Starting FolFox tomorrow

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Rikimaroo
Posts: 436
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Starting FolFox tomorrow

Postby Rikimaroo » Tue May 22, 2018 1:33 pm

Hello All,

Just wanted to update everyone on my status. So far so good, been very positive with everything. Doctors seem to be more concerned about recurrence in Liver vs Local Recurrence in rectum. So I am getting another six rounds of chemo which would bring my total to 12. I had a 3 month break and during that 3 month had the LAR/Liver REsection.

I have neuropathy in my hands and feet, numbness sensation. I have the ileostomy bag and was wondering if there is anything I should look out for during chemo with an Ileostomy.

Hopefully once this is all done, next step is reversal probably late september or early October is what my surgeon said.

I so want this to be over and never again deal with cancer.

Rikimaroo
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

User avatar
Atoq
Posts: 412
Joined: Wed Oct 25, 2017 9:31 am

Re: Starting FolFox tomorrow

Postby Atoq » Tue May 22, 2018 4:44 pm

I hope you get through the new round with Folfox with minimal side effects. As I understood, the bag is an advantage during chemo, but someone with more experience will for sure answer you.

All the best and wish you stay NED forever :D

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surg. for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 scope
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED
2023 NED

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Starting FolFox tomorrow

Postby DarknessEmbraced » Thu May 24, 2018 7:36 am

I hope your chemo goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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