G-Tube placed

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risto
Posts: 54
Joined: Wed Jan 06, 2016 2:28 am
Location: USA

G-Tube placed

Postby risto » Sun Jun 24, 2018 7:23 am

My DW was hospitalized Monday, and the CT scans show that portions of her small bowel are "matted with tumor" so they do not believe she will have any significant resolution of her obstruction. Therefore they recommended, and my DW accepted, having a venting G-Tube placed. The procedure was under conscious sedation by interventional radiology, and it was successful. She had the NG tube removed from her nose so that was a relief. However, since the bowel obstruction is now essentially permanent, she can't have any more chemo, and we have been given an estimate of 1-3 months to live. I plan to take leave from work to care for her full time. Sad times. At least her pain and nausea are well controlled now and she is comfortable.
DW Dx 7/15, 41 yo, st IV, 3+ liver mets: 11.3 cm, 7cm, 3cm. MSS.
KRAS, APC, SMAD4, TP53 mut.
7/15-10/15: FOLFOX+bev. x8
11/15-12/15: SIRT (Y90)
1/16: Toxic Hepatitis, chemo break
4/16: Liver resec. fail
5/16-7/16: FOLFIRI x6
8/16: Liver resec.
8/16-11/16: FOLFIRI x6
2/17: IMRT/Xeloda x25
4/17: LAR
6/17: CT: Progression. Peri, Lung, Liver mets. FOLFIRI x6
9/17: FOLFIRI+Bev x5.
11/17: CT: Stable. 5FU+bev. maintenance x5
1/18-2/18: Surgery for SBO
5/18: ascites, acute liver injury

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: G-Tube placed

Postby Robino1 » Sun Jun 24, 2018 8:43 am

I am so sorry :(

You are a wonderful caring spouse. My thoughts and prayers are with you.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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Atoq
Posts: 412
Joined: Wed Oct 25, 2017 9:31 am

Re: G-Tube placed

Postby Atoq » Sun Jun 24, 2018 10:34 am

I am really sorry, I hope she is free from pain. 1-3 months is a very short time and there is not much to say that can help. You are both in my toughts.

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED

Capri
Posts: 80
Joined: Thu Apr 19, 2018 5:59 pm

Re: G-Tube placed

Postby Capri » Sun Jun 24, 2018 10:38 am

I'm so very sorry risto, that you both have to go through this trial together. You are a loving and caring spouse. I hope that your wife is pain-free. God bless you both.
Mom to son 46 yo at Dx (2017)
1/18 Robotic resection, sigmoid adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 - 7/30/18 Port placed; completed 12 cycles of FOLFOX
6/18 Put on Early surveillance CT,PET scan-normal. Neuropathy has started.
11/18 Clean colonoscopy; 11/20 CT normal.
2019 to 7/22 colonoscopies, CTs neck to groin have been normal.

Sara!!!!
Posts: 51
Joined: Wed Jul 19, 2017 9:57 am

Re: G-Tube placed

Postby Sara!!!! » Sun Jun 24, 2018 11:34 am

risto wrote:My DW was hospitalized Monday, and the CT scans show that portions of her small bowel are "matted with tumor" so they do not believe she will have any significant resolution of her obstruction. Therefore they recommended, and my DW accepted, having a venting G-Tube placed. The procedure was under conscious sedation by interventional radiology, and it was successful. She had the NG tube removed from her nose so that was a relief. However, since the bowel obstruction is now essentially permanent, she can't have any more chemo, and we have been given an estimate of 1-3 months to live. I plan to take leave from work to care for her full time. Sad times. At least her pain and nausea are well controlled now and she is comfortable.
I'm so sorry :( your wife and my mom seem to b having the same problems. I know some people who have had g tube placed and still got chemo though. Chemo and tpn. This guy I know has been on it since January.
Daughter to mom 67, colon cancer
Diagnosed Dec 16, bowel obstruction.
Hemicolectimy done,Dec 16.
4 lesions in liver on scan before chemo jan 17.
Folfox +Avastin 12 cycles,disease progression on pet Aug 17.
Attempted liver resection, failed. Mets peritoneam. Diffuse.
Mets to lungs, liver. Peri on scan Nov 17.
3 cycles of folfiri+ cetuximab. Cea down from 888 to 383.
Small bowel obstruction jan 18

boxhill
Posts: 789
Joined: Fri Apr 06, 2018 11:40 am

Re: G-Tube placed

Postby boxhill » Sun Jun 24, 2018 1:24 pm

So sorry to hear this. She--and you--have been through a lot. She is lucky to have such a steadfast and caring spouse. May your remaining time together be good.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: G-Tube placed

Postby Shana » Sun Jun 24, 2018 3:53 pm

My thoughts are with you and your wife.
I hope she is comfortable and you have quality time together. I'm so sorry to hear this news.
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: G-Tube placed

Postby Lee » Sun Jun 24, 2018 4:11 pm

I'm so sorry to read this. I pray that your DW is pain free and surrounded by family friends ans love.

Hugs to you both,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: G-Tube placed

Postby CRguy » Mon Jun 25, 2018 12:32 am

pain free IS a blessing my friend

Sending Love, Peace and Harmony
With you both on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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GrouseMan
Posts: 888
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: G-Tube placed

Postby GrouseMan » Mon Jun 25, 2018 12:22 pm

Make sure you get some hospice help lined up. My wife had at the end a similar blockage, and we tried to bypass it via colostomy, that didn't work but the surgeon was willing to give it a try but she had more than one blockage apparently. These are apparent very hard to see in CT scans especially from tumors pressing on the colon from the peri cavity. Ended up with a gastric tube but since everything essentially going into her stomach was coming out the tube she was not getting any nutrition to speak of. Fortunately she had 4 good years before this with some would say an excellent quality of life nearly right up to the end. no less than 4 weeks earlier she was riding her horse, judging field trials and socializing with other dog field trialers, though I could see she was loosing a tremendous amount of weight. Many were taken by surprised when she passed away. Once they released her from the hospital to home hospice care (mostly me primarily giving her drugs and ice chips to keep her comfortable) she lasted about 2 weeks. Passed away Jun 4th 2017. This is going to be mentally and emotionally exhausting to you and sometimes family can't help but say and do the wrong things during this time that might set you off. Also make sure that her friends and colleges get a chance to see her as it will help them some when she does pass. At least they will have been able to say their goodbye's as well. The pain will last a while. I have not been very focused for more than a month now, and it been a little over a year. Her birthday would have been last Friday. Fortunately her sister and her husband spent it with me. I was probably better prepared than most as I was an Anticancer drug researcher. As mush as I tried not to show it, I knew what the eventual outcome of her diagnosis would be. She was quite physically fit to begin with as a life long runner. At the time of diagnosis she was training for a marathon.

Regards, and best wishes,

GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: G-Tube placed

Postby DarknessEmbraced » Tue Jun 26, 2018 10:30 am

I'm so very sorry1*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

mhf1986
Posts: 158
Joined: Sat Mar 11, 2017 8:30 pm
Location: near DC

Re: G-Tube placed

Postby mhf1986 » Tue Jun 26, 2018 4:35 pm

Sending prayers.
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials
11/19/18 Peace


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