Postby Foggyocean » Tue Jun 12, 2018 9:45 am
Hi, I agree your sister should not give up! We are in Mass. too and my husband was at MGH (is that what you meant?). Once he had a liver recurrence, we sought a 2nd opinion with Dr. Kemeny at Memorial Sloan Kettering in NYC. If your sister is willing to travel, I would HIGHLY recommend she get a second opinion there. My husband received the HAI pump which delivers chemo directly to the liver. He is currently NED for the 2nd time. During active treatment we travelled to NYC once a month for treatment down there and were able to have his HAI pump and systemic chemo locally at Lahey in Burlington. (MGH doesn't have the staff or equipment to service the HAI pump). PM me with any questions. If your sister's doc is giving up, it sounds like she needs a new doctor!
45 year old caregiver to Husband
DX 3/16: 3cm Adenocarcinoma of sigmoid colon, Grade 2
4/16: colon resection; Stage IIIc (at diagnosis), 6/42 nodes, CEA: 11, MSS, KRAS
5/16: Baseline CT & MRI show 4 liver mets, CEA: 99
5/16-1/17: 4x FOLFOX, liver resect, 8x FOLFOX
8/17: 1 liver met, CEA 46.5
10/17: HAI pump; FUDR + Folfiri Oct-Mar '18 w/Dr. K @MSK
1/18: SBRT to liver met; CURRENTLY NED CEA < 1