Postby Rikimaroo » Thu May 24, 2018 6:53 pm
Not trying to scare you but my CEA went from normal to 500. I had RC and it went to my liver and that is why it skyrocketed. Like you I was very concerned and freaked out for all the right reasons which were realized once they did the scans, ct, pet etc...and found one solitary mass in liver.
All is still treatable so don't lose hope, but its a hard road to travel, but you will make it through it.
why did you do this: 7/2016 Quit chemo after 5 rounds & had port removed
You need to listen to your doctors and do everything they say. I know it sucks and at times I want to tell my oncologist to FK off and stop drugging me up, but there doing it to help. It's rough. There are many other options then flat out stopping, if Oxi is bad, do Irinotocen. You have to talk to your docs, I understand side effects are horrible and you just want to quit, I do, trust me. But you gotta roll through it, your young.
Rikimaroo
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.