you carry on to the next day.

Life is not easy, especially with sickness and loved ones we are witnessing going through difficulties that love and medicine sometimes can not cure. Make sure you take care of your self both mentally and physically. You will move forward knowing that your Mom's love will always be a part of everything you do in living your life. Love is never a wasted effort. Be happy that LOVE is present in your heart and will be present in all that you do going forward... My thoughts and prayers are with you and your family.
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

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Facebook Username: Robin.lawthers
Location: Florida

Re: My mom is dying

Postby Robino1 » Thu Jun 28, 2018 8:20 pm

My thoughts and prayers are with you during this trying time. Get all the love in that you can.

{{{virtual hugs}}}
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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Joined: Fri Mar 18, 2016 8:16 am

Re: My mom is dying

Postby AppleTree » Thu Jun 28, 2018 8:59 pm

I am so sorry. Even when it is expected, it is still very difficult. I lost my Mom to cancer when I was 28. I was numb for a long time, even though I knew she was in a better place. But now we all can laugh and tell stories to her grandkids and the great grands...always keeping her memory alive. Hugs.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

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Re: My mom is dying

Postby JulesW » Fri Jun 29, 2018 12:34 am

46 rectal ca. 12/16
LAR 1/17 rectal tumor stage 2b, 0/30 nodes +
Xeloda x 6 mos
CT 6/18 - 4 nodules R lung + 3 new spots in left lower lung
6/18 folfiri + Avastin x 5 cycles
LAPM Germany 10/18 - 10 nodules removed right lung, 4 cancer
11/1/18 R pneumothorax - chest tube placed surgically
11/6/18 L lower lobe subtotal resection
12/18 blood in urine -> rectal ca met on bladder
3/1/19 bladder surgery, no peritoneal spots noted
4/19 MSK self referral
Avastin + xeloda x 6 mos
10/19, 1/20 CTs look good

Posts: 42
Joined: Sun Mar 27, 2016 7:36 pm
Location: Florida

Re: My mom is dying

Postby teresajj1 » Fri Jun 29, 2018 5:09 pm

I am so sorry Sara! I have no words for what you are going through. Prayers and hugs for you and your mother.
Dx 3/16 @ 36yrs Stage IIIB
RT Hemi-colectomy
T3N1M0. 2/37 lymph nodes
4/2016 Started 12 rounds of 5 FU & Oxi Chemo
7/2016 Stopped chemo after 5 rounds due to chest pain
8/2017 MUYTH Gene
10/2017 Clear CT Scan; CEA 1.9
5/2018 CEA 447
6/2018 Stage IV w/drop metastases to peritoneal cavity
7/2018 Cytoreductive surgery & Hipec (3 tumors, 2 nodules on bladder, and ovaries removed)
05/2019 Clear CT
10/2019 2 new nodules in pelvic area/CEA 19
11/2019 6 Rounds of Chemo

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Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: My mom is dying

Postby SteveNZ » Fri Jun 29, 2018 5:50 pm

I am almost crying away here for you. I am so sorry you have this load to carry.
You are loved by us all.

Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

Posts: 680
Joined: Sat Dec 23, 2017 6:01 pm

Re: My mom is dying

Postby Caat55 » Fri Jun 29, 2018 9:09 pm

I am so sorry to hear this. Please know you are supported here.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Posts: 54
Joined: Wed Jan 06, 2016 2:28 am
Location: USA

Re: My mom is dying

Postby risto » Sat Jun 30, 2018 9:21 pm

I'm very sorry to hear that. My DW and your mom are on a very similar trajectory it seems. I know what you're going through. So sad. I'm glad that you're there for her.
DW Dx 7/15, 41 yo, st IV, 3+ liver mets: 11.3 cm, 7cm, 3cm. MSS.
KRAS, APC, SMAD4, TP53 mut.
7/15-10/15: FOLFOX+bev. x8
11/15-12/15: SIRT (Y90)
1/16: Toxic Hepatitis, chemo break
4/16: Liver resec. fail
5/16-7/16: FOLFIRI x6
8/16: Liver resec.
8/16-11/16: FOLFIRI x6
2/17: IMRT/Xeloda x25
4/17: LAR
6/17: CT: Progression. Peri, Lung, Liver mets. FOLFIRI x6
9/17: FOLFIRI+Bev x5.
11/17: CT: Stable. 5FU+bev. maintenance x5
1/18-2/18: Surgery for SBO
5/18: ascites, acute liver injury

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Re: My mom is dying

Postby CRguy » Sun Jul 01, 2018 12:22 am

Sara!!!! wrote:I don't know what to feel. I still feel like some miracle will happen. That she'd bounce back. The doctors say she can crash anytime. It has all happened so fast. I guess I'm still in denial

My best friend here, Brownbagger, once said to me I was
" preparing for what we are never prepared for .... "
when I was navigating my Father's final days
He had also lost his Father the year before

Neither are here with me now, so
I will pay it forward just to say
you are also preparing for what ....

we are never prepared for

We are all here for you and with you
PM me anytime

Peace Love and Harmony
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Posts: 158
Joined: Sat Mar 11, 2017 8:30 pm
Location: near DC

Re: My mom is dying

Postby mhf1986 » Sun Jul 01, 2018 12:24 pm

Sending you electronic prayers.
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials
11/19/18 Peace

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