Communicating the Complexities

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Maggie Nell
Posts: 726
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Communicating the Complexities

Postby Maggie Nell » Sun Jun 17, 2018 7:17 am

Came across this website/interview with a woman who has MS and thought it might
resonate with colon cancer folks

..... Jameson described chronic disease as an ongoing natural disaster of the body, similar to a tsunami. She detailed,
openly, how this kind of disaster leaves in its wake a real sense of fear and isolation. [..]

“At some point in our lives, we all become patients and are challenged with accepting illness as a part of being human,”


Beautiful images at the link....."Good Egg" has WOW factor...

https://www.interaliamag.org/articles/e ... h-jameson/
DX April 2015, @ 54
35mm poorly diff. tumour found upon emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

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LPL
Posts: 404
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Communicating the Complexities

Postby LPL » Sun Jun 17, 2018 2:53 pm

Wonderful !! Thank you Maggie <3
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

NHMike
Posts: 1432
Joined: Fri Jul 21, 2017 3:43 am

Re: Communicating the Complexities

Postby NHMike » Tue Jun 19, 2018 8:24 am

I have a co-worker going through an aggressive form of MS and I'd say that it's worse than Stage 3 CRC as there aren't any cures yet. There are infusions to put people in remission but they haven't worked for her. The breakdown in nervous system function is a lot different from CRC as you lose pieces of control randomly over time.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18


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