Reversal

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LittleG
Posts: 8
Joined: Tue May 08, 2018 4:25 am

Re: Reversal

Postby LittleG » Sat Jun 09, 2018 3:06 am

NHMike wrote:That was fast. I was looking at the timestamps and you must be way ahead of us.

I hope things go really well. I'm impressed that you posted the same day after your surgery.


If you want more details from my reversal (I'm 6 weeks out) then PM me. You seem to like more info and perspectives than less.

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Atoq
Posts: 317
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Tue Jun 12, 2018 1:17 pm

A little update: after a week things are going better and better, no urgency and no problems at all. I have started eating salad and other veggies in small pieces, still avoiding fruit I think, but pistaches were ok.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

NHMike
Posts: 1729
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Tue Jun 12, 2018 8:16 pm

Atoq wrote:A little update: after a week things are going better and better, no urgency and no problems at all. I have started eating salad and other veggies in small pieces, still avoiding fruit I think, but pistaches were ok.

Claudia


You've had one of the smoothest reversals that I've read about.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

SteveNZ
Posts: 142
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Reversal

Postby SteveNZ » Wed Jun 13, 2018 4:34 am

I agree.
Your story is almost amazing and is great to hear.
I wonder how much is due to your healthy/active state of mind and lifestyle? I mean this as a compliment to your character which is always looking at the best outcome!?
thanks for that.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

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Atoq
Posts: 317
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Wed Jun 13, 2018 10:35 am

SteveNZ wrote:I agree.
Your story is almost amazing and is great to hear.
I wonder how much is due to your healthy/active state of mind and lifestyle? I mean this as a compliment to your character which is always looking at the best outcome!?
thanks for that.

Maybe I see the glass half full, and I got used to some discomfort after all the treatments, but I was really expecting a much more difficult transition. :D

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

User avatar
susie0915
Posts: 847
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Reversal

Postby susie0915 » Wed Jun 13, 2018 11:18 am

I'm so glad you are doing so well. Reversals are so unpredictable, but you seem to be really having a smooth transition. This is great to hear.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Caat55
Posts: 528
Joined: Sat Dec 23, 2017 6:01 pm

Re: Reversal

Postby Caat55 » Wed Jun 13, 2018 11:28 am

Sounds like your cup is more than half full :)
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

User avatar
Atoq
Posts: 317
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Wed Jun 13, 2018 4:16 pm

To prepare myself for reversal I also did two small enemas (120 ml) the week before to clean the colon from mucus and get it used to adsorb water. I read a doctor who advised to do it several weeks in a row before surgery. I also noticed that the capsules with probiotics that I started taking after surgery (not earlier because I got IV antibiotics during surgery) contain a bit of psyllium which might also help.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

User avatar
Atoq
Posts: 317
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Tue Jun 19, 2018 9:21 am

Two weeks since reversal and everything is fine, today I removed the one external stitch since the stomy hole is almost completely closed. New surgery in a week. Today I also did an ultrasound of the urine bladder and no more residual.

Atoq
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

NHMike
Posts: 1729
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Tue Jun 19, 2018 9:25 am

Atoq wrote:Two weeks since reversal and everything is fine, today I removed the one external stitch since the stomy hole is almost completely closed. New surgery in a week. Today I also did an ultrasound of the urine bladder and no more residual.

Atoq


What's the new surgery in a week?
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

User avatar
Atoq
Posts: 317
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Tue Jun 19, 2018 9:42 am

NHMike wrote:
What's the new surgery in a week?


They are removing one metastasis from my left lung, hopefully endoscopically.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

tater
Posts: 72
Joined: Wed Jul 19, 2017 5:53 pm

Re: Reversal

Postby tater » Tue Jun 19, 2018 10:17 am

Good luck with the lung surgery. Your take down surgery is giving my wife some hope. We are one week out from her surgery.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18

Caat55
Posts: 528
Joined: Sat Dec 23, 2017 6:01 pm

Re: Reversal

Postby Caat55 » Tue Jun 19, 2018 10:56 am

You are a role model. Good luck and enjoy summer and the extra dlight, got to be good for health and healing.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

User avatar
Atoq
Posts: 317
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Tue Jun 19, 2018 11:06 am

tater wrote:Good luck with the lung surgery. Your take down surgery is giving my wife some hope. We are one week out from her surgery.

Thanks! Good luck with your wife’s reversal!

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

User avatar
Atoq
Posts: 317
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Tue Jun 19, 2018 11:08 am

Caat55 wrote:You are a role model. Good luck and enjoy summer and the extra dlight, got to be good for health and healing.
Susan

Thanks Susan! I hope we will be able to drive to Italy to get even more light (like in my profile picture, just perhaps no bikini this time :lol: ).

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6


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