Taste Change Advice

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henry123
Posts: 212
Joined: Sun Oct 08, 2017 3:25 am

Re: Taste Change Advice

Postby henry123 » Tue Jun 19, 2018 1:01 am

I had a really bad episode of nausea and taste change during xeloda chemo. There were huge episodes before each meal . I would throw tantrums like a baby. My wife actually had to call my friend over to convince me to eat something.
Some of things that worked:
Boiled rice with yogurt with mild sauces.
Bananas and apples with black salt.
Eggs sunny side up with lots of salt.
Vanilla flavored desserts.

Couldn't stand chicken or fish .

One of things that I could eat a lot was kada parshad, an indian dessert. It is a smooth, soft, velvety and rich halwa made with whole wheat flour (atta) with sugar and clarified butter ( ghee). It gave lot of energy too.

An oncologist had suggested it. You can Google its recipe or ask some indian friend for its recipe or even prepare it for you.
46yo M msi-high Lynch +ve
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crikklekay
Posts: 102
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: Taste Change Advice

Postby crikklekay » Tue Jun 19, 2018 8:52 am

kellywin wrote:There's no way I could have eaten fruit, smoothies, yogurt or any of the things you've listed, I would have gagged. He just has to keep trying. Calories are more important than 'healthy' foods, so if it has calories and he'll eat it, that's more important.


I completely agree! The weird thing is initially the things he could eat were mac and cheese, alfredo, and other fatty foods. The only fruit he was getting was a banana and that's because he liked bananas and it's one of the few fresh fruits he can eat. But now it seems like unless it's almost a liquid like applesauce, smoothies, or soup he can't eat it. He tried eating a banana yesterday and it made him gag and vomit which has never happened before! He said it didn't taste bad, it just made him gag. We have an appointment with the Oncologist today so I'm definitely going to bring that up.

henry123 wrote:One of things that I could eat a lot was kada parshad, an indian dessert. It is a smooth, soft, velvety and rich halwa made with whole wheat flour (atta) with sugar and clarified butter ( ghee). It gave lot of energy too.

An oncologist had suggested it. You can Google its recipe or ask some indian friend for its recipe or even prepare it for you.


Oooh that sounds like something he might be able to tolerate, thank you! I'll have to look that up!!
Caring for DH John
Colon Cancer, Sigmoid colon
Adenocarcinoma
G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, chest CT scan showed septic emboli & blood clots
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NHMike
Posts: 2498
Joined: Fri Jul 21, 2017 3:43 am

Re: Taste Change Advice

Postby NHMike » Tue Jun 19, 2018 8:59 am

henry123 wrote:I had a really bad episode of nausea and taste change during xeloda chemo. There were huge episodes before each meal . ...
Bananas and apples with black salt.
Eggs sunny side up with lots of salt.
...


The chemo drugs really drain your electrolytes - it showed up as leg cramps for me. I bought Nuun tablets and have Magnesium horse pills but salt is cheap, convenient and handy when your body craves electrolytes. I have a shaker in my office and a Nuun tube filled with it as a backup.
6/17: ER rectal bleeding; Colonoscopy
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7/17-9/17: Xeloda radiation
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margiej
Posts: 99
Joined: Sat Apr 14, 2018 8:46 am

Re: Taste Change Advice

Postby margiej » Tue Jun 19, 2018 10:11 am

Xeloda also made me extremely nauseated. I was almost worse the week off of the pills.. the toxicity seemed to build up each week and each cycle. It was a constant battle to get enough food into me so that I could take the pills. Foods that tasted good changed from day to day, week to week, and month to month. You just just have to keep trying different flavors and textures and combinations. Foods that surprised me and tasted pretty good included... Rice and curry dishes, hummus, strawberry shortcake with whipped cream, anything with whipped cream, filet-o-fish, corn on the cob, watermelon. When I really needed to eat something so I could take my pills, my standby was peanut butter and jelly on bread or crackers. Good luck... You will get through it.
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
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