The Colon Club

I am definitely glad to be so closely monitored.

Just keeping it real but positive too!

CRguy wrote:Ya know homie ...
sometimes results just SUCK SHIT !!!!!
BUTT I have also learned here that :
" Sometimes life is what it IS ... but may not always be, what it seems. "

Keep putting one foot ahead of the other, and YES !

I am definitely glad to be so closely monitored.

= WORD !!!!!

Just keeping it real but positive too!

and you have the whole crowd HERE sayin'
Backatcha sista'

Love Peace and Harmony
with you on the Journey
CRguy

Shana wrote:...I am also looking at clinical trials at UCSF and Stanford for some other options if the Irinotecan is no longer working....

ANDREW GIUSTI MEMORIAL AWARD
María Cecilia Antúnez Walker (Maia)

When the Late Stage MSS-CRC Trial Finder launched last May, it was because of Dr. Tom Marsilje’s brilliant idea and because of the countless hours that his partner in crime, Maia (Cee Cee) Walker, invested into making his dream become a reality. Tom and Maia met on The Colon Club’s message boards and soon became fast friends, virtually. Tom had joined to meet other patients like himself and help them find trials; Maia had joined to help her friend who was fighting CRC and later passed away. With Tom in San Diego and Maia in Argentina, they quickly discovered cancer knows no bounds (and especially a love for cancer research). Maia jumped in to help Tom transform his Excel spreadsheet into a web-based application that more patients could use. This tool served as the starting point for the robust platform Flatiron built last May. Maia worked hand-in-hand with Tom to manually curate the trials, and even after Tom’s passing in Nov. 2017, she has continued to keep the trial finder up-to-date. In March, she traveled to the U.S. to personally train Fight CRC research advocates on the curation process, ensuring her and Tom’s work can be replicated. Since we launched the trial finder in May, close to 10,000 people have visited it and made over 17,000 searches – and this isn’t counting the thousands more who used the earliest tools Tom and Maia developed. Her passion for reach is impacting the world.

Reference: https://fightcolorectalcancer.org/blog/awarding-amazing-advocates-2018/

Atoq wrote:I am sorry to read that, on the other side is good that you feel well and strong, and you can join trials. The most important thing, I am realizing, is not the cat scan result but how you feel. I did one one week ago and still waiting for the results...big hug!

Claudia

O Stoma Mia wrote:

Shana wrote:...I am also looking at clinical trials at UCSF and Stanford for some other options if the Irinotecan is no longer working....

I'm very sorry to hear about the news from your scan. As you mentioned, though, you may be able to find some help in clinical trials.

You mentioned earlier that you had met Maia Walker at the Call on Congress event. She may be able to help you search the clinical trials database for appropriate trials specific to your tumor's genetic profile.

Maia has helped so many over the years. She recently received an award for her work on the Late Stage MSS-CRC Trial Finder. You were so fortunate to have had the opportunity to meet her while you were in Washington. She is such an exceptional person.

ANDREW GIUSTI MEMORIAL AWARD
María Cecilia Antúnez Walker (Maia)

When the Late Stage MSS-CRC Trial Finder launched last May, it was because of Dr. Tom Marsilje’s brilliant idea and because of the countless hours that his partner in crime, Maia (Cee Cee) Walker, invested into making his dream become a reality. Tom and Maia met on The Colon Club’s message boards and soon became fast friends, virtually. Tom had joined to meet other patients like himself and help them find trials; Maia had joined to help her friend who was fighting CRC and later passed away. With Tom in San Diego and Maia in Argentina, they quickly discovered cancer knows no bounds (and especially a love for cancer research). Maia jumped in to help Tom transform his Excel spreadsheet into a web-based application that more patients could use. This tool served as the starting point for the robust platform Flatiron built last May. Maia worked hand-in-hand with Tom to manually curate the trials, and even after Tom’s passing in Nov. 2017, she has continued to keep the trial finder up-to-date. In March, she traveled to the U.S. to personally train Fight CRC research advocates on the curation process, ensuring her and Tom’s work can be replicated. Since we launched the trial finder in May, close to 10,000 people have visited it and made over 17,000 searches – and this isn’t counting the thousands more who used the earliest tools Tom and Maia developed. Her passion for reach is impacting the world.

Reference: https://fightcolorectalcancer.org/blog/awarding-amazing-advocates-2018/

susie0915 wrote:Hopefully you will qualify for a clinical trial Shana. I'm sorry to hear your scan results were not totally positive but glad you are feeling good and strong. I'll pray your CEA will come down in two weeks. Keep fighting, I am always inspired by your positive attitude.

Robino1 wrote:Shana, my thoughts and prayers are with you!

I too have not gotten the best news with my latest scan and CEA.

Oxaliplatin has been reintroduced. Two new spots have showed up and my ascites is back. Because I knew the ascites was rearing its ugly head, I knew that something was going on. Granted the ascites is not as bad as when I got the initial news of recurrence but still could tell just by looking in the mirror.

We have to keep fighting and looking for new ways to fight.

{{{{{heartfelt hugs}}}}}}}

orlar wrote:Shana, I know your latest scan wasn't what was hoped for, but with the increased Irinotecan I'm hoping that may push things back on the right track. I would be interested on what you find out concerning potential clinical trials and that process since you are feeling strong. Positive thoughts heading your way! Larry

Geoman wrote:Hi Shana

This may be a long way from home for you but md Anderson has a trial starting for mss crc. Durvalumab in combo with trametidib.

Fight crc.org has links to many clinical search sites that you can subsribe to and they will match you with current trials and email clinical trials that develop.

I pray for your success. Stay hopeful.

Mitch