Reversal

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LittleG
Posts: 6
Joined: Tue May 08, 2018 4:25 am

Re: Reversal

Postby LittleG » Sat Jun 09, 2018 3:06 am

NHMike wrote:That was fast. I was looking at the timestamps and you must be way ahead of us.

I hope things go really well. I'm impressed that you posted the same day after your surgery.


If you want more details from my reversal (I'm 6 weeks out) then PM me. You seem to like more info and perspectives than less.

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Atoq
Posts: 225
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Tue Jun 12, 2018 1:17 pm

A little update: after a week things are going better and better, no urgency and no problems at all. I have started eating salad and other veggies in small pieces, still avoiding fruit I think, but pistaches were ok.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 VATS surgery scheduled

NHMike
Posts: 1332
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal

Postby NHMike » Tue Jun 12, 2018 8:16 pm

Atoq wrote:A little update: after a week things are going better and better, no urgency and no problems at all. I have started eating salad and other veggies in small pieces, still avoiding fruit I think, but pistaches were ok.

Claudia


You've had one of the smoothest reversals that I've read about.
6/23/17: ER rectal bleeding; Colonoscopy
7/13: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/31-9/8: Xeloda 3,400 mg/day+radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/6: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/30: LAR, Temp Ileostomy, Path Complete Response
12/20: Started CapeOx

SteveNZ
Posts: 97
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Reversal

Postby SteveNZ » Wed Jun 13, 2018 4:34 am

I agree.
Your story is almost amazing and is great to hear.
I wonder how much is due to your healthy/active state of mind and lifestyle? I mean this as a compliment to your character which is always looking at the best outcome!?
thanks for that.
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

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Atoq
Posts: 225
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Wed Jun 13, 2018 10:35 am

SteveNZ wrote:I agree.
Your story is almost amazing and is great to hear.
I wonder how much is due to your healthy/active state of mind and lifestyle? I mean this as a compliment to your character which is always looking at the best outcome!?
thanks for that.

Maybe I see the glass half full, and I got used to some discomfort after all the treatments, but I was really expecting a much more difficult transition. :D

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 VATS surgery scheduled

User avatar
susie0915
Posts: 772
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Reversal

Postby susie0915 » Wed Jun 13, 2018 11:18 am

I'm so glad you are doing so well. Reversals are so unpredictable, but you seem to be really having a smooth transition. This is great to hear.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Caat55
Posts: 385
Joined: Sat Dec 23, 2017 6:01 pm

Re: Reversal

Postby Caat55 » Wed Jun 13, 2018 11:28 am

Sounds like your cup is more than half full :)
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18

User avatar
Atoq
Posts: 225
Joined: Wed Oct 25, 2017 9:31 am

Re: Reversal

Postby Atoq » Wed Jun 13, 2018 4:16 pm

To prepare myself for reversal I also did two small enemas (120 ml) the week before to clean the colon from mucus and get it used to adsorb water. I read a doctor who advised to do it several weeks in a row before surgery. I also noticed that the capsules with probiotics that I started taking after surgery (not earlier because I got IV antibiotics during surgery) contain a bit of psyllium which might also help.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 VATS surgery scheduled


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