This might be dumb but....

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Posts: 77
Joined: Tue May 22, 2018 4:04 pm

This might be dumb but....

Postby Mohrfamily » Tue Jun 19, 2018 7:32 pm

My DH and I are at the beginning of this he's had 2 doses now side effects were a little more prominent the 2nd time.

I'm curious about whether or not he should leave unemployment behind for disability? He's stage IV colon cancer with a lot of liver mets, they have never given us a number.

Also with his second dose he found his cold sensitivity stronger so beware the air conditioning at night it messed with his breathing after 3 hours. He did he took three nurses about a pain in his stomach when he goes to the bathroom and shrugged it off happens when its "butt vomit" versus real vomit any ideas what it is or could help?
DH dx officially stage IV with liver mets
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.

Posts: 65
Joined: Tue Nov 21, 2017 3:48 pm
Location: Phoenix, Az

Re: This might be dumb but....

Postby martd » Tue Jun 19, 2018 8:20 pm

Social Security has a compassionate allowance that streamlines a claim for stage IV , It takes about 5 months to start receiving checks. You can go to social and create an account it will show what his payments will be. I went through the process and was surprised how quick they were.
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
12 rounds folfox , avastin
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7
01/19 clear scan CEA .9

Posts: 54
Joined: Wed Jan 06, 2016 2:28 am
Location: USA

Re: This might be dumb but....

Postby risto » Wed Jun 20, 2018 5:56 pm

My DW was on short term disability, then long term disability with Social Security. Nice thing about that is early eligibility for Medicare after 2 years.
DW Dx 7/15, 41 yo, st IV, 3+ liver mets: 11.3 cm, 7cm, 3cm. MSS.
KRAS, APC, SMAD4, TP53 mut.
7/15-10/15: FOLFOX+bev. x8
11/15-12/15: SIRT (Y90)
1/16: Toxic Hepatitis, chemo break
4/16: Liver resec. fail
5/16-7/16: FOLFIRI x6
8/16: Liver resec.
8/16-11/16: FOLFIRI x6
2/17: IMRT/Xeloda x25
4/17: LAR
6/17: CT: Progression. Peri, Lung, Liver mets. FOLFIRI x6
9/17: FOLFIRI+Bev x5.
11/17: CT: Stable. 5FU+bev. maintenance x5
1/18-2/18: Surgery for SBO
5/18: ascites, acute liver injury

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