Hi
We are based in the UK and rely on the NHS
My fiancé was diagnosed 2 years ago with rectal cancer with Mets to the liver - stage 4. He had every warning sign so we were disappointed he wasn’t checked properly when the symptoms started.
He had 5 liver met and so started folfox which resulted in what we though was a successful resection of all cancer. Cea dropped from 22 to 0.5-0.9
18 months later cea is still 0.9 and he has been given a terminal diagnosis with 2 mets to the liver and 5 across both lungs.
why is this happening??
My world is falling a part as we are in our 30s ands there was no warning signs!!!
Through out the 18 months Cea has bounced between 0.5-0.9 even though it was a reliable marker.
I can’t find anything to suggest Cea doesn’t rise with a reccurance and can’t see how he is so symptomless.
I feel like this cancer will kill me before him.
Any suggestions on what to do?
Thank you!