Does anyone have a little drinky drink during chemo?

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Rikimaroo
Posts: 132
Joined: Tue Dec 20, 2016 8:48 pm

Does anyone have a little drinky drink during chemo?

Postby Rikimaroo » Tue Jun 12, 2018 7:17 pm

I am not a normal drinker. An occasional drinker, yes. I was jonesing for some margarita mix that I have on my bar. I just had some in a shot glass but drank it slow. With liver surgery I get scared drinking any alcohol. What are your thoughts on the occasional drink to peel the edge off a little.
Diagnosed at 38 y/o male, 3 kids 7,9,14 - Now 39.
RC T3N1M0
Chemo Rad, CCR - W&W 5/2017
Local Recurrence, discuss options 11/26/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/15/2017, folfox/oxapalatin + avastin starts on the 12/20/2017
Blood Clot in Neck 1/16/2018, stop avastin, continue FolFox
TME/Liver Resect 4/3/2018
Biopsy Results 0/8 Lymph nodes clear, margins not clear, CEA now .8, more chemo and possible radiation, outlook looks good, staying positive!!

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betsydoglover
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Location: Maryland - outside DC

Re: Does anyone have a little drinky drink during chemo?

Postby betsydoglover » Tue Jun 12, 2018 7:31 pm

I had the off and on occasional drink (or 2 every once in a while) - no problem. My onc said it, as with most things, was fine in moderation. Still here 13 years later, so I am pretty sure a bit is ok.
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18

mhf1986
Posts: 134
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Location: near DC

Re: Does anyone have a little drinky drink during chemo?

Postby mhf1986 » Tue Jun 12, 2018 8:06 pm

DH asked this question today: dr. said it would probably increase quality of life! So they discussed martinis and wine for awhile. As long as DH's liver function is OK, dr. said he could have something on occasion. Bilirubin is down to 2 from 6.4 a month ago and other numbers are improving so a martini once a week or so is fine.

A friend of mine has really bad cirrhosis from hepatitis and they've told him no alcohol at all, that one drink could really really hurt him. Asking might be best!

M
Caregiver to DH, dx @ 50, mets to liver/lungs/lymphs, MSS, quad wild
10/16: CEA 114, partial blockage, left hemi, perm. colostomy
11/16: port in, FOLFOX+Avastin
4/17: CEA 11
6/17: CEA 15, 5FU+A only due to neuropathy
11/17: CEA 38, CAPOX+A
12/17: CEA 29
1/18: CAPOX caused hi bilirubin/bad hfs, back to FOLFOX+A
5/18: growth + ascites; 6.4 bilirubin, change to Vectibex/Irinitecan
8/18: .9 bilirubin, CEA 31, shrinkage/no ascites

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CRguy
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Re: Does anyone have a little drinky drink during chemo?

Postby CRguy » Tue Jun 12, 2018 9:44 pm

another idea might be
Mocktails ... drinks we love and crave without the alcohol content
Margarita could be one / Pina Colada, Virgin Caesar etc etc.

disclaimer :
I am more of a wine buff and ...sadly ... having made wine and collected wines for years ......
I cannot tolerate the dealcoholized wines on the market.

Some low alcohol beers are OK ..... BUTT again near beers are usually gross IMO
SO when I was jonesing on a bevvy ... :shock:
I would go to the mixed drinks with enough OTHER stuff in them so as to NOT miss the ethanol kick
OR some white wines are naturally lower in alcohol than reds, wine coolers .... ?

just me :mrgreen:

BTW my big RED wine Go To standards .... tasted like shit when I was on chemo
like "India Ink " I believe I described them :twisted:
so I just moved on :(

Yeah ASK the docs is probably a good start and Mocktails would be a safe follow up !

Dare I say :shock:
CHEERS !
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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LeonW
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Location: Amsterdam, Netherlands

Re: Does anyone have a little drinky drink during chemo?

Postby LeonW » Thu Jun 14, 2018 4:42 pm

I didn't until well after the liver job - mostly

Expecting that chemo would be challenging for the liver, I decided to leave it doing its things without alcohol throughout chemo. We did however celebrate completion of each (3 week) Xelox-Avastin cycle with a fancy/restaurant dinner that included a (sinle) glass of champagne. The real stuff. Heck, one needs to celebrate successes.

Once liver had regrown, we figured that it was 75% brand new and thus quite capable to handle an occasional drink. That was 2 mos after resection. From there, slowly reverted to the earlier pattern (2-3 drinks, 3-4 days a week). I still do.

All went well. Was officially promoted to 5+ year monitoring program upon the last 6-mo check-up earlier this week (June 12) :D :D

greetings, L
Dec 2012 - 7 cm mass MM @65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen, 2/26 nodes, IVa T3N1bM1a, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (delirium, liver failure, emboli, encephalopathy) pCR - cancer gone
2014/15 - recovery/benign polyp
2016 - new town, new life
clean CTs and (1.3-1.4) CEAs: 4x2014, 6x2015-17, 1x2018
June 2018 - 2 polyps, 5yr survivor

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LPL
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Location: Europe

Re: Does anyone have a little drinky drink during chemo?

Postby LPL » Thu Jun 14, 2018 5:22 pm

Rikimaroo,
We live in France. My husband’s doctors said ”no restrictions regarding what to eat or drink” when he asked. Hubby drank vine with dinner and maybe 1 day a week he took a ’little something’ to the coffee.

mhf1986 wrote:
Bilirubin is down to 2 from 6.4 a month ago and other numbers are improving

So Good to hear this news! :-)
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

boxhill
Posts: 90
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Re: Does anyone have a little drinky drink during chemo?

Postby boxhill » Thu Jun 14, 2018 8:22 pm

I decided to be on the wagon for the duration. I'm helped by the fact that my usual favorite, red wine, tastes horrible on chemo. It's gin and tonic season, but who wants a G&T w/o ice? I love bourbon, but haven't had any in the house.

I find it easier to abstain completely. Every once in a while I'll have a sip of someone's wine just to check, and yup, still tastes dreadful. Oh well. Back to herb teas and lukewarm water.

BTW, has anyone else encountered major problems getting a simple glass of WARM water in a restaurant? I've been out a few times shortly after infusion, and I have to explain at length that yes, I really do just want some lukewarm water from the tap. One place insisted on running it through the coffee maker, so it was boiling hot and tasted like coffee. Yuck! A friend I was with just took it over to the sink, dumped it, and filled my glass from the tap. Oy vey.

My surgeon did say that a glass of wine now and then was okay, but why bother? (He;s a liver guy. :) ) Since I had a tiny liver met, I decided I might as well give my liver a break, and I was drinking too much before anyway. Good time to break the habit.
F, 64 at DX CRC Stage IV (or "3 1/2" per Dana Farber consult, LOL)
3/17/18 blockage, emergency surgery, r hemicolectomy
11 of 25 nodes
5 of 5 mesentery nodes, matted
0.5 cm sub-capsular liver met removed
pT3 pN2b pM1
Neg CEA, neg BRAF, mut KRAS, germline mut ATM
dMMR, MSI-H, Neg for Lynch
5/4/18 FOLFOX started
Added Neulasta 6/28/18
7/9/18 CT scans show no masses or enlarged nodes, 2mm indeterminate lung nodule

heiders33
Posts: 250
Joined: Sat Nov 04, 2017 11:08 am

Re: Does anyone have a little drinky drink during chemo?

Postby heiders33 » Thu Jun 14, 2018 8:26 pm

Oh my goodness yes, I had so much trouble getting lukewarm water when I would go out. It made me want to go to Europe where they don’t put ice in everything. One time I was on a flight and they announced that there would be no hot drinks. Oy.

I mostly abstained during treatment, although I would have a glass of wine or beer here and there during my good weeks.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI inconclusive
August 2018: PET abnormal, liver enzymes normal, CEA 2.4

jep
Posts: 67
Joined: Sun Jun 11, 2017 7:45 pm

Re: Does anyone have a little drinky drink during chemo?

Postby jep » Thu Jun 14, 2018 9:30 pm

So my husband LOVES beer, but couldn't drink anything carbonated until his fistula was completely healed. Well, that took more than 9 months, but his liver numbers have actually improved since he started drinking wine (and eventually beer) again. He's very happy about this...
Jep
Husband DX Stage IV CC on May 16, 2017
47 years old
Tumor Location: recto-sigmoid
Tumor type: Adenocarcinoma
Tumor size: 7.4 cm
Tumor grade: G3
TNM code: T3N2M1
Positive lymph nodes: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
Surgical margins: clear (w/in microns)
Primary surgery type: LAR
Folfox (August 2017-January 2018)
Scope June '18 - CLEAR! - 2 polyps removed

Basil
Posts: 243
Joined: Thu Mar 16, 2017 12:33 pm

Re: Does anyone have a little drinky drink during chemo?

Postby Basil » Fri Jun 15, 2018 11:35 pm

I drink too much and drank too much during chemo. It’s not a good thing but my liver and blood were always good. Year out and cancer free with normal liver function. This is not a suggestion, of course, but don’t get bent about having a couple of cocktails.
40 y/o male, kids 6&9
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear

StDrogo
Posts: 17
Joined: Thu Jun 08, 2017 7:54 pm

Re: Does anyone have a little drinky drink during chemo?

Postby StDrogo » Sat Jun 16, 2018 1:14 am

Well, I did—and in herculean quantities—but I wasn't the one technically on chemo. My wife usually had a glass every night with dinner; whether it's good for you or not, teetotalism just doesn't seem human. She fasted, however, for five days out of every two weeks, during which time she would only drink water
Wife Age 33
02/17 dx Ovarian mass, ascites, pleural effusions
03/17 Resection of 16 x 20 cm ovarian mass; CEA = 10, CA125 = 180, CA19-9 = 36
04/17 Emergency surgery, diastatic perforation, purulent peritonitis, extended right hemicolectomy, well-differentiated adenocarcinoma in splenic flexure, 1/16 lymph
11/17 CT = NED, CEA < 1
12/17 CRS (peritoneal nodules of foreign body giant cell reaction, no evidence of malignancy; liver resection—1 cm FBGCR and .5 cm focal nodular hyperplasia), HIPEC

thubler
Posts: 46
Joined: Tue Sep 27, 2016 9:22 am

Re: Does anyone have a little drinky drink during chemo?

Postby thubler » Tue Jun 26, 2018 7:29 pm

Im a drinker, but not professionally anymore! I did not drink during chemo until towards the end, probably last two months or so and that was during off weeks and only a few times 3 or 4 at most. I would only drink two beers or glasses of wine. I think anything in moderation is fine but I probably would limit it to your off weeks. Good luck!
III b CC @ 35 yoa.
two primary tumors on ascending/transverse stage 1 and stage 3.
Lynch Positive
Resection 05/16
2/41 nodes +
FOLFOX 6/16-11/20/16
Clear Endoscopy and Colonoscopy 12/6/16, 02/13/18
CT 02/07/17 enlarged mesenteric node.
Clear PET 02/15/17
Stable CT 06/05/17,10/16/17,04/02/18
Deported 11/03/17

Stewsbetty
Posts: 124
Joined: Thu Jul 14, 2016 7:08 am

Re: Does anyone have a little drinky drink during chemo?

Postby Stewsbetty » Wed Jun 27, 2018 6:54 am

boxhill wrote:
BTW, has anyone else encountered major problems getting a simple glass of WARM water in a restaurant? I've been out a few times shortly after infusion, and I have to explain at length that yes, I really do just want some lukewarm water from the tap. One place insisted on running it through the coffee maker, so it was boiling hot and tasted like coffee. Yuck! A friend I was with just took it over to the sink, dumped it, and filled my glass from the tap. Oy vey.


Too funny! I find when you ask for warm water you either get cool water (water from tap with no ice) or hot water (straight out of the kettle and then sit for 30 secs). So I usually ask for hot water and then try to add some ice from my family’s water glasses. :)
And I have been off oxy for well over a year and I still prefer my water warm these days. I just got used to it and now it is my default.

Beth
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda
Nov 2017 CT scans show significant shrinkage in tumours
Feb 2018 CT continued shrinkage
May 2018 CT shrinkage and stable spots

Capri
Posts: 62
Joined: Thu Apr 19, 2018 5:59 pm

Re: Does anyone have a little drinky drink during chemo?

Postby Capri » Thu Jun 28, 2018 1:00 pm

My son is not a drinker; maybe a rare beer on occasion. Due to elevated liver enzymes on oxiliplatin, he definitely is not drinking any alcohol.
Mom to son 46 yo at Dx (2017)
9/17 rectal bleeding
12/17 colonoscopy sigmoid tumor; CT & MRI chest, abd,& pelvis clear; CEA normal
1/18 Robotic resection, Path: adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 Port placed; 2/26/18 Begins FOLFOX
6/18 On Early surveillance CT 2 liver hemangiomas, PET scan-nothing "lit up"
Neuropathy has started.
7/30/18 Completed 12 cycles of FOLFOX.

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GrouseMan
Posts: 750
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: Does anyone have a little drinky drink during chemo?

Postby GrouseMan » Fri Jun 29, 2018 4:24 pm

Our departed friend Voxx66 was a bar tender I believe, and used to have a few (maybe too many), and I believe another of our members was a pretty regular wine drinker though not to excess. My wife went from having a beer regularly to only an occasional glass of wine or sometimes Margarita or Bloody Mary. As others have said - don't deny yourself the little pleasures just do it in moderation. It might actually make it that much more enjoyable.

Regards,

GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017


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