pet scan result...what the .....?

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: pet scan result...what the .....?

Postby juliej » Wed Jun 20, 2018 5:57 pm

Trying wrote:That would be amazing. Do you know if posdible if they are in both lobes of the liver?

I had tumors in all lobes of my liver and had a resection. Know that it's possible and stay strong!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: pet scan result...what the .....?

Postby Shana » Fri Jun 22, 2018 11:52 am

juliej wrote:
Trying wrote:That would be amazing. Do you know if posdible if they are in both lobes of the liver?

I had tumors in all lobes of my liver and had a resection. Know that it's possible and stay strong!


Hi Trying,

Just catching up on this thread, so glad that the breast scare wasn't metastatic! Stay positive and stay strong!

Julie, thank you for being here and reminding us that there is hope with multiple liver mets in both lobes. I'm in the same situation for now trying to shrink and make them disappear for possible future resection.

TGIF!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

lovelife789
Posts: 161
Joined: Thu Aug 24, 2017 5:28 am

Re: pet scan result...what the .....?

Postby lovelife789 » Sat Jun 23, 2018 12:34 am

Hi Trying,

I'm another one with mets in all lobes of my liver. I'm also about your age with no chronic disease other than this cancer thingy. I had 6 mets in my liver at diagnosis - all bulky and big. My doctor told me my chance of recurrence is 50-60%. He has had many patients who had recurrences that were taken care of by ablation, VATS or sth and no more recurrences which led to complete cure in the end.

It's possible.

I have been working very hard to lower my chances of recurrence since liver resections. I have heavy cardio workout and weight training 3 times a week. I eat whole organic food 80% of the time. No sugar, no red meat, no gluten. High antioxidant juice (homemade) everyday. I take all my supplements everyday. No stress (ok may be scan fright every 3 months). Keeping calm and pumped with positive energy. I do my best and the rest is not in my hands. I see people who are in stage II or III have recurrences as well and have also seen people at stage IV without one or just once before NED forever. So only the big boss up above knows it all. :D good luck!!!
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild
3/17- 6/17 - 6 x FOLFOX + Erbitux
7/17 - 1st & 2nd Liver resec
9-12/17' - 13 x FOLFOX
1-6/18 - NED
6/18 - PET SCAN showed a 0.8mm lung nodule, VATs
8/18 - 4/19 - NED
5/19 - recurrence 1 x PALN, 1x common iliac
FOLFIRI + Avastin x 12 - complete response, SBRT
12/19-5/20 - NED
5/20 - recurrence in LNs, tiny liver spots x 2, W n W due to COVID
8/20 - LNs very slightly increased, liver stable, one new liver spot

lovelife789
Posts: 161
Joined: Thu Aug 24, 2017 5:28 am

Re: pet scan result...what the .....?

Postby lovelife789 » Sat Jun 23, 2018 12:35 am

juliej wrote:
Trying wrote:That would be amazing. Do you know if posdible if they are in both lobes of the liver?

I had tumors in all lobes of my liver and had a resection. Know that it's possible and stay strong!


Your journey at your signature is what I read every few weeks (I saved it on my phone). It gives me encouragement!!!
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild
3/17- 6/17 - 6 x FOLFOX + Erbitux
7/17 - 1st & 2nd Liver resec
9-12/17' - 13 x FOLFOX
1-6/18 - NED
6/18 - PET SCAN showed a 0.8mm lung nodule, VATs
8/18 - 4/19 - NED
5/19 - recurrence 1 x PALN, 1x common iliac
FOLFIRI + Avastin x 12 - complete response, SBRT
12/19-5/20 - NED
5/20 - recurrence in LNs, tiny liver spots x 2, W n W due to COVID
8/20 - LNs very slightly increased, liver stable, one new liver spot

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: pet scan result...what the .....?

Postby Trying » Sat Jun 23, 2018 9:21 pm

I really appreciate the positivity
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020


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