MissMolly wrote:Is home/outpatient Palliative Care available through your hospital system?
Robino1 wrote:I have ascites in my abdomen. They can drain it to relieve the pressure. Right now I'm controlling how much is manufactured by the cancer by wearing a girdle 24/7. Even sleeping in it.
It was suggested by my surgeon. It truly does help. I still get uncomfortable when I eat too much but I can snack all day long along with smaller meals.
Before draining and wearing the girdle, it was very painful if I stood too long or went for walks.
Restricting the belly from expanding keeps the liquid from building up.
Sara!!!! wrote:Robino1 wrote:I have ascites in my abdomen. They can drain it to relieve the pressure. Right now I'm controlling how much is manufactured by the cancer by wearing a girdle 24/7. Even sleeping in it.
It was suggested by my surgeon. It truly does help. I still get uncomfortable when I eat too much but I can snack all day long along with smaller meals.
Before draining and wearing the girdle, it was very painful if I stood too long or went for walks.
Restricting the belly from expanding keeps the liquid from building up.
Hey robino . How much ascites do u have? What symptoms does it cause?
mhf1986 wrote:Hey RObin,
We asked DH's oncologist the same question...why not drain? The response was to see if Vectabix does its job (so far it's been doing something because his belly is shrinking and the liver function tests are improving) and then maybe do some diurectics later. I've also read that the pockets have to be big enough to drain in and a good location.
And since DH is no longer on Avastin, he was also able to discontinue the blood pressure meds. Those meds can cause fluid build up too.
Risto, did you try Ativan for nausea?
M
risto wrote:I suggested the girdle to my DW and she looked shocked... her abdomen is too tender and painful to put pressure on it like that. She tried compression stockings but that made the fluid all go up to her abdomen which she found to be worse than just having the swollen legs.
She has been vomiting a lot of green liquid and now she is down by 10 pounds. Hopefully that's the FOLFOX doing its job but what an unpleasant way to go about it!
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