Mom's surgery 5/23 (HAI pump)

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njf
Posts: 14
Joined: Mon Jan 08, 2018 9:32 pm

Mom's surgery 5/23 (HAI pump)

Postby njf » Sat Jun 16, 2018 8:44 am

She had surgery on 5/23 And her primary was removed with 10 inches of colon (clean margins). They also removed 2 liver mets from her left liver lobe (clean margins). She wasn't suppose to have a colostomy but developed a infection so on 5/30 a second surgery was done and she will have a colostomy until her next planned surgery after 3-6 months of chemo when they plan to resect the right lobe it will be reversed. All lymph nodes was clear. Drs remarked her tissue is all very healthy including the liver despite still having multiple Mets left in the right lobe. They believe they can get it all in time so the fear is it spreading or recurring so hopefully the HAI pump gets her to NED and keeps her there, but it's all very scary! Its been 30 days almost in NYC from Michigan and she is due to get the pump filled on 6/20 And then we fly home!

Surgery was done at mskcc by Dr. Paty (colon) and Dr. Kingham (liver).
Caregiver to Mom DXed Oct 2017 CEA 156
Stage 4 with countless mets to liver told 2-5 years by local onc
11/17 Had consult with MD Anderson that didn't pan out CEA down to 56 no treatment
12/17 Start treatment Folfox + Avastin
2/18 MSK Consult Dr. Kemeny switched to Folfori + Erbitux CEA 14
5/18 HAI Pump/Liver Resection/Primary removed CEA 12
12/18 Liver resection CEA 56
1/19 - CT scan clean!
2/19 - CEA 3.1 Resumed treatment

mariane
Posts: 647
Joined: Sun Sep 13, 2015 6:16 pm

Re: Mom's surgery 5/23 (HAI pump)

Postby mariane » Sun Jun 17, 2018 11:28 pm

I am very happy that your mom has already been recovering after her surgeries. Clear nodes and margins are excellent news! I wish her super response to FUDR from the pump.
Thank you for letting us know!
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

njf
Posts: 14
Joined: Mon Jan 08, 2018 9:32 pm

Re: Mom's surgery 5/23 (HAI pump)

Postby njf » Tue Jul 03, 2018 3:39 pm

Her CEA on 6/20 when she started receiving HAI therapy was 36 and that was drop from her pre surgery CEA of 55 (4/25). Today 7/3 her CEA is down to 4.5 which is just 13 days post first treatment with HAI! She just started systemic again today as well at a lower dose then what she was getting presurgery/HAI.
Caregiver to Mom DXed Oct 2017 CEA 156
Stage 4 with countless mets to liver told 2-5 years by local onc
11/17 Had consult with MD Anderson that didn't pan out CEA down to 56 no treatment
12/17 Start treatment Folfox + Avastin
2/18 MSK Consult Dr. Kemeny switched to Folfori + Erbitux CEA 14
5/18 HAI Pump/Liver Resection/Primary removed CEA 12
12/18 Liver resection CEA 56
1/19 - CT scan clean!
2/19 - CEA 3.1 Resumed treatment

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juliej
Posts: 2917
Joined: Thu Aug 05, 2010 12:59 pm

Re: Mom's surgery 5/23 (HAI pump)

Postby juliej » Thu Jul 05, 2018 5:45 pm

njf wrote:Her CEA on 6/20 when she started receiving HAI therapy was 36 and that was drop from her pre surgery CEA of 55 (4/25). Today 7/3 her CEA is down to 4.5 which is just 13 days post first treatment with HAI! She just started systemic again today as well at a lower dose then what she was getting presurgery/HAI.

Very good news! It sounds like the pump is working. Sending lots of good thoughts and prayers her way!

Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 9/14/2018, CEA<1

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HopeForJesse
Posts: 245
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: Mom's surgery 5/23 (HAI pump)

Postby HopeForJesse » Thu Jul 05, 2018 9:50 pm

Just want to add to the prayers and well wishes. Dr. Paty added my husband’s pump 2 years ago this month. Wish you great success. It’s all so very intimidating at first but becomes a new norm.
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS TP53 APC,BRCA2
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
4/18 CEA 87 :( 5/18 5 days SBRT radiation to sternum CEA declining again 6/13/18 21.1 10/22/18 surgery to remove zyphoid process met
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

Gravelyguy
Posts: 114
Joined: Thu Jul 05, 2018 6:03 pm

Re: Mom's surgery 5/23 (HAI pump)

Postby Gravelyguy » Fri Jul 06, 2018 7:31 pm

That is great news. Praying for NED!

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection cancer is out of here!
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!


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