Question about chemo side effects

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dauofcamom
Posts: 34
Joined: Sun Apr 22, 2018 7:11 pm

Question about chemo side effects

Postby dauofcamom » Thu May 24, 2018 4:09 pm

This may be wishful thinking but my mom doesn’t seem to be experiencing any severe side effects on the Xelox regime...so far. She started her chemo last Wednesday. About three days after her infusion of oxaliplatin, she had mild tingling, cold sensitivity and was tired and lost her appetite. That lasted about two and a half days but now she says she feels perfectly normal although she’s been on the capecitabine for eight days so far.

My question is those of you who had mild symptoms the first round, did it stay that way? Or did it get significantly worse as the rounds went on?
Long Distance Caregiver to 75 year old Mom
3/2018 - colonoscopy, DX malignant cecum mass
4/2018 - right hemi
Stage IIIC - T4bN1aM0
MSI High
5/2018 - Xelox Regime
10/2018 - peri Mets discovered
10/2018 - Start Keytruda every 3 weeks
12/2018 - scan all clear

Caat55
Posts: 680
Joined: Sat Dec 23, 2017 6:01 pm

Re: Question about chemo side effects

Postby Caat55 » Thu May 24, 2018 6:25 pm

I don't want to rain on your parade but my side effects got worse with each cycle. First time was kind of a trip, next few have been stronger, longer and more uncomfortable.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Rikimaroo
Posts: 333
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Question about chemo side effects

Postby Rikimaroo » Thu May 24, 2018 6:56 pm

Xeloda is not a big deal from what I see. Sides effects are minimal if none. Oxi is the real pain in the BUTT...Neuropathy its biggest sidekick, first bite syndrome (jaw cramping), cold sensitivity, not able to drink even room temp water which usually happens on 2nd cycle. I am currently doing another six rounds to be preventative. I hate it. But gotta do everything I can.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
FolFiri 11/6 - 5 rounds
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
Maintenance Chemo begin 6/3/20 FolFiri

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Question about chemo side effects

Postby Aqx99 » Thu May 24, 2018 11:57 pm

My side effects got worse each cycle. I had to have the doses of both reduced more than once
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

heiders33
Posts: 362
Joined: Sat Nov 04, 2017 11:08 am

Re: Question about chemo side effects

Postby heiders33 » Fri May 25, 2018 6:41 am

Mine also got worse and more prolonged -- however, I also learned how to manage them better and could predict what each day would bring. I remember the 5th cycle I felt like I got hit by a truck and was basically in bed for two days. The 6th and last cycle I had the Oxi reduced by 50% due to neuropathy in my feet. I continued to take the full Xeloda as I tolerated that much better.
37 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU
7/19 - Clear CT
9/19 - Clear colonoscopy/colonography
10/19 - Clear CT
11/19 - CEA 9.8, PET abnormal, confirmed local recurrence

dauofcamom
Posts: 34
Joined: Sun Apr 22, 2018 7:11 pm

Re: Question about chemo side effects

Postby dauofcamom » Fri May 25, 2018 7:14 am

Thank you for your responses. I am a realist and this is what I suspected. First round being fairly easy. I am heading back home next week and won’t be here with my mom for the next few rounds. I want to be able to prepare my dad and brother and aunt for what they can expect.
Long Distance Caregiver to 75 year old Mom
3/2018 - colonoscopy, DX malignant cecum mass
4/2018 - right hemi
Stage IIIC - T4bN1aM0
MSI High
5/2018 - Xelox Regime
10/2018 - peri Mets discovered
10/2018 - Start Keytruda every 3 weeks
12/2018 - scan all clear


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