tdash wrote:Thank you. This info about DFCI and MGH definitely helps me feel better about how things turned out with regard to the treatment plan. My doc has since recommended I try the Xeloda during chemorad (start tomorrow); if I can't tolerate it then will switch to 5FU. I got my port back in this past week, and it's still tugging in ways I don't quite remember the last time around. Has me a little nervous that it will be this uncomfortable the whole time. I'm reminding myself that having an IV catheter at the base of one's neck will understandably take some getting used to.
I'm also planning on working as long as it makes sense for me....The daily commute into DFCI is a pain, but hey I'll take it.
Added some more info to my signature....still figuring out best practices for this forum:)
The port situation should get better. I haven't really noticed it for a long time outside the restrictions that it places on my working out.
On MGH-DFCI - they do work together on some things and Brigham and Womens is the hospital for in-patient for DFCI. MGH and Brigham and Womens are both part of Partners Healthcare. My approach to going to appointments at DFCI/MGH has been to driver there at 4:15 AM and then work in the Cafe until my appointment, and then drive home. It takes me 50 minutes to drive at that time. A few hours later and it would take me two hours.
One of the expensive parts is parking. B&W validates for $10 or $12. I would guess that DFCI does as well but I don't know which parking garage they work with. Going there 28 times will cost a few bucks in parking fees though they are small in terms of the overall treatment costs. I have tried a variety of ways to get down there in the past.
MGH is easier as it's more easily accessible via Commuter Rail if you're outside of 495.