hospice

Please feel free to read, share your thoughts, your stories and connect with others!
lkub
Posts: 21
Joined: Mon Mar 14, 2016 12:14 am

hospice

Postby lkub » Fri Jun 15, 2018 5:49 pm

My dear T started home hospice on Monday. The oncologist thinks he has days to weeks. He is suffering, so sadly I hope he's right.
DH-stage 3b rectal signet ring cell dx 11/15 age 41
rad/xeloda 12/15-1/16
total colectomy&ileo(jpouch) 3/16
4/16 CEA 0.6
oxali&xeloda 3/16-8/16
clean CT 9/16 NED
10/16 reversal
4/17 CEA 1.4
10/17 CEA 44.4
10/17 CT mets to nodes peritoneum pelvis-stage 4
10/17 biopsy KRAS/BRAF/NRAS wild
11/17 port
11/17 FOLFIRI+erb
1/18 Erb failed CT mets spine/pelvis
2/18 stent ureteral obst
2/18 FOLFIRI+Avastin
3/18 small bowel obstr
3/18 CEA 114
4/18 FOLFOX+Vbix FAILED
5/18 ascites
6/18 hospice
Lynch neg

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: hospice

Postby SteveNZ » Fri Jun 15, 2018 5:53 pm

Thinking of you.
We all care.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: hospice

Postby Robino1 » Fri Jun 15, 2018 6:27 pm

I am so deeply sorry.

Cancer sucks!
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

zephyr
Posts: 263
Joined: Thu Aug 18, 2016 7:31 am

Re: hospice

Postby zephyr » Fri Jun 15, 2018 6:41 pm

lkub wrote:My dear T started home hospice on Monday. The oncologist thinks he has days to weeks. He is suffering, so sadly I hope he's right.


I'm so sorry. As SteveNZ wrote, we all care. We are here for you.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr/Jul-2019 Xeloda/Avastin, SBRT
Sept-2019 Stable! Continue Xeloda/Avastin

User avatar
Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: hospice

Postby Shana » Fri Jun 15, 2018 8:03 pm

I am so very sorry to hear this. Sending you love and prayers for comfort
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

margiej
Posts: 88
Joined: Sat Apr 14, 2018 8:46 am

Re: hospice

Postby margiej » Fri Jun 15, 2018 8:16 pm

So very sorry to hear this. Sending love and peace. ❤️
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/17
CT 10/3/17 clear
CT 10/17/18 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

orlar
Posts: 65
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: hospice

Postby orlar » Fri Jun 15, 2018 10:45 pm

There are few words I can think of that will comfort you and yours right now.
So maybe, just hold his hand and tell him how much he's loved as often as you can.
You're in my thoughts and prayers.
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
10/18 In Clinical Trial
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8, 9/18-56

stu
Posts: 1219
Joined: Sat Aug 17, 2013 5:46 pm

Re: hospice

Postby stu » Sat Jun 16, 2018 1:23 pm

Sending our love at such a difficult time .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: hospice

Postby LPL » Sat Jun 16, 2018 2:53 pm

stu wrote:Sending our love at such a difficult time .
Stu

I agree with Stu’s words.
SO Sorry that you both have to be in this situation :cry:
I hope they can find relief for his pain.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

User avatar
ANDRETEXAS
Posts: 625
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: hospice

Postby ANDRETEXAS » Sun Jun 17, 2018 1:29 pm

Prayers to both of you from Texas.......
2014
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy
2019
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023

ONE DAY AT A TIME !

DarknessEmbraced
Posts: 3381
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: hospice

Postby DarknessEmbraced » Tue Jun 19, 2018 8:20 am

I'm so very sorry!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Capri
Posts: 76
Joined: Thu Apr 19, 2018 5:59 pm

Re: hospice

Postby Capri » Tue Jun 19, 2018 9:15 pm

I'm very sorry to hear this. There are no words that help; only know that I wish you both peace and that you are in my prayers.
Mom to son 46 yo at Dx (2017)
11/17 sigmoid tumor found on colonoscopy
1/18 Robotic resection, Adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 - 7/30/18 Port placed; completed 12 cycles of FOLFOX
6/18 Put on Early surveillance CT,PET scan-normal. Neuropathy has started.
10/18 Port removed
11/2/18 Clean colonoscopy; 11/20 CT normal.
3/2019 Abdominal CT normal
9/2019 Chest, abdomen, pelvis CTs "unremarkable".

Beloved fiancée
Posts: 8
Joined: Mon Jan 22, 2018 1:47 pm
Facebook Username: Silianai

Re: hospice

Postby Beloved fiancée » Tue Jun 19, 2018 11:09 pm

I am deeply sorry! You and your family are in my prayers!!!!
Diagnosed 0ct 2017 colon Cancer
Procedure: right hemicolectomy
Stage: 3BT4 Mucinous with Signet-Ring Cell poorly differentiated. :(
Treatment: Started Jan. 2018 Folfox
Ct scan July 2018: clear with prominent mesenteric 11X9 mm
Pet scab Aug 2018: CLEAR
Now and Forever Cured! Thank to the LORD

SpringerSpanielMommy
Posts: 23
Joined: Fri Mar 23, 2018 8:52 pm

Re: hospice

Postby SpringerSpanielMommy » Wed Jun 20, 2018 8:16 pm

I am so sorry, I hope it is some comfort knowing so many of us care.
DX: 2/21/2018 Rectal Cancer: T3c N2 M0, Intramucosal Adenocarcinoma
3/20/2018 Radiation 45gy in 25 fractions, while taking 3000mg Xeloda only radiation days starts 3/28/2018
5/8/2018 Completed Chemoradiation with 5 additional Boosts
6/29/2018 Started 4000mg Xeloda 14 days on and 7 days off. Oxaliplatin Infusion with Power Port.
Joshua 1:9 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Rock_Robster and 27 guests