The Colon Club

Does anyone know of stage 4 forums? Ive heard from a few stage 4 on here and would love to hear from more who are doing well.

Hi, I'm a stage 4 survivor having just celebrated my three year anniversary in February. I have been following your progress and been reading your posts. Did you recently have a petscan to examine your lungs? I know you have some metastases in your liver so I hope your treatment is starting or is going okay if you have already begun treatment.

Hello! Thank you for responding. I had my Pet scan a dew days ago and don't hear back until my appt next Tuesday. Quite a tough wait dir myself and family. Had a couple little meltdowns from fear. Will update once i know. Im so happy to hear you are on your 3 yr anniversary

I am also stage 4, one metastasis to the lungs that should be operated in two weeks. After the operation no more chemo is planned but only follows up. So far I am feeling very well and take one step at time. I live in Norway so protocols are a bit different there. My father had CRC when he was 64 and lived 10 years, did not die of cancer, he was incredibly strong during the whole treatment and I think this helps me to stay positive. I have two kids and got to give them a as normal life as possible. Keep us updated about your PET scan results.

Claudia

My wife is a stage four. She is about seven months NED now. We have scheduled her take down surgery in two weeks. Other than that we are dealing with some lymphadema in her right leg. Hoping for good results on the PET.

My husband is Stage 4 (diagnosed 2 years ago). He had 4 mets to the liver that were successfully surgically resected. A year later he had a recurrence of 1 met to the liver which was radiated. He has been NED since radiation (4 months ago). There are many options for Stage 4 patients, just keep pushing!

Thank you all!

I’m with you ! There are lots of stage 4 survivors doing great and it’s always nice to hear from them.

Stay positive !

My husband is stage 4, coming up on 3 years in August. He had the HAI pump a few months after diagnosis followed by a massive liver resection and ablation in May of 2016. Had a recurrence in July of 17 and Radiation on 4 mets in Dec '17. He is currently on a 2 month chemo break to wait and see what happens. Hoping nothing!

I am stage 4 with 17 liver mets. After a good response from folfox I'm able to have a 2 stage resection. The first went well April of this year. I scan on Sunday to determine if there was enough growth for the second surgery. In the beginning I was told I was unresectable but today its a different story. Just keep looking for answers, and always get another opinion if you feel the need. Hope all goes well for you

Stage four since 2010 and still here:) Signature provides details. And I just got results from a CT scan just today and still NED.

Keep fighting
N

Terrific news on the NED status!

I know how you feel about wanting to hear good news - that's how I felt in 2005.

See my signature - 13 years+ since Stage 4 diagnosis. NED since April 2009. Know that things can work out.

Please take care,