Postby mhf1986 » Tue Jun 19, 2018 7:22 pm
DH had "nap day" on his "unplug day". He'd get up, eat a little, nap, get disconnected, nap, shower, nap...by dinner time he was better. Next day he was tired but managed to work 1/2 day.
I will second the drink a lot of liquids...water, flavored water, tea, lemonade, etc. If you are getting OX along with the 5FU, be careful of cold stuff.
Tell your care team of any side effects early so they can help you.
M
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials
11/19/18 Peace