...forgo evidence based medicine and instead go with naturopathic treatment.
risto wrote:..... lived any longer or with better quality of life by using evidence based medicine, he probably would have.
What makes his case so tragic is that he leaves behind a wife and two children who are now hurting financially, based on his treatment decision. .......
You can see her posts on facebook.
The cautionary tale here...
rp1954 wrote:Gosh, from the angry verbiage and denunciations, I thought this guy was going to be a real refusenik.
Nope, he did 9 rounds of folfox-Avastin, got hammered; did Erbitux, got hammered; did Vectibix and had some success; did some rounds of surgery including Hipec, and then eventually, Stivarga. I do think he over read the negative aspect of the (now old wrt Avastin?) "2.1 month median improvement in survival" blurb; see Stephen J Gould's essay about "the median isn't the message".
One could even speculate to what degree he was a victim of oxaliplaten and over eager or inattentive oncology, that spooked him away from most chemo for a while. Certainly I wish someone could have said to him, "Well, we have a nice chemo," along with the CAM chemistry. Certainly not in the USA with the FDA. Because of our pharmas' total market domination in education and medicine as well oncologists' long standing hostility to oral chemo from the 80's, there is very little familiarity with UFT and its intelligent use. Ditto celecoxib, and I didn't see his mention of aspirin either.You can see her posts on facebook.
Nope, not anymore. Wouldn't be surprised if someone informed her about this very thread and she took it down lest some unbalanced person bother her. PS. If anyone has notes or a copy, I'd be interested to know more.The cautionary tale here...
...is to please be respectful to those who have shared their story and perhaps avoid injecting derogatory side issues like the CAM side links in the same thread. We need all the insights we can get, even if some that know so much better, don't.
CTCA did try to guide him back to some chemo, even pressured him, along with the naturopathic treatments. I for one think he did get benefits from his CAM treatments but didn't have enough information and (legal) options to optimize back to a better result, perhaps including oral immunochemo options. Again, "many thanks" to the FDA on UFT type of generics /sarc.
boxhill wrote:I'm sorry, what is UFT? Can't find it in the terminology thread.
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