12th cancer birthday on june 6

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helen098
Posts: 2001
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

12th cancer birthday on june 6

Postby helen098 » Mon Jun 11, 2018 3:42 pm

12 years ago I was told still drugged that “we got it all nothing else to do” everything will be fine.
Yea right, he was wrong
Till today I have bowel issues, pain, shocks and numbness in my hands and feet (now my insurance is making me and my doc jump through hoops for the methadone that makes the pain livable), balance issues and a general fear of dying every time I take a test.
I have this spot on my stomach (where the incision was) that is still numb, very weird when you have an itch adjacent and you scratch with no feeling.
Who could forget the pooping in my pants.

No one remember my birthday and I didn’t remind anyone, every time I started to post I was interrupted and maybe didn’t want to till now.
I think I just wanted to keep it to myself for a little while.
It is not one of the first few or a milestone number, I didn’t want to hear are you still thinking about that (yes) or have some phony sentimentality.
Only I truly know how hard it was for me, how it will probably be with me till the end but I did kicked it’s ass good.

Thanks for all of the support.
I hope I have been able to give back even a small percentage of the love and help I have found at the club.

I think the doc was right after all everything is fine.
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

Ron50
Posts: 665
Joined: Fri Feb 10, 2006 7:04 pm

Re: 12th cancer birthday on june 6

Postby Ron50 » Mon Jun 11, 2018 4:08 pm

Congratulations Helen on the twelve years and commiserations on what it has cost you to get that far. Surviving survival is not easy, Hugs Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

User avatar
CRguy
Posts: 9621
Joined: Sun Feb 10, 2008 6:00 pm

Re: 12th cancer birthday on june 6

Postby CRguy » Mon Jun 11, 2018 11:10 pm

Ron50 wrote:Congratulations Helen on the twelve years and commiserations on what it has cost you to get that far. Surviving survival is not easy, Hugs Ron.

TOTALLY agree with Ron here Helen .. and since you BOTH predate me on this very forum .....
CHEERS and double thumbs UP to homies and veterans, of what NONE of us should have ever had to endure ...
BUTT ... since we have endured .... congratulations !!!!

about the "cancer-versary" thing ....
I used to care more
NOW I don't and truth be told, I only post and "recall" any of my "-versaries"
when replying into a topic where other folks might find it helpful

NOT because I want to .... BUTT because others may find it helps THEM

so YES you have made a difference here with every post and recollection

NO it ain't always fun

BUTT together we ALL make it through to TOMORROW !!!!!

Love Peace and Harmony sista'
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 12th cancer birthday on june 6

Postby DarknessEmbraced » Tue Jun 12, 2018 7:31 am

Congratulations on 12 years!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

teachpdx
Posts: 613
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: 12th cancer birthday on june 6

Postby teachpdx » Tue Jun 12, 2018 12:14 pm

Helen, thank you for sharing. Surviving is such a difficult journey butt we are mostly thankful to be able to be on the journey.

I'm in my sixth year of and only just beginning to share my struggle with others - they often assume you're good to go after treatment...

Peace to you in your journey.
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

SteveNZ
Posts: 140
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: 12th cancer birthday on june 6

Postby SteveNZ » Tue Jun 12, 2018 4:35 pm

Wow! That is great.
It is so encouraging to hear.
All the best, Steve
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

thubler
Posts: 47
Joined: Tue Sep 27, 2016 9:22 am

Re: 12th cancer birthday on june 6

Postby thubler » Tue Jun 26, 2018 7:32 pm

Congrats! The “I kicked its ass good” comment made me smile! People like you who continue to overcome this disease is inspiring!
III b CC @ 35 yoa.
two primary tumors on ascending/transverse stage 1 and stage 3.
Lynch Positive
Resection 05/16
2/41 nodes +
FOLFOX 6/16-11/20/16
Clear Endoscopy and Colonoscopy 12/6/16, 02/13/18
CT 02/07/17 enlarged mesenteric node.
Clear PET 02/15/17
Stable CT 06/05/17,10/16/17,04/02/18
Deported 11/03/17

tater
Posts: 72
Joined: Wed Jul 19, 2017 5:53 pm

Re: 12th cancer birthday on june 6

Postby tater » Tue Jun 26, 2018 10:56 pm

Thank you for sharing, it helps us that are in the fight feel hope.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18


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