CEA dropped!

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Robino1
Posts: 462
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: CEA dropped!

Postby Robino1 » Wed May 30, 2018 7:20 pm

O.M.G. That is sooo fantastic!!!

I admit to tears of joy. :)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: CEA dropped!

Postby Shana » Wed May 30, 2018 8:47 pm

Aww, thank you again for the well wishes! I am very excited and grateful. I hope to keep kickin' cancer ass! :)

Hugs and Rainbows to all!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

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CRguy
Posts: 9591
Joined: Sun Feb 10, 2008 6:00 pm

Re: CEA dropped!

Postby CRguy » Wed May 30, 2018 9:18 pm

Image

I thought about the happy dancin' squirrel ... BUTT

don't think we've had the happy dancin' cat here for a LONG time !!!!!

Congrats on the results

luvvin' it

Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: CEA dropped!

Postby Shana » Thu May 31, 2018 6:57 pm

CRguy wrote:Image

I thought about the happy dancin' squirrel ... BUTT

don't think we've had the happy dancin' cat here for a LONG time !!!!!

Congrats on the results

luvvin' it

Cheers
CRguy


CRguy, you're the icing on my cake! I'm loving that dancin' cat! Our 4 1/2 yr old Bengal is snoozing on my bed right now after chasing birds, squirrels and lizards today. Thanks much!

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

User avatar
CRguy
Posts: 9591
Joined: Sun Feb 10, 2008 6:00 pm

Re: CEA dropped!

Postby CRguy » Fri Jun 01, 2018 12:48 am

Hey homie GLAD it's working for you !!!!

Ocicats, Birmans, Maus, Abbys, Bengals, Savannahs, Sphinx ..... ALL totally cool IMO
( cared for them all in my day ! )
...AND I am a DOG kinda guy ... BUTT a Vet for 35+ years so I LUVS 'em ALL !
...AND truth be told ...

when I was 5 we had a cat (Blackie) who was "queening" and she found a place in the front hall closet
she nested there ...BUTT my folks told me she would NOT settle down until she had roamed around and found me.
TRUE story ... so I went out to the hall and fell asleep ... AND when I awoke there were NOW 4 kittens, Momma ... and me

Yeah I ended up being a Vet :!: :!: :!:
guess it was in my DNA !!! :mrgreen:

Harmony sista'
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

orlar
Posts: 61
Joined: Fri Jul 21, 2017 12:51 am
Location: oregon

Re: CEA dropped!

Postby orlar » Fri Jun 01, 2018 6:28 pm

That's great to hear! Let's go for another double digit drop on the next CEA.
56yo male DX 5/17, Right Hemi colectomy 6/17
Stage 3c 12 of 21 LN
7/17-12/17 Folfox(no Oxi round 9-12)
12/17 liver/lung mets-Stage 4 MSS KRAS G13D
2/18 liver doubled to 8.5cm+new met, lung mets to 1.4cm, multi peri/omen
2/18-7/18 Folfiri+Avastin(no 5FU after C2)
4/18 mets shrinking
7/18 liver/lung mets growing, Folfiri stopped
9/18 Accepted Trial-start assessment and await Foundation 1 results
CEA 5/17-16.2, 12/17-16.1, 02/18-43.0, 3/18-16.9, 4/18-9.0, 5/18-5.5, 6/18-6.9, 7/18-7.8

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LPL
Posts: 410
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: CEA dropped!

Postby LPL » Sat Jun 02, 2018 4:00 pm

CRguy,
You once wrote:
”Dogs have family - Cats have staff”
I saved that :wink:
And a lot of my friends love that quote and agree!

Shana, congratulation for the CEA down!!! :)
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

User avatar
CRguy
Posts: 9591
Joined: Sun Feb 10, 2008 6:00 pm

Re: CEA dropped!

Postby CRguy » Sat Jun 02, 2018 5:00 pm

.....and O/T but hilarious are the following from a local news feed
( probably on YouTube also )

https://globalnews.ca/video/4248912/glo ... 2#autoplay

Walter the singing french bulldog at the 26:35 minute mark
and at the 30:10 minute time mark ... a CAT who is in training to be a dog !

Cheers all
enjoy !!!!

CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: CEA dropped!

Postby Shana » Mon Jun 04, 2018 4:00 pm

orlar wrote:That's great to hear! Let's go for another double digit drop on the next CEA.


Thank you Orlar! That would be awesome, feeling good so hoping that's a good sign :)
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

User avatar
Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: CEA dropped!

Postby Shana » Mon Jun 04, 2018 4:02 pm

Atoq wrote:Such good news! Congratulations! Way to go ! :D

Claudia


Thank you Claudia! Hoping all is good with you... we are warrior women! :)
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

User avatar
Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: CEA dropped!

Postby Shana » Mon Jun 04, 2018 4:05 pm

Robino1 wrote:O.M.G. That is sooo fantastic!!!

I admit to tears of joy. :)


Aww, thank you Robin! I'm relieved but still planning ahead.. can't let guard down with Stage IV, we need to stay a few steps ahead always! :D
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

User avatar
Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: CEA dropped!

Postby Shana » Mon Jun 04, 2018 4:07 pm

LPL wrote:CRguy,
You once wrote:
”Dogs have family - Cats have staff”
I saved that :wink:
And a lot of my friends love that quote and agree!

Shana, congratulation for the CEA down!!! :)


Thaks you LPL! Just going to keep on keeping on!
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

User avatar
Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: CEA dropped!

Postby Shana » Mon Jun 04, 2018 4:09 pm

Lee wrote:AWESOME NEWS :D

So happy for you and Happy Birthday!

Lee


Thank you Lee! It was great and so was the cake! :)
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!


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