Colon cancer screening at 45 - New guidelines

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radnyc
Posts: 296
Joined: Tue Apr 06, 2010 6:32 pm

Colon cancer screening at 45 - New guidelines

Postby radnyc » Wed May 30, 2018 11:27 am

https://www.cnn.com/2018/05/30/health/c ... index.html

At 45 I told my doctor a few times about my chronic constipation, she suggested fiber and prune juice. Had she recommended a colonoscopy I would not have ended up with stage 4 cancer. Oh, well, I hope people heed this new advice, it’ll save lives and spare many of a lot stress and pain.
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

Lee
Posts: 5621
Joined: Sun Apr 16, 2006 4:09 pm

Re: Colon cancer screening at 45 - New guidelines

Postby Lee » Wed May 30, 2018 11:37 am

This is good news! When I was diagnosed, the GI doc said it was only a matter of time before they dropped the recommend age to 40 due to an increase of people being diagnosed in their 40's. 45 is a start in the right direction.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

tater
Posts: 63
Joined: Wed Jul 19, 2017 5:53 pm

Re: Colon cancer screening at 45 - New guidelines

Postby tater » Wed May 30, 2018 3:28 pm

this is for sure a step in the right direction. Had only my wife been scoped two years earlier when we first noticed issues and got told hemorrhoids, IBS, Celiac, etc. maybe she would have not been stage four.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
CEA 1.5 12/30/17, 2.1 2/5/18
Clear CT and MRI on 2/5/2018

Tdubz
Posts: 122
Joined: Sun May 07, 2017 11:01 am

Re: Colon cancer screening at 45 - New guidelines

Postby Tdubz » Wed May 30, 2018 4:50 pm

Definitely a step in the right direction, but needs to be 30 or 35. What would really help is educating the doctors that it’s ok to send someone in their 20’s or 30’s to get a colonoscopy. I’ve read countless stories exactly like mine where we go to the doctor describing our symptoms and the doctor puts it off as something else because we are “too young” to have colon cancer. I was finally diagnosed at 36 but had symptoms for around 10 years prior to that and was always told it was ibs.

benben
Posts: 285
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Colon cancer screening at 45 - New guidelines

Postby benben » Wed May 30, 2018 5:50 pm

Tdubz wrote:Definitely a step in the right direction, but needs to be 30 or 35. What would really help is educating the doctors that it’s ok to send someone in their 20’s or 30’s to get a colonoscopy. I’ve read countless stories exactly like mine where we go to the doctor describing our symptoms and the doctor puts it off as something else because we are “too young” to have colon cancer. I was finally diagnosed at 36 but had symptoms for around 10 years prior to that and was always told it was ibs.


Totally agree with you Tdubz. I started experiencing bleeding at around 29. "Too young" or "Most likely hemorrhoids or fissure" were the statements I received from multiple GI Docs, until at 44 I finally demanded a scope. Bleeding should automatically trigger a scope in my opinion regardless of age.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
Granix given, Now Zarxio treatments every session.
Treatment 7 reduced to 75% OXI
Treatment 8-12 - NO OXI, just Luke and 5FU
10/20/17 CT-SCAN - CLEAR! - NED
3/18 Scope - Clean
7/18 CT-Scan - Clear, but CEA 4.6 :(

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horizon
Posts: 1473
Joined: Tue Apr 12, 2011 10:10 pm

Re: Colon cancer screening at 45 - New guidelines

Postby horizon » Wed May 30, 2018 7:36 pm

Tdubz wrote:Definitely a step in the right direction, but needs to be 30 or 35. What would really help is educating the doctors that it’s ok to send someone in their 20’s or 30’s to get a colonoscopy. I’ve read countless stories exactly like mine where we go to the doctor describing our symptoms and the doctor puts it off as something else because we are “too young” to have colon cancer. I was finally diagnosed at 36 but had symptoms for around 10 years prior to that and was always told it was ibs.



Yep, add me to the list. So frustrating to think about.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 7 years NED). Is this real life?

Ksiemonsma
Posts: 9
Joined: Sun Aug 27, 2017 11:16 pm

Re: Colon cancer screening at 45 - New guidelines

Postby Ksiemonsma » Wed May 30, 2018 7:59 pm

Spent two years fighting doctors, really wish they would have checked me sooner. I’m so glad it’s changing and my kids can get checked sooner.
Colon cancer 7/17 age 49
Colectomy 8/17
Stage 3C T4B N2B MO
16/27 lymph nodes
First round of FOLFOX on 9/13/17
3/7/18. 12th round and hopefully last of FOLFOX (9 with oxi)
Clear scans 6/7/18

heiders33
Posts: 250
Joined: Sat Nov 04, 2017 11:08 am

Re: Colon cancer screening at 45 - New guidelines

Postby heiders33 » Wed May 30, 2018 8:02 pm

I had the same experience. Spent almost a year experiencing bleeding while I was treated for internal hemorrhoids and told I didn't need a colonoscopy by one GI doc. Finally his partner in the practice agreed to do it. So glad for this new recommendation.
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, no genetic mutations
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: six rounds of mop-up XELOX
March 12, 2018: reversal
April 16, 2018: CEA 2.1, all blood counts within normal ranges
May 2018: CT scan showed liver spot, MRI inconclusive
August 2018: PET abnormal, liver enzymes normal, CEA 2.4

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O Stoma Mia
Posts: 1364
Joined: Sat Jun 22, 2013 6:29 am
Location: Traveling abroad

Re: Colon cancer screening at 45 - New guidelines

Postby O Stoma Mia » Thu May 31, 2018 2:00 am

radnyc wrote:https://www.cnn.com/2018/05/30/health/colon-rectal-cancer-screening-guidelines-study/index.html

At 45 I told my doctor a few times about my chronic constipation, she suggested fiber and prune juice. Had she recommended a colonoscopy I would not have ended up with stage 4 cancer. Oh, well, I hope people heed this new advice, it’ll save lives and spare many of a lot stress and pain.

AI -

Thanks for posting this, and thanks for sharing your personal reflections.

BTW, do you know anyone in NYC who attended the recent EAO-CRC summit conference there? Do you have any information on any published conference proceedings or podcasts of conference sessions?

erins
Posts: 19
Joined: Sun May 27, 2018 12:41 pm

Re: Colon cancer screening at 45 - New guidelines

Postby erins » Thu May 31, 2018 8:41 am

Tdubz wrote:Definitely a step in the right direction, but needs to be 30 or 35. What would really help is educating the doctors that it’s ok to send someone in their 20’s or 30’s to get a colonoscopy. I’ve read countless stories exactly like mine where we go to the doctor describing our symptoms and the doctor puts it off as something else because we are “too young” to have colon cancer. I was finally diagnosed at 36 but had symptoms for around 10 years prior to that and was always told it was ibs.

I was lucky—the doctor I saw at urgent care told me to get a colonoscopy ‘just to be sure’ and gave a list of GIs. She even called me a day later to make sure I was getting follow up. My other doctors have admitted they’d likely have assumed hemerroids. This change is a good start but it really should be the standard for anyone with GI bleeding.
38 yr old female
Rectal bleeding for 1 month—>
5/4/18 colonoscopy found mass in sigmoid colon
5/21/18 LAR
stage 2a, 0/17 lymph, clean margins
T3N0M0 G1
LVI neg, PNI neg, MSS

lovelife789
Posts: 106
Joined: Thu Aug 24, 2017 5:28 am

Re: Colon cancer screening at 45 - New guidelines

Postby lovelife789 » Thu May 31, 2018 10:00 am

Tdubz wrote:Definitely a step in the right direction, but needs to be 30 or 35. What would really help is educating the doctors that it’s ok to send someone in their 20’s or 30’s to get a colonoscopy. I’ve read countless stories exactly like mine where we go to the doctor describing our symptoms and the doctor puts it off as something else because we are “too young” to have colon cancer. I was finally diagnosed at 36 but had symptoms for around 10 years prior to that and was always told it was ibs.



Totally my story here!!!! I got ALL the tests done EXCEPT colonoscopy... Even MRI (without covering the colon part coz it was unlikely I would have anything wrong with my colon at my age).
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that has always been there grew from 5mm to 8mm - CEA 1.0
Aug - VATs scheduled

lovelife789
Posts: 106
Joined: Thu Aug 24, 2017 5:28 am

Re: Colon cancer screening at 45 - New guidelines

Postby lovelife789 » Thu May 31, 2018 10:04 am

horizon wrote:
Tdubz wrote:Definitely a step in the right direction, but needs to be 30 or 35. What would really help is educating the doctors that it’s ok to send someone in their 20’s or 30’s to get a colonoscopy. I’ve read countless stories exactly like mine where we go to the doctor describing our symptoms and the doctor puts it off as something else because we are “too young” to have colon cancer. I was finally diagnosed at 36 but had symptoms for around 10 years prior to that and was always told it was ibs.



Yep, add me to the list. So frustrating to think about.


Yeah Everytime I think about it, it got me really frustrated. People say the should haves would haves whatever, but no! Colonoscopy is really life-saving as early stage colon cancer and stage 4 is a world of difference!!!
F/38 - Dx 8 Mar 17, CEA 80.5
Stage IV Sig. Colon, 6 Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Moderately differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - Clear PET SCAN - CEA 1.4
3/18 - Clear MRI - CEA 0.8
6/30 - PET SCAN showed a lung nodule that has always been there grew from 5mm to 8mm - CEA 1.0
Aug - VATs scheduled

henry123
Posts: 120
Joined: Sun Oct 08, 2017 3:25 am

Re: Colon cancer screening at 45 - New guidelines

Postby henry123 » Sun Jun 10, 2018 9:46 am

Definitely step in the right direction.
Agree with posters that it should be in 30s.
I think reason could be increased sedentary lifestyle due to gadgets alongwith western diet.
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear
8/18 1.3
NED
Vegan yoga juicing apricot

Rikimaroo
Posts: 132
Joined: Tue Dec 20, 2016 8:48 pm

Re: Colon cancer screening at 45 - New guidelines

Postby Rikimaroo » Sun Jun 10, 2018 6:16 pm

My story is different even know my GI said its probably hemorrhoids at 38, he still said lets do a colonoscopy. Guess it varies with Doctor's office. I think the age should be 30. A lot of people don't believe in colonoscopies though. Especially people from other countries, like South America, etc...
Diagnosed at 38 y/o male, 3 kids 7,9,14 - Now 39.
RC T3N1M0
Chemo Rad, CCR - W&W 5/2017
Local Recurrence, discuss options 11/26/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/15/2017, folfox/oxapalatin + avastin starts on the 12/20/2017
Blood Clot in Neck 1/16/2018, stop avastin, continue FolFox
TME/Liver Resect 4/3/2018
Biopsy Results 0/8 Lymph nodes clear, margins not clear, CEA now .8, more chemo and possible radiation, outlook looks good, staying positive!!

jep
Posts: 67
Joined: Sun Jun 11, 2017 7:45 pm

Re: Colon cancer screening at 45 - New guidelines

Postby jep » Sun Jun 10, 2018 8:18 pm

Thanks so much for sharing this article! I'm 40 and just had my first colonoscopy last month....I met with a GI doc and told him about my change in bowel habits....I kind of figured it was stress related, but after my husband's diagnosis I just had to get checked....the GI told me that he believes anyone 40 or over with a change in bowel habits should have a scope...I'm glad I went to him....my husband's GI (former...we fired him) pushed it off for months and made him think that he had IBS....I'm sharing this article with anyone who will listen!
-jep
Husband DX Stage IV CC on May 16, 2017
47 years old
Tumor Location: recto-sigmoid
Tumor type: Adenocarcinoma
Tumor size: 7.4 cm
Tumor grade: G3
TNM code: T3N2M1
Positive lymph nodes: 8 out of 20
Baseline CEA value: .9
LVI: present
Perineural invasion: present
Surgical margins: clear (w/in microns)
Primary surgery type: LAR
Folfox (August 2017-January 2018)
Scope June '18 - CLEAR! - 2 polyps removed


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