3 years later, still here

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Lydia666
Posts: 662
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

3 years later, still here

Postby Lydia666 » Tue May 15, 2018 9:27 pm

Just wanted to say that my 3 yr anniversary is around the corner and I am still here and doing ok. I just wanted to check in because survivors' stories kept me alive 3 years ago. I have found out since that i have a faulty gene , a rare one, called chek2, which basically leaves me less protected against cancer than those without the mutation. I have to be monitored for life but, as far as the colorectal cancer from 3 years ago, things seem to be ok, at least for now. We all know that the next doctor's appointment could bring bad news, but at least for now, my life is somewhat back to normal.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
July 2016- ileo reversal
August 2016- DCIS
Feb 24,2017- prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Mom to 4 & 7 yrs kids (6 mo. & 3.5 yrs at diagnosis in June 2015)

User avatar
CRguy
Posts: 9592
Joined: Sun Feb 10, 2008 6:00 pm

Re: 3 years later, still here

Postby CRguy » Tue May 15, 2018 11:33 pm

Hey homie !!!!

So very good of you to let us know you are doing well and come back to spread some very powerful, positive energy back on the ole forum !!!!

Cheers and Harmony
Best wishes
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

tater
Posts: 67
Joined: Wed Jul 19, 2017 5:53 pm

Re: 3 years later, still here

Postby tater » Tue May 15, 2018 11:38 pm

Good to hear stories like this. I hope you continue to enjoy your stay in NEDville.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18
Clear CT and MRI on 2/5/2018
Reversal Surgery 6/26/18

SteveNZ
Posts: 140
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: 3 years later, still here

Postby SteveNZ » Wed May 16, 2018 3:24 am

Thank you Lydia for sharing.
It is encouraging for folk like myself plodding through (still within radiation treatment- then a very likely operation etc...) this 'adventure' in life.
Thanks so much.... and am real happy for you. :D
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

DarknessEmbraced
Posts: 3115
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 3 years later, still here

Postby DarknessEmbraced » Wed May 16, 2018 8:15 am

I'm glad you're doing well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

lpas
Posts: 1001
Joined: Wed Nov 19, 2014 11:11 pm

Re: 3 years later, still here

Postby lpas » Wed May 16, 2018 9:39 am

That's awesome, Lydia. So glad to hear all is still going well!!
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & Celebrex
3/16 Ovarian mass removed. Benign fibroid
9/16 clean scope
4/18 clean CT
Ongoing Celebrex, Tagamet & other carefully-targeted supplements
Post-chemo CEA 3.0, 2.5, 2.3, 2.0, 1.6, 1.3, 1.8, 2.1, 1.8, 2.0, 1.8, 1.9, 1.7, 1.5, 1.6, 1.5, 1.4, 1.4, 1.3, 1.3, 1.6, 1.6, 1.3, 1.4, 1.6, 2.2, 2.4
Mom to a 4 & 6yo

Lydia666
Posts: 662
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: 3 years later, still here

Postby Lydia666 » Wed May 16, 2018 6:16 pm

lpas wrote:That's awesome, Lydia. So glad to hear all is still going well!!

Thanks lpas. I am glad you are doing well too. I am really celebrating, i am lucky to be among those who get to survive it, at least for a while. It's the luck of the draw.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
July 2016- ileo reversal
August 2016- DCIS
Feb 24,2017- prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Mom to 4 & 7 yrs kids (6 mo. & 3.5 yrs at diagnosis in June 2015)

Lydia666
Posts: 662
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: 3 years later, still here

Postby Lydia666 » Wed May 16, 2018 6:17 pm

DarknessEmbraced wrote:I'm glad you're doing well!*hugs*

Thanks! I am glad to see you are doing well too.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
July 2016- ileo reversal
August 2016- DCIS
Feb 24,2017- prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Mom to 4 & 7 yrs kids (6 mo. & 3.5 yrs at diagnosis in June 2015)


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