Ten years and I missed it!

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Dori W
Posts: 26
Joined: Mon Aug 25, 2014 2:30 pm
Facebook Username: Dori Woodhouse

Ten years and I missed it!

Postby Dori W » Wed May 09, 2018 3:51 pm

Hi everybody,

Yesterday marks ten years since I was first diagnosed with cancer on May, 8th 2008. How did I miss that?! I had surgery on May 15th 2008, followed by six months of FOLFOX chemo. I've been incredibly fortunate to still be here and to have never had a recurrence. Sometimes I ask the "why me"? question (why did I survive when we have lost so many others?), but mostly I just go on with life and try to enjoy it. I'm still at the same job. My six year old is now sixteen! I just signed up to volunteer for a cat rescue a few hours a week. Life has its ups and downs, but I feel grateful today to still be in the game.

Blessings to all of you. I only stop in here now and then these days, but I came here right away when I remembered my anniversary. I guess I feel a little guilty for posting when so many of us are struggling, but on the other hand, maybe I can offer a little hope. I was not diagnosed at stage 4, but I was 3c with "prognostic factors" in the toilet. I had a huge tumor, 14 positive lymph nodes and "signet ring cell" cancer. I even had some suspicious para-aortic nodes. They were not suspicious about them until they shrunk during chemo. Thanks goodness they never showed up again.

Take care, wishing you all the best! Sending love,

Dori
Diagnosed stage 3C signet ring colon cancer in May, 2008
14 out of 18 positive lymph nodes
Final treatment in November, 2008
NED ever since
I used to have an account under "Dori," but I've lost access to it.
You can view my old posts here: search.php?author_id=1446&sr=posts

SteveNZ
Posts: 120
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: Ten years and I missed it!

Postby SteveNZ » Wed May 09, 2018 5:10 pm

That is so great to hear.
So how are celebrating.....? Haha
God bless you heaps.... :D
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
June 2018 - Sitting it out before operation. ....Pretty Miserable- emotions gone weird....?!
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

NedPlease
Posts: 534
Joined: Fri Mar 23, 2012 3:56 pm

Re: Ten years and I missed it!

Postby NedPlease » Wed May 09, 2018 8:59 pm

Great to hear this kind of news!
N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
Today- NED

teachpdx
Posts: 608
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Ten years and I missed it!

Postby teachpdx » Wed May 09, 2018 9:45 pm

I'm so happy for you! I just passed my 6 year mark and I look forward to missing one. Good to hear from survivors.
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

Ron50
Posts: 656
Joined: Fri Feb 10, 2006 7:04 pm

Re: Ten years and I missed it!

Postby Ron50 » Thu May 10, 2018 2:02 am

G'day Dori,
Good to see you still going. Survival is not always easy but for some of us it just happens. I remember when you came on board and you always wonder when you haven't seen someone for a while . I am really glad you got to see your little boy grow up. I reached 20 years in Jan. It seems like a hundred but I'm still hanging in. Hugs to you and your family . Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

User avatar
Robino1
Posts: 461
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Ten years and I missed it!

Postby Robino1 » Thu May 10, 2018 6:38 am

I love seeing long term NED peep posting.

You all give us hope to be a part of that group.

Congratulations! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Grace14
Posts: 417
Joined: Mon Oct 24, 2011 7:42 pm

Re: Ten years and I missed it!

Postby Grace14 » Thu May 10, 2018 7:32 am

That’s fantastic! I too just passed 8 years of being diagnosed in April. I rarely come on here anymore, but’s that’s because my husband suffered a massive stroke 3 years ago. I am now his full time caregiver. Cancer was a breeze compared to what he’s going through. My yearly check up is next week. Praying I’m still NED. There is hope for all you newbies here.
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

WarriorSpouse
Posts: 112
Joined: Tue Aug 16, 2016 9:02 pm

Re: Ten years and I missed it!

Postby WarriorSpouse » Thu May 10, 2018 10:56 am

Hope is always welcome here!
Thanks for sharing your great news.
All the best in everything you do and please come back often:)
WS
Spouse of wife 47 years old
10/2014, Stage IV Metastatic CC
Lymph node involvement 12/15, w/ positive PET on para-aortic lymph nodes.
5 cm sigmoid tumor resection as well as positive Virchow lymph node.
KRAS mut, Highly Differentiated, Lynch Negative
Folfox and Avastin 1 YR (Oxi for 5 months) NED 05/2015
Zeloda and Avastin since 01/2016
Chemo break 03/2017, back on Zeloda and Avastin 04/2017.

"...Perseverance is not a long race; it is many short races one after the other."
-Walter Elliot

Caat55
Posts: 431
Joined: Sat Dec 23, 2017 6:01 pm

Re: Ten years and I missed it!

Postby Caat55 » Fri May 11, 2018 12:16 am

Thank you for sharing this with us. I long for that day.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

User avatar
Rob in PA
Posts: 1975
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Ten years and I missed it!

Postby Rob in PA » Mon May 14, 2018 9:16 pm

Congrats!!!

I'm also 10 years this past November. There are some good stories out there, and yes, it is emotionally hard to stay active on this Board during longer periods of NED (I'm 3.5 years NED)....but wow, has it helped me during the rough years!

Keep on keeping on...

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

tater
Posts: 55
Joined: Wed Jul 19, 2017 5:53 pm

Re: Ten years and I missed it!

Postby tater » Tue May 15, 2018 12:14 pm

thanks for stopping in and giving the update. It's so good to hear these stories so we can all have hope.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 LAR, Hysterectomy & External Nodes Removed W/ileostomy
CEA 1.5 12/30/17, 2.1 2/5/18
Clear CT and MRI on 2/5/2018

User avatar
O Stoma Mia
Posts: 1330
Joined: Sat Jun 22, 2013 6:29 am
Location: Traveling abroad

Re: Ten years and I missed it!

Postby O Stoma Mia » Tue May 15, 2018 2:35 pm

Dori W wrote:... I used to have an account under " Dori " but I've forever lost access to it

Thanks for checking in with such encouraging news. Its always good to see old timers log in again, especially when they have good news to report.

You were here before my time on this forum. Your last post as Dori was a month before my first post as O Stoma Mia, so our paths never crossed. But you left a legacy of over 400 messages on this forum. Anyone can view these old messages, even now. No one has lost access to them. These messages are here forever. They are located here:

Dori's posts
http://coloncancersupport.colonclub.com/search.php?author_id=1446&sr=posts

Your story is a particularly important one, since you were diagnosed with Signet Ring Cell carcinoma -- a type of CRC with a rather dire prognosis. You defied the odds, and people need to know about that. They need to know that there is still hope, even when the odds are stacked against you.

User avatar
CRguy
Posts: 9527
Joined: Sun Feb 10, 2008 6:00 pm

Re: Ten years and I missed it!

Postby CRguy » Tue May 15, 2018 11:41 pm

Dori W wrote:Yesterday marks ten years since I was first diagnosed with cancer on May, 8th 2008. How did I miss that?!
Dori


Because ..... sometimes time flies whether we are having fun or NOT ??? :shock: :mrgreen:
In any event ...
MEGA best wishes to keep racking up those milestones my friend

Cheers and Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3034
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Ten years and I missed it!

Postby DarknessEmbraced » Wed May 16, 2018 8:28 am

Congratulations n 10 years and I'm glad you're doing well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Dori W
Posts: 26
Joined: Mon Aug 25, 2014 2:30 pm
Facebook Username: Dori Woodhouse

Re: Ten years and I missed it!

Postby Dori W » Fri May 18, 2018 2:29 pm

Thank you for all of the kind comments. I really appreciate it. Best wishes to everybody!
Diagnosed stage 3C signet ring colon cancer in May, 2008
14 out of 18 positive lymph nodes
Final treatment in November, 2008
NED ever since
I used to have an account under "Dori," but I've lost access to it.
You can view my old posts here: search.php?author_id=1446&sr=posts


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