Reversal

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LittleG
Posts: 8
Joined: Tue May 08, 2018 4:25 am

Re: Reversal

Postby LittleG » Wed Jun 06, 2018 1:54 am

Atoq wrote:It looks like they are ready to send me home, things are going through the system, but I am still very careful with what I eat. The pain from the stomy site is very little.

Claudia


Good luck at home. I was expecting one thing and ended up with the opposite so it's certainly challenging to manage! I still don't know what helps and doesn't! It's quite a struggle. But bit by bit some things improve so got to take those wins.

Caat55
Posts: 528
Joined: Sat Dec 23, 2017 6:01 pm

Re: Reversal

Postby Caat55 » Wed Jun 06, 2018 4:00 am

Wow Claudia. Hope things continue to go well. Your healing is prpbablt good cause you've been off chemo for quite a while.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

NHMike
Posts: 1723
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Wed Jun 06, 2018 7:09 am

Only two nights in the hospital? I do hope that you share details of the hospital stay when you back and have time as that's me in four months. It sounds like you represent the part of the curve that had a fast recovery.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

heiders33
Posts: 288
Joined: Sat Nov 04, 2017 11:08 am

Re: Reversal

Postby heiders33 » Wed Jun 06, 2018 7:23 am

I also spent two nights in the hospital. I felt good enough to do a ton of walking and that helped move things along. I hope you don’t have much pain!
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, KRAS G12A
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR with loop ileostomy
October 2017 - February 2018: XELOX six rounds
March 2018: reversal
April 2018: CEA 2.1, all blood counts normal
May 2018: CT scan showed liver spot
August 2018: Abnormal PET, CEA 2.4
September 2018: liver resection with HAI pump
October 2018: Clear CT and colonoscopy

User avatar
Atoq
Posts: 314
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Wed Jun 06, 2018 8:13 am

NHMike wrote:Only two nights in the hospital? I do hope that you share details of the hospital stay when you back and have time as that's me in four months. It sounds like you represent the part of the curve that had a fast recovery.

The recovery at the hospital went smoothly. I woke up after two hours from anestesia and had a bit of painkiller IV because of pain in the stomy area. After that I managed with only paracetamol, first IV and then as tablets. I also did not experience nausea or abdominal pain. The first day I ate only a tomato soup and orange juce. The second day ate some toasted bread with cheese, cucumber and tomatoes. The tomato soup went through after few hours and then I have been passing more soft stool, including some coagulated blood. The sphincters are doing their job, but it is only day 3 :)
At the hospital they just told me to eat light and small meals, not much fruit and veggies because of gas formation. They did not prescribe any medicament. Will keep you updated. :D

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

LittleG
Posts: 8
Joined: Tue May 08, 2018 4:25 am

Re: Reversal

Postby LittleG » Thu Jun 07, 2018 8:54 am

NHMike wrote:Only two nights in the hospital? I do hope that you share details of the hospital stay when you back and have time as that's me in four months. It sounds like you represent the part of the curve that had a fast recovery.


Just for another perspective Mike. I ended up having a longer surgery where they opened me up due to scar tissue (nothing too serious, just a longer incision from my belly button horizontally to an inch past where the stoma site was) and didn't have a bowel motion on a liquid food diet for 3 days and then after starting solids i didn't have one for another day and a half so ended up spending 5 nights in hospital. And when I eventually went the motion was pretty solid. So nothing went the way I was expecting it to happen. And to be honest I'm the 6 weeks since nothing has been as expected.

NHMike
Posts: 1723
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Thu Jun 07, 2018 12:18 pm

Sounds like it varies widely from person to person. I guess I'll plan for the worst and hope for the best.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

User avatar
Atoq
Posts: 314
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Thu Jun 07, 2018 3:08 pm

NHMike wrote:Sounds like it varies widely from person to person. I guess I'll plan for the worst and hope for the best.

That’s what I am also doing :D Today I was at work all day and ate some bread and two boiled eggs, a few salad and cucumber slices (had to manage with the food they sell here at work). For dinner I made whole grain pasta with blueshells and a glass of red wine (Villa Antinori 2014) :mrgreen: . I am drinking a lot of herbs tea to keep hydrated.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

NHMike
Posts: 1723
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Thu Jun 07, 2018 3:11 pm

Atoq wrote:
NHMike wrote:Sounds like it varies widely from person to person. I guess I'll plan for the worst and hope for the best.

That’s what I am also doing :D Today I was at work all day and ate some bread and two boiled eggs, a few salad and cucumber slices (had to manage with the food they sell here at work). For dinner I made whole grain pasta with blueshells and a glass of red wine (Villa Antinori 2014) :mrgreen: . I am drinking a lot of herbs tea to keep hydrated.

Claudia


And no problems? I hope that I'm not being too graphic with my questions.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

User avatar
Atoq
Posts: 314
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Thu Jun 07, 2018 3:30 pm

NHMike wrote:
And no problems? I hope that I'm not being too graphic with my questions.


No problem :lol: Everything is still under control, I even ate a few pistaches to try my luck :wink:
The thing is, I know I have to eat small meals and light, avoid fibers, but I don’t feel sick at all, today I did 17700 steps, and I am hungry :D I really hope I skip my usual post surgery trip to the Emergency room this time!

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

NHMike
Posts: 1723
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Thu Jun 07, 2018 3:59 pm

Atoq wrote:
NHMike wrote:
And no problems? I hope that I'm not being too graphic with my questions.


No problem :lol: Everything is still under control, I even ate a few pistaches to try my luck :wink:
The thing is, I know I have to eat small meals and light, avoid fibers, but I don’t feel sick at all, today I did 17700 steps, and I am hungry :D I really hope I skip my usual post surgery trip to the Emergency room this time!

Claudia


A couple of heavy-duty walkers here.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

SteveNZ
Posts: 140
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Reversal

Postby SteveNZ » Thu Jun 07, 2018 5:16 pm

Glad to hear you are going so well. :D :D
Wonderful news..
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

crikklekay
Posts: 57
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: Reversal

Postby crikklekay » Fri Jun 08, 2018 9:24 am

Thanks for sharing your experience, my husband will hopefully be getting his reversal in a couple of months and we've both been a little nervous and not sure what to expect.
Caring for DH John, 41
DX: Colon Cancer, Sigmoid colon
Tumor type: Adenocarcinoma
Tumor grade: G2, Moderately differentiated w/invasion of visceral peritoneum
Stage IIIC
Positive lymph nodes: 6/22
Chemotherapy: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/ MSSA infected port, PICC line inserted, abdominal CT scan clear chest CT scan showed septic emboli & blood clots
03/18 Hospital w/ CDIFF
04/18 Chest CT scan clear
06/18 Colonoscopy Clear
08/18 CT Scan Clear, NEMD

User avatar
Atoq
Posts: 314
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Fri Jun 08, 2018 2:47 pm

Do I need to be more graphic or is it enough with this :mrgreen: ?

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

justin case
Posts: 4214
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Reversal

Postby justin case » Fri Jun 08, 2018 7:33 pm

heiders33 wrote:Good luck with the reversal! Be sure to have some diapers and calmoseptine ointment on hand just in case.

Heard my name mentioned ! I had the BAG for 3 weeks, it was the worst of all the treatments for me . Seriuosly, it will be a trip without it, but I really hated that thing. Look on the bright side, f you had one, and no longer need it, the possibilities of rectal cancer are very unlikely !

justin case
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012


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