Reversal

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Atoq
Posts: 304
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Tue Jul 03, 2018 1:24 am

Another week has passed and now I am 4 weeks after reversal, I have started eating fruit without peeling it, peaches and apricots, blueberries. They made me a bit bloated but the GI tract is functioning even better. I have to start with probiotcs again because during VATS last week I got more IV antibiotics.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

User avatar
Atoq
Posts: 304
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Tue Jul 03, 2018 1:33 am

I am also doing the massage adviced by Anne Aqx99 when I go to sleep.

Atoq
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

NHMike
Posts: 1687
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Tue Jul 03, 2018 10:21 pm

Sounds like you're doing quite well, especially after your recent surgery. I'm going to have to save a bunch of these pages on my homepage. I keep accumulating too many bookmarks.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

Caat55
Posts: 513
Joined: Sat Dec 23, 2017 6:01 pm

Re: Reversal

Postby Caat55 » Tue Jul 03, 2018 11:08 pm

Wahoo summer deliciousness. So good to read how well you are doing.
Those special Norwegian strawberries are yummy.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

User avatar
Atoq
Posts: 304
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Wed Jul 04, 2018 2:57 pm

This Sunday we are leaving with dogs, cat and kids, driving to Italy. First stop in the Alps, then Venezia, Toscana and Alps again. Last stop to Legoland in Denmark.

5 weeks of vacation to relax and gather energy before work and school in August.

It will be a bit more expensive than usual, because we could not book in advance with the big question mark of life after reversal. And we added Venezia and Legoland to the usual vacation, which both are very expensive, but what can I say...now I am NED, until next scan...carpe diem! :mrgreen:

Atoq
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

SteveNZ
Posts: 140
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Reversal

Postby SteveNZ » Wed Jul 04, 2018 9:13 pm

Atoq wrote:This Sunday we are leaving with dogs, cat and kids, driving to Italy. ........... Last stop to Legoland in Denmark.

5 weeks of vacation to relax and gather energy before work and school in August.
Atoq

Have a wonderful time.
Legoland .... I am almost envious. Dogs, cat and kids ....now that requires medication...LOL (only joking) :D
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

Caat55
Posts: 513
Joined: Sat Dec 23, 2017 6:01 pm

Re: Reversal

Postby Caat55 » Thu Jul 05, 2018 5:41 pm

Enjoy your travels, Legoland is so cool and being home in Italy.
I can't wait for a long trip.

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

NHMike
Posts: 1687
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Thu Jul 05, 2018 8:40 pm

Atoq wrote:This Sunday we are leaving with dogs, cat and kids, driving to Italy. First stop in the Alps, then Venezia, Toscana and Alps again. Last stop to Legoland in Denmark.

5 weeks of vacation to relax and gather energy before work and school in August.

It will be a bit more expensive than usual, because we could not book in advance with the big question mark of life after reversal. And we added Venezia and Legoland to the usual vacation, which both are very expensive, but what can I say...now I am NED, until next scan...carpe diem! :mrgreen:

Atoq


That sounds grand.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal


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