Reversal

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LittleG
Posts: 8
Joined: Tue May 08, 2018 4:25 am

Re: Reversal

Postby LittleG » Wed Jun 06, 2018 1:54 am

Atoq wrote:It looks like they are ready to send me home, things are going through the system, but I am still very careful with what I eat. The pain from the stomy site is very little.

Claudia


Good luck at home. I was expecting one thing and ended up with the opposite so it's certainly challenging to manage! I still don't know what helps and doesn't! It's quite a struggle. But bit by bit some things improve so got to take those wins.

Caat55
Posts: 694
Joined: Sat Dec 23, 2017 6:01 pm

Re: Reversal

Postby Caat55 » Wed Jun 06, 2018 4:00 am

Wow Claudia. Hope things continue to go well. Your healing is prpbablt good cause you've been off chemo for quite a while.
Susan
Do at 55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19, 5/20

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Wed Jun 06, 2018 7:09 am

Only two nights in the hospital? I do hope that you share details of the hospital stay when you back and have time as that's me in four months. It sounds like you represent the part of the curve that had a fast recovery.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

heiders33
Posts: 363
Joined: Sat Nov 04, 2017 11:08 am

Re: Reversal

Postby heiders33 » Wed Jun 06, 2018 7:23 am

I also spent two nights in the hospital. I felt good enough to do a ton of walking and that helped move things along. I hope you don’t have much pain!
40 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy, CAPOX six rounds
3/18: reversal
9/18: liver met, resection/HAI pump, 11 rounds 5FU, 1 round FUDR
11/19 - local recurrence, brachytherapy, 3 weeks targeted radiation
12/21 - end colostomy

User avatar
Atoq
Posts: 412
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Wed Jun 06, 2018 8:13 am

NHMike wrote:Only two nights in the hospital? I do hope that you share details of the hospital stay when you back and have time as that's me in four months. It sounds like you represent the part of the curve that had a fast recovery.

The recovery at the hospital went smoothly. I woke up after two hours from anestesia and had a bit of painkiller IV because of pain in the stomy area. After that I managed with only paracetamol, first IV and then as tablets. I also did not experience nausea or abdominal pain. The first day I ate only a tomato soup and orange juce. The second day ate some toasted bread with cheese, cucumber and tomatoes. The tomato soup went through after few hours and then I have been passing more soft stool, including some coagulated blood. The sphincters are doing their job, but it is only day 3 :)
At the hospital they just told me to eat light and small meals, not much fruit and veggies because of gas formation. They did not prescribe any medicament. Will keep you updated. :D

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED

LittleG
Posts: 8
Joined: Tue May 08, 2018 4:25 am

Re: Reversal

Postby LittleG » Thu Jun 07, 2018 8:54 am

NHMike wrote:Only two nights in the hospital? I do hope that you share details of the hospital stay when you back and have time as that's me in four months. It sounds like you represent the part of the curve that had a fast recovery.


Just for another perspective Mike. I ended up having a longer surgery where they opened me up due to scar tissue (nothing too serious, just a longer incision from my belly button horizontally to an inch past where the stoma site was) and didn't have a bowel motion on a liquid food diet for 3 days and then after starting solids i didn't have one for another day and a half so ended up spending 5 nights in hospital. And when I eventually went the motion was pretty solid. So nothing went the way I was expecting it to happen. And to be honest I'm the 6 weeks since nothing has been as expected.

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Thu Jun 07, 2018 12:18 pm

Sounds like it varies widely from person to person. I guess I'll plan for the worst and hope for the best.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Atoq
Posts: 412
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Thu Jun 07, 2018 3:08 pm

NHMike wrote:Sounds like it varies widely from person to person. I guess I'll plan for the worst and hope for the best.

That’s what I am also doing :D Today I was at work all day and ate some bread and two boiled eggs, a few salad and cucumber slices (had to manage with the food they sell here at work). For dinner I made whole grain pasta with blueshells and a glass of red wine (Villa Antinori 2014) :mrgreen: . I am drinking a lot of herbs tea to keep hydrated.

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Thu Jun 07, 2018 3:11 pm

Atoq wrote:
NHMike wrote:Sounds like it varies widely from person to person. I guess I'll plan for the worst and hope for the best.

That’s what I am also doing :D Today I was at work all day and ate some bread and two boiled eggs, a few salad and cucumber slices (had to manage with the food they sell here at work). For dinner I made whole grain pasta with blueshells and a glass of red wine (Villa Antinori 2014) :mrgreen: . I am drinking a lot of herbs tea to keep hydrated.

Claudia


And no problems? I hope that I'm not being too graphic with my questions.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Atoq
Posts: 412
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Thu Jun 07, 2018 3:30 pm

NHMike wrote:
And no problems? I hope that I'm not being too graphic with my questions.


No problem :lol: Everything is still under control, I even ate a few pistaches to try my luck :wink:
The thing is, I know I have to eat small meals and light, avoid fibers, but I don’t feel sick at all, today I did 17700 steps, and I am hungry :D I really hope I skip my usual post surgery trip to the Emergency room this time!

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Thu Jun 07, 2018 3:59 pm

Atoq wrote:
NHMike wrote:
And no problems? I hope that I'm not being too graphic with my questions.


No problem :lol: Everything is still under control, I even ate a few pistaches to try my luck :wink:
The thing is, I know I have to eat small meals and light, avoid fibers, but I don’t feel sick at all, today I did 17700 steps, and I am hungry :D I really hope I skip my usual post surgery trip to the Emergency room this time!

Claudia


A couple of heavy-duty walkers here.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Reversal

Postby SteveNZ » Thu Jun 07, 2018 5:16 pm

Glad to hear you are going so well. :D :D
Wonderful news..
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

crikklekay
Posts: 142
Joined: Thu Feb 15, 2018 9:47 am
Location: Richmond, VA

Re: Reversal

Postby crikklekay » Fri Jun 08, 2018 9:24 am

Thanks for sharing your experience, my husband will hopefully be getting his reversal in a couple of months and we've both been a little nervous and not sure what to expect.
Caring for DH John
Stage IIIC, Lymph nodes: 6/22
Chemo: FOLFOX (6)
12/17 ER and emergency surgery
02/18 Hospital w/MSSA infected port, PICC line inserted, chest CT scan showed septic emboli & blood clots
03/18 Hospital w/CDIFF
08/18 CT Scan Clear, NEMD
2018/2019/2021 Colonoscopy Clear
2019/2020/2021/2022 CT Scan Clear
2021 PET scan & MRI show one spot on liver
08/21 Liver surgery to remove spot, confirmed mCRC. Now Stage IV
09/21 Start Folfiri + Avastin
03/22 CEA Rise, continuing chemo

User avatar
Atoq
Posts: 412
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Fri Jun 08, 2018 2:47 pm

Do I need to be more graphic or is it enough with this :mrgreen: ?

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Reversal

Postby justin case » Fri Jun 08, 2018 7:33 pm

heiders33 wrote:Good luck with the reversal! Be sure to have some diapers and calmoseptine ointment on hand just in case.

Heard my name mentioned ! I had the BAG for 3 weeks, it was the worst of all the treatments for me . Seriuosly, it will be a trip without it, but I really hated that thing. Look on the bright side, f you had one, and no longer need it, the possibilities of rectal cancer are very unlikely !

justin case
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012


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