G-Tube placed

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risto
Posts: 52
Joined: Wed Jan 06, 2016 2:28 am
Location: USA

G-Tube placed

Postby risto » Sun Jun 24, 2018 7:23 am

My DW was hospitalized Monday, and the CT scans show that portions of her small bowel are "matted with tumor" so they do not believe she will have any significant resolution of her obstruction. Therefore they recommended, and my DW accepted, having a venting G-Tube placed. The procedure was under conscious sedation by interventional radiology, and it was successful. She had the NG tube removed from her nose so that was a relief. However, since the bowel obstruction is now essentially permanent, she can't have any more chemo, and we have been given an estimate of 1-3 months to live. I plan to take leave from work to care for her full time. Sad times. At least her pain and nausea are well controlled now and she is comfortable.
DW Dx 7/15, 41 yo, st IV, 3+ liver mets: 11.3 cm, 7cm, 3cm. MSS.
KRAS, APC, SMAD4, TP53 mut.
7/15-10/15: FOLFOX+bev. x8
11/15-12/15: SIRT (Y90)
1/16: Toxic Hepatitis, chemo break
4/16: Liver resec. fail
5/16-7/16: FOLFIRI x6
8/16: Liver resec.
8/16-11/16: FOLFIRI x6
2/17: IMRT/Xeloda x25
4/17: LAR
6/17: CT: Progression. Peri, Lung, Liver mets. FOLFIRI x6
9/17: FOLFIRI+Bev x5.
11/17: CT: Stable. 5FU+bev. maintenance x5
1/18-2/18: Surgery for SBO
5/18: ascites, acute liver injury

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Robino1
Posts: 461
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: G-Tube placed

Postby Robino1 » Sun Jun 24, 2018 8:43 am

I am so sorry :(

You are a wonderful caring spouse. My thoughts and prayers are with you.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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Atoq
Posts: 264
Joined: Wed Oct 25, 2017 9:31 am

Re: G-Tube placed

Postby Atoq » Sun Jun 24, 2018 10:34 am

I am really sorry, I hope she is free from pain. 1-3 months is a very short time and there is not much to say that can help. You are both in my toughts.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery

Capri
Posts: 57
Joined: Thu Apr 19, 2018 5:59 pm

Re: G-Tube placed

Postby Capri » Sun Jun 24, 2018 10:38 am

I'm so very sorry risto, that you both have to go through this trial together. You are a loving and caring spouse. I hope that your wife is pain-free. God bless you both.
Mom to son 46 yo at Dx (2017)
9/17 rectal bleeding
12/17 colonoscopy sigmoid tumor; CT & MRI chest, abd,& pelvis clear; CEA normal
1/18 Robotic resection, Path: adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 Port placed; 2/26/18 Begins FOLFOX
6/18 On Early surveillance CT questionable liver spots 2 are hemangioma, 3rd? PET scan-nothing "lit" up
Neuropathy has started.

Sara!!!!
Posts: 50
Joined: Wed Jul 19, 2017 9:57 am

Re: G-Tube placed

Postby Sara!!!! » Sun Jun 24, 2018 11:34 am

risto wrote:My DW was hospitalized Monday, and the CT scans show that portions of her small bowel are "matted with tumor" so they do not believe she will have any significant resolution of her obstruction. Therefore they recommended, and my DW accepted, having a venting G-Tube placed. The procedure was under conscious sedation by interventional radiology, and it was successful. She had the NG tube removed from her nose so that was a relief. However, since the bowel obstruction is now essentially permanent, she can't have any more chemo, and we have been given an estimate of 1-3 months to live. I plan to take leave from work to care for her full time. Sad times. At least her pain and nausea are well controlled now and she is comfortable.
I'm so sorry :( your wife and my mom seem to b having the same problems. I know some people who have had g tube placed and still got chemo though. Chemo and tpn. This guy I know has been on it since January.
Daughter to mom 67, colon cancer
Diagnosed Dec 16, bowel obstruction.
Hemicolectimy done,Dec 16.
4 lesions in liver on scan before chemo jan 17.
Folfox +Avastin 12 cycles,disease progression on pet Aug 17.
Attempted liver resection, failed. Mets peritoneam. Diffuse.
Mets to lungs, liver. Peri on scan Nov 17.
3 cycles of folfiri+ cetuximab. Cea down from 888 to 383.
Small bowel obstruction jan 18

boxhill
Posts: 55
Joined: Fri Apr 06, 2018 11:40 am

Re: G-Tube placed

Postby boxhill » Sun Jun 24, 2018 1:24 pm

So sorry to hear this. She--and you--have been through a lot. She is lucky to have such a steadfast and caring spouse. May your remaining time together be good.
F, 64 at DX CRC Stage IV (or "3 1/2" per Dana Farber consult, LOL)
3/17/18 blockage, emergency surgery, r hemicolectomy
11 of 25 nodes
5 of 5 mesentery nodes, matted
0.5 cm sub-capsular liver met removed
pT3 pN2b pM1
Neg CEA, neg BRAF, mut KRAS, germline mut ATM
dMMR, MSI-H, Neg for Lynch
5/4/18 FOLFOX

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Shana
Posts: 379
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: G-Tube placed

Postby Shana » Sun Jun 24, 2018 3:53 pm

My thoughts are with you and your wife.
I hope she is comfortable and you have quality time together. I'm so sorry to hear this news.
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

Lee
Posts: 5601
Joined: Sun Apr 16, 2006 4:09 pm

Re: G-Tube placed

Postby Lee » Sun Jun 24, 2018 4:11 pm

I'm so sorry to read this. I pray that your DW is pain free and surrounded by family friends ans love.

Hugs to you both,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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CRguy
Posts: 9528
Joined: Sun Feb 10, 2008 6:00 pm

Re: G-Tube placed

Postby CRguy » Mon Jun 25, 2018 12:32 am

pain free IS a blessing my friend

Sending Love, Peace and Harmony
With you both on the Journey
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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GrouseMan
Posts: 748
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: G-Tube placed

Postby GrouseMan » Mon Jun 25, 2018 12:22 pm

Make sure you get some hospice help lined up. My wife had at the end a similar blockage, and we tried to bypass it via colostomy, that didn't work but the surgeon was willing to give it a try but she had more than one blockage apparently. These are apparent very hard to see in CT scans especially from tumors pressing on the colon from the peri cavity. Ended up with a gastric tube but since everything essentially going into her stomach was coming out the tube she was not getting any nutrition to speak of. Fortunately she had 4 good years before this with some would say an excellent quality of life nearly right up to the end. no less than 4 weeks earlier she was riding her horse, judging field trials and socializing with other dog field trialers, though I could see she was loosing a tremendous amount of weight. Many were taken by surprised when she passed away. Once they released her from the hospital to home hospice care (mostly me primarily giving her drugs and ice chips to keep her comfortable) she lasted about 2 weeks. Passed away Jun 4th 2017. This is going to be mentally and emotionally exhausting to you and sometimes family can't help but say and do the wrong things during this time that might set you off. Also make sure that her friends and colleges get a chance to see her as it will help them some when she does pass. At least they will have been able to say their goodbye's as well. The pain will last a while. I have not been very focused for more than a month now, and it been a little over a year. Her birthday would have been last Friday. Fortunately her sister and her husband spent it with me. I was probably better prepared than most as I was an Anticancer drug researcher. As mush as I tried not to show it, I knew what the eventual outcome of her diagnosis would be. She was quite physically fit to begin with as a life long runner. At the time of diagnosis she was training for a marathon.

Regards, and best wishes,

GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

DarknessEmbraced
Posts: 3044
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: G-Tube placed

Postby DarknessEmbraced » Tue Jun 26, 2018 10:30 am

I'm so very sorry1*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

mhf1986
Posts: 126
Joined: Sat Mar 11, 2017 8:30 pm
Location: near DC

Re: G-Tube placed

Postby mhf1986 » Tue Jun 26, 2018 4:35 pm

Sending prayers.
Caregiver to DH, dx age 50, mets to liver/lungs/lymphs, MSS, quad wild
10/16: CEA 114, partial blockage, left hemi. w/perm. colostomy
11/16: port in, FOLFOX+Avastin
4/17: CEA 11
6/17: CEA 15, 5FU+A only due to neuropathy
11/17: CEA 38, CAPOX+A
12/17: CEA 29
1/18: CAPOX caused hi bilirubin/bad hfs, back to FOLFOX+A
5/18: growth + ascites; 6.4 bilirubin, change to Vectibex
7/18: 1.4 bilirubin, CT shows shrinkage/no ascites; add irinitecan at 66% dose


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