quarter size mass found in my 13 year old son, need advise.

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missie_gail
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Joined: Mon Jun 04, 2018 9:40 pm
Facebook Username: missier1

quarter size mass found in my 13 year old son, need advise.

Postby missie_gail » Mon Jun 04, 2018 10:03 pm

Hello all,
I am new to the forum, here's a little background. My 13 year old son Henry recently had an upper GI where they noticed that he had a filling defect in in large intestine. He was then given a lower GI where again it showed a filling defect in the Cecum. This brings us to today. He underwent a colonoscopy this morning, the results show a mass the size of a quarter, that seems to be well defined with a dimple in the middle.

Dr of course can not tell if it is cancer until the biopsies come back Wednesday or Thursday of this week. I know there is no way of completely knowing if it is or if it isn't until the biopsy comes in but I am going crazy. I have read that if it is flat it is bad, am I just grasping at straws?

Prayers for all who is fighting the good fight.

SteveNZ
Posts: 122
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: quarter size mass found in my 13 year old son, need advise.

Postby SteveNZ » Tue Jun 05, 2018 12:42 am

missie_gail wrote:Hello all,..........
Dr of course can not tell if it is cancer until the biopsies come back Wednesday or Thursday of this week. I know there is no way of completely knowing if it is or if it isn't until the biopsy comes in but I am going crazy. I have read that if it is flat it is bad, am I just grasping at straws?

Prayers for all who is fighting the good fight.

Hi Missie_Gail,
Please try to relax and be at peace. Forget about the '..if it is flat it is bad..' idea! I think I know where you are coming from but please that is like one 'symptom' that has to have every other test in place before it becomes meaningful. No one will know any final result until after all of the tests are in place.
I know what it is like to worry over a sick child.
Please keep in touch with what is up. Folk here really care.
Am praying for Henry and yourself.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

stu
Posts: 714
Joined: Sat Aug 17, 2013 5:46 pm

Re: quarter size mass found in my 13 year old son, need advise.

Postby stu » Tue Jun 05, 2018 2:04 am

Hi ,
I can totally understand why you are concerned and anxious . All I can say is in the nine years I have been here on behalf of my mum I have never seen this . It would be extremely rare, beyond rare.
Hopefully they will get those results back to you quickly and give you peace of mind .
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

NHMike
Posts: 1438
Joined: Fri Jul 21, 2017 3:43 am

Re: quarter size mass found in my 13 year old son, need advise.

Postby NHMike » Tue Jun 05, 2018 7:39 am

We have folks that come here with symptoms that they are worried about and there are a lot of things that people have that aren't necessarily GI cancer. They get a colonoscopy and biopsy if needed and know within a week.

GI cancers are usually quite slow-growing so a few days won't matter.

I do know how you feel, though, as I was worried with treatment delays when I was starting out and I do know what it is like when kids do have very scary health problems and you're waiting for results. It's awful stuff and I will say that worrying doesn't make it better but it's very hard not to worry.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

missie_gail
Posts: 4
Joined: Mon Jun 04, 2018 9:40 pm
Facebook Username: missier1

Re: quarter size mass found in my 13 year old son, need advise.

Postby missie_gail » Tue Jun 05, 2018 1:08 pm

Thanks everyone for your kind responses and words of encouragement, they are much appreciated. I will update once we receive biopsy results, hopefully tomorrow.

Continued prayers for all

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Shana
Posts: 380
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: quarter size mass found in my 13 year old son, need advise.

Postby Shana » Tue Jun 05, 2018 9:43 pm

Hoping this is some sort of anomaly and you get good news soon.

Prayers for your son and you, waiting is the hardest right now. Hang in there!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

hawkowl
Posts: 105
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

Re: quarter size mass found in my 13 year old son, need advise.

Postby hawkowl » Tue Jun 05, 2018 11:57 pm

Hoping that you hear good news!
Dx 12/2014 T3N2MX (iliac nodes) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7
10/2017 CEA remains in normal range (1.4), scans stable.
6/2018 CEA still normal.

Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

missie_gail
Posts: 4
Joined: Mon Jun 04, 2018 9:40 pm
Facebook Username: missier1

Re: quarter size mass found in my 13 year old son, need advise.

Postby missie_gail » Wed Jun 06, 2018 12:07 pm

Good News!

Results of biopsy indicate it is a Lymphoid hyperplasia and non cancerous. Praise God! He goes back in early September, for a follow-up.

NHMike
Posts: 1438
Joined: Fri Jul 21, 2017 3:43 am

Re: quarter size mass found in my 13 year old son, need advise.

Postby NHMike » Wed Jun 06, 2018 4:45 pm

Fantastic news. Hope you've given him a bunch of hugs!
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

SteveNZ
Posts: 122
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: quarter size mass found in my 13 year old son, need advise.

Postby SteveNZ » Wed Jun 06, 2018 5:14 pm

Great News. All the best sorting things out.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

missie_gail
Posts: 4
Joined: Mon Jun 04, 2018 9:40 pm
Facebook Username: missier1

Re: quarter size mass found in my 13 year old son, need advise.

Postby missie_gail » Wed Jun 06, 2018 7:40 pm

Yes many, many hugs and kisses have been given. :D
Dr. said Nodular Lymphoid Hyperplasia is fairly rare, but often times it will resolve by itself and no surgical procedure required. This is what were praying for now. Just knowing it is there and that it could result in a cancer is something I pray we don't have to live with. However, if we do, I am glad I found this group.

Again, I have to thank everyone for the kind words and support.

Continued prayers for all

User avatar
Shana
Posts: 380
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: quarter size mass found in my 13 year old son, need advise.

Postby Shana » Wed Jun 06, 2018 11:34 pm

Happy to hear your good news and it's great that you're aware of it and can monitor as needed.
So glad that you got that sigh of relief!

This is the greatest support group that no one wanted to join and the people here are the shining lights of hope and comfort
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

User avatar
Atoq
Posts: 266
Joined: Wed Oct 25, 2017 9:31 am

Re: quarter size mass found in my 13 year old son, need advise.

Postby Atoq » Thu Jun 07, 2018 12:31 am

I am really happy for the biopsy result! :D

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery


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