Postby Sophy » Wed May 09, 2018 5:08 pm
Updating on my journey - still NED and still so grateful to friends here for showing me how to keep it that way - thanks
CT scan this week showing I am still NED getting on for 4 years since my last lung laser surgery. I feel like a very lucky person
As always, I am so grateful to those here on the board, especially CB75 and Maia, who shared their knowledge and experiences to get me to get to NED when my medical team in NZ didn't have much hope or options.
Last edited by
Sophy on Wed Apr 01, 2020 4:28 am, edited 1 time in total.
dx T3N1M0 Feb 2011 when children age 11, 7 and 2
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
June 20 CT shows nodule, bronchoscopy confirms is scar tissue, still NED
Dec 20 stopping Xeloda continue celebrex, cimetedine
Aug 21,March 23 scans show still NED
March 2023 CURED - discharged from Oncology, no more scans or follow up