Questionable submucosal cecal mass

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mcac15
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Questionable submucosal cecal mass

Postby mcac15 » Wed Jun 13, 2018 8:20 pm

I seem to be one of the rare people that has a submucosal cecal mass that is questionable. Can’t tell if it’s benign or malignant. My GI says it has to come out. Two different colon rectal surgeons are recommending a right hemicolectomy just in case it’s malignant. I don’t want to lose part of my colon for nothing but also don’t want to risk leaving it if any chance it’s malignant. Anyone in same situation? What’d you do?

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CRguy
Posts: 9621
Joined: Sun Feb 10, 2008 6:00 pm

Re: Questionable submucosal cecal mass

Postby CRguy » Thu Jun 14, 2018 12:11 pm

Any scans or imaging ( PET / CT ), MRI or ultrasounds done ?
Have they talked about possible biopsy first ?
Would they do intra-operative "quick" pathology to get an idea of what it is before full resection ?

Sounds like you may need your docs to talk to you about possible options if you are not committed to right hemi
Tough choice, but knowledge is power

Best wishes
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

mcac15
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Re: Questionable submucosal cecal mass

Postby mcac15 » Thu Jun 14, 2018 5:18 pm

Had a CT scan which was inconclusive. Only option being offered to me by 2 surgeons is right hemi. Asked about frozen section. Apparently not 100% accurate in GI masses.

child#6
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Joined: Wed May 16, 2018 7:51 pm
Facebook Username: John Smith

Re: Questionable submucosal cecal mass

Postby child#6 » Thu Jun 14, 2018 6:00 pm

My husband just had a right hemicolectomy last week for what we initially thought was stage 1. He was in the hospital for 3 days and is recovering well. Expected to return to work on the 20th. There has not been any change in his stool or anything else of concern. When pathology came back after surgery we found it was a stage 2. Staples coming out Tuesday.

Utwo
Posts: 212
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Questionable submucosal cecal mass

Postby Utwo » Thu Jun 14, 2018 8:21 pm

Just search this forum for "right hemicolectomy".
Some people are back to almost normal in a few weeks.
Other people have severe issues after 10 years.

Right hemicolectomy removes ileo-cecal valve, that is an important part of your digestive system.

Is colonoscopic removal of your mass an option?
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy #1: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy #2: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder and a lymph node

Beckster
Posts: 279
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Questionable submucosal cecal mass

Postby Beckster » Thu Jun 14, 2018 9:18 pm

I had a right hemi in November 2016. No problem with recovery. It is over 1 1/2 years and I feel like I never had surgery. Just make sure, if you decide to have surgery, that you go to a board certified colon rectal surgeon. It makes a difference.
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Grade: G3 (surgical) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17, 12/12/17, 6/18/18 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8
Clear Colonoscopy 10/17 :D

mcac15
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Joined: Wed Jun 06, 2018 9:27 pm
Facebook Username: mcac15

Re: Questionable submucosal cecal mass

Postby mcac15 » Thu Jun 14, 2018 11:23 pm

Beckster, where in NJ are you? Who did your surgery?

Beckster
Posts: 279
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Questionable submucosal cecal mass

Postby Beckster » Fri Jun 15, 2018 5:16 am

mcac15 wrote:Beckster, where in NJ are you? Who did your surgery?


Southern NJ.....Dr Stephen McClane at Cooper University, head of colon rectal surgery and co director of MD Anderson, performed my surgery. He is a rock star! Had my surgery at 8:00am on a Friday and was discharged by 6:00am on Sunday. Went home with no pain medicine! I feel like I never had surgery :D

Here is his credentials
https://www.cooperhealth.org/doctors/steven-mcclane-md
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Grade: G3 (surgical) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17, 12/12/17, 6/18/18 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8
Clear Colonoscopy 10/17 :D

mcac15
Posts: 14
Joined: Wed Jun 06, 2018 9:27 pm
Facebook Username: mcac15

Re: Questionable submucosal cecal mass

Postby mcac15 » Fri Jun 15, 2018 10:38 pm

Utwo wrote:Just search this forum for "right hemicolectomy".
Some people are back to almost normal in a few weeks.
Other people have severe issues after 10 years.

Right hemicolectomy removes ileo-cecal valve, that is an important part of your digestive system.

Is colonoscopic removal of your mass an option?


Can’t remove with colonoscopy as it’s submucosal and sitting on opening to appendix and close to ileo-cecal valve.

mcac15
Posts: 14
Joined: Wed Jun 06, 2018 9:27 pm
Facebook Username: mcac15

Re: Questionable submucosal cecal mass

Postby mcac15 » Fri Jun 15, 2018 10:40 pm

Beckster wrote:
mcac15 wrote:Beckster, where in NJ are you? Who did your surgery?


Southern NJ.....Dr Stephen McClane at Cooper University, head of colon rectal surgery and co director of MD Anderson, performed my surgery. He is a rock star! Had my surgery at 8:00am on a Friday and was discharged by 6:00am on Sunday. Went home with no pain medicine! I feel like I never had surgery :D

Here is his credentials
https://www.cooperhealth.org/doctors/steven-mcclane-md


Your ascending colon was removed or just cecum?

Leeloo
Posts: 57
Joined: Sat Oct 04, 2014 5:02 pm
Location: Glasgow, Scotland, UK

Re: Questionable submucosal cecal mass

Postby Leeloo » Sat Jun 16, 2018 12:08 am

They found my mass during an op for “woman’s troubles”, I didn’t know it was there. The surgeons gave me a right hemicholectomy as well. Thankfully!

When they took it out they could not tell what it was, I had a bit of a wait for the pathology results. Stage 2 cancer with a T4 tumour, one that was right through my bowel wall. Thankfully no spread anywhere else. I’m so glad they used their experience, and did what they thought needed done.

So yes, I need to avoid having a popcorn feast, and yes I’m on b12 injections for life, however I think it’s a small price to pay for being cancer free now.

When I put my car in the garage, I like to think I know what’s wrong, but I trust the mechanic to fix it, I tend to take the same approach with surgery, I ask lots of questions, read up as much as I can, and bottom line trust the docs.

Find one that works well with oncologists, so you get the best treatment and best results you can.
(R) hemicolectomy 13/08/13
Stage IIB T4N0(0/6)M0
Xelox x 4 (Scot trial)
NED

Beckster
Posts: 279
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Questionable submucosal cecal mass

Postby Beckster » Sat Jun 16, 2018 4:58 am

mcac15 wrote:
Beckster wrote:
mcac15 wrote:Beckster, where in NJ are you? Who did your surgery?


Southern NJ.....Dr Stephen McClane at Cooper University, head of colon rectal surgery and co director of MD Anderson, performed my surgery. He is a rock star! Had my surgery at 8:00am on a Friday and was discharged by 6:00am on Sunday. Went home with no pain medicine! I feel like I never had surgery :D

Here is his credentials
https://www.cooperhealth.org/doctors/steven-mcclane-md


Your ascending colon was removed or just cecum?


A right hemicolectomy operation is to remove the right-hand portion of the colon, which includes the appendix, cecum, and ascending colon.
57/Female
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size: 3.5 cm x 2.5 x 0.7 cm
Grade: G3 (surgical) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion-discontinued
1/2/17 to 6/9/17- Xeloda monotherapy
6/26/17, 12/12/17, 6/18/18 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8
Clear Colonoscopy 10/17 :D

Utwo
Posts: 212
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Questionable submucosal cecal mass

Postby Utwo » Sat Jun 16, 2018 8:04 am

Leeloo wrote:I’m on b12 injections for life, however I think it’s a small price to pay for being cancer free now.
I apologize for thread drift.

Why do you need B12 in case of right hemicolectomy?
Why do you need injections instead of pills?
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy #1: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy #2: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder and a lymph node


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