Worried wife...

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Mohrfamily
Posts: 140
Joined: Tue May 22, 2018 4:04 pm

Worried wife...

Postby Mohrfamily » Tue May 22, 2018 4:34 pm

There are no coincidences in life. If god knows us better than our spouses, our parents, then he knew my stubborn husband with the stressing diesel mechanic job with insurance would never go see a doctor on his own. An "if it ain't broke" guy to a T. He was laid off from his job, and began to get abdominal pain, thinking it was lactose intolerance he changed his diet and cut out alcohol. Better but still dull ache. Caused enough concern that again, god knew if he went on my insurance (which he did) he would get routine bloodwork done. Knowing full well that if those results were bad he'd be in the doctors office. 5 months from then and today we were finally told, after an ultrasound, 2 CT scans and a PET scan its stage 4 metastatic CRC the mets to the liver.
Chemo is next week after putting in a port, fluflox? Any encouragement? Keep me away from Google please!
DH dx officially stage IV with liver mets largest measuring 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Worried wife...

Postby SteveNZ » Tue May 22, 2018 8:24 pm

Hi there,
I feel for you going through all of this. I must admit I am a bit like your husband, being stubborn about medical things.... we come like that..LOL :D
It will be a challenge ahead but you have heaps of friends here.
Please pass on my regards to your husband '..one stubborn guy to another..'! Tell him not to forget about the important issues in life; ie
1-Yourself! Highest priority as you carry quite a load... I see my wife suffering over my cancer and it hurts. So bless you heaps!
2- Football (I am in New Zealand so it is Rugby football) and motorbikes.... Haha

Seriously though do keep in touch. Folk here know what it is like and we care about you both.
Steve
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Worried wife...

Postby DarknessEmbraced » Thu May 24, 2018 7:28 am

I'm sorry you and your husband are going through this!*hugs* I hope his chemo goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Worried wife...

Postby LPL » Fri May 25, 2018 7:21 am

Hi ”Worried wife”,
Welcome to this good Forum, sorry you had to join.
I think I understand how you feel (see my signature).
You said: ”Keep me away from Google please” and you are right - it is much better to read here.
I have saved this post with good info for newly diagnosed https://coloncancersupport.colonclub.co ... 98#p474558
It includes a link how to add a signature. That is very good to do/have and personally I learned important things to know while creating mine.
Best of luck going forward. Ask questions and read here is the best advice I can give.
Kind regards /LPL
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

Mohrfamily
Posts: 140
Joined: Tue May 22, 2018 4:04 pm

Re: Worried wife...

Postby Mohrfamily » Mon May 28, 2018 12:08 pm

Thanks to all. My insurance provides a nurse doing behind the scenes work and is facilitating a second opinion with Cleveland clinic with a doctor who specializes in colon and helped write the NCCN guidelines for colon Cancer.
DH dx officially stage IV with liver mets largest measuring 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Worried wife...

Postby LPL » Mon May 28, 2018 12:19 pm

Mohrfamily wrote:Thanks to all. My insurance provides a nurse doing behind the scenes work and is facilitating a second opinion with Cleveland clinic with a doctor who specializes in colon and helped write the NCCN guidelines for colon Cancer.

That is very good news!
I hope it will be a good appointment for you both.
The 2nd opinion hubby/we had was so valuble!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

User avatar
ANDRETEXAS
Posts: 607
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Worried wife...

Postby ANDRETEXAS » Mon May 28, 2018 12:49 pm

Best of luck with the second opinion. But no matter what the diagnosis, know that you and your husband can and must handle it in a positive manner and with a positive mindset. One day at a time and stay away from google. No person's diagnosis is the same as another. The two of you and your doctors will formulate a plan just for you. Hang in there! Andre
2014
2/10 - Colon resect
2/13 - DX- Stage IIIb
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy
2019
3/11 - clean CT

ONE DAY AT A TIME !

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Worried wife...

Postby DarknessEmbraced » Mon May 28, 2018 12:50 pm

I'm glad you're able to get a second opinion! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

Mohrfamily
Posts: 140
Joined: Tue May 22, 2018 4:04 pm

Re: Worried wife...

Postby Mohrfamily » Wed Apr 03, 2019 4:51 am

Its hard to believe it's been a year.

1 year he had routine bloodwork done

1 year since that bloodwork put us on the path

In April we found the biopsy results to determine it was cancer.

He's still alive and kicking the hell Put off this cancer.
DH dx officially stage IV with liver mets largest measuring 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.

Pyro
Posts: 275
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Worried wife...

Postby Pyro » Wed Apr 03, 2019 7:58 am

Yes, stay away from google!!! My Onc. Said the same thing but realized we were human. The only website he said to go to was MD Anderson or th Mayo Clinic.
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it


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