Just diagnosed with rectal cancer and terrified

Please feel free to read, share your thoughts, your stories and connect with others!
hawkowl
Posts: 132
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

Re: Just diagnosed with rectal cancer and terrified

Postby hawkowl » Wed Jun 20, 2018 11:24 pm

Jlschueler wrote:Thank you all for your wonderful words of support! After talking with my doctors and getting scans out of the way, I am feeling calmer. I do have a question though:
I had a pet scan that came back clear (except for my tumor), no spread to other organs. Is it still possible I could be staged at a four? I know I’ll find out more later this week, and even more after surgery, but just wanted a general understanding of what a clear pet scan means in the bigger picture. Thank you!!!


A clear scan makes it a lot less likely that you would be stage IV
Dx 12/2014 T3N2MX (distant LPLN) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda, SBRT
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7, scans stable...
6/2020 5 years of normal CEA and stable scans
Now dealing with pyoderma gangrenosum.
Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Just diagnosed with rectal cancer and terrified

Postby Aqx99 » Fri Jun 22, 2018 11:27 am

Welcome to the club that nobody wants to join! I was 39 when I was diagnosed last year in February. You are in the right place for information and support. Feel free to ask anything you want. I'm an open book when it comes to my cancer journey.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 118 guests