Just makes me cry thinking of my two daughters and son and wonder where I will be in the future. Staying strong but emotions come out when you least expect.
Doing chemo another six rounds has been really hard.
I just finished my first round. Even though it’s for preventative I wish I did not have too do.
Disney Movie Coco
Disney Movie Coco
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.
Re: Disney Movie Coco
Hopefully you will be right here with your daughters and son in the future. It is odd how movies or music can get us emotional. I can completely understand that feeling while watching Coco which is a wonderful movie. You will get through these chemo sessions. Stay strong and keep coming back here to the board for support!
Re: Disney Movie Coco
I haven’t seen Coco but do you know the Howls moving castle of Miyazaki? We saw it with the kids (they are 8 and 11) and there is this girl who suddely becomes really old because of a witch, so I told them: that’s me after chemoradiation and surgery (they also removed my uterus and ovaries). But then she wakes up the day after and decides to travel to find someone who can help her and she is happy that she can still walk and take care of others. So I thought I want to do like her 
Claudia
Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED
-
Mohrfamily
- Posts: 267
- Joined: Tue May 22, 2018 4:04 pm
Re: Disney Movie Coco
My DH was recently diagnosed. I am right there with you I am a big Disney mom but I find the movies to be the enemy right now as they are all missing 1 or both parents. Thinking of the Coco song makes my eyes sting some. I've also turned to music in the past as a outlet for me but even the radio is the enemy I'm afraid of why certain songs come at certain times being "signs".
I continue my prayer every day "Lord, thank you for another day with my husband. Another day with his children who love and need him endlessly. My husband isn't going anywhere because we are going to fight this together"
Having the forums positivity has helped immensly versus googling nightmares on my own.
I continue my prayer every day "Lord, thank you for another day with my husband. Another day with his children who love and need him endlessly. My husband isn't going anywhere because we are going to fight this together"
Having the forums positivity has helped immensly versus googling nightmares on my own.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI
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